Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Diagnosed Celiac, Why Am I Nauseated All The Time?
0

22 posts in this topic

I was diagnosed with celiac disease as a junior in high school after a 5 year battle trying to find out what in the world was wrong with me. I was ecstatic to finally have a name for what I felt, although it meant a total life change, and I've been gluten free ever since.

Every once in awhile I get nauseous, but this nausea lasts for weeks on end....and it doesn't matter what I eat, how fast I eat, or what time in the day I eat it.....I always feel sick in the middle of or right after a meal. Well I'm in one of those times at this moment and am getting really tired of it! This time is worse than usual...I will wake up in the middle of the night and just feel like I'm going to throw up all over the place! I know for a fact I'm not pregnant or anything...I have a 3 1/2 month old son actually. I've been trying to do research and get an idea for myself of what it might be before I go to the doctor...but I really have no idea! I'm also really tired all the time, my son is sleeping through the night...so that's not the problem...and I feel I'm getting enough sleep. So why do I feel so sick and run-down?

I plan to go to the doctor soon (just a family doctor to start with) to see if he has any idea...but I'm afraid he will just tell me its nothing, he has no idea, or it'll turn out to be something serious. Do any of you have some ideas? I would appreciate any sort of input.

Thanks,

Rachel

0

Share this post


Link to post
Share on other sites


Ads by Google:

I don't know for sure what yours is, but my problem ended up being adrenal fatigue/burnout. I ocassionally had nausea and it's one of the symptoms. Google it and see if it's a fit for you. If it is, it's a sub-clinical condition meaning docs don't typically diagnose it, but the good news is most all the fixes are things you can do on your own. Also, if it sound's like you, read Tired of Being Tired by Jesse Lynn Hanley, M.D. I'm finally starting to feel like a normal person again, though I still have a ways to go before I'm 100% healthy.

Adrenal fatigue is common for those who have had constant inflammation (from gluten intolerance), lack of sleep (I'm assuming that's you with a young baby!), and stress.

0

Share this post


Link to post
Share on other sites

Do you think I should try to do the treatment for adrenal fatigue before I spend tons of money going to doctors that might not be able to diagnose me? Does it take a long time to feel a difference?

However I just want this figured out. I guess I should go back to my gastroenterologist. I have yet to meet a family doctor who really knows much about celiac disease. I went back to him about a year and a half after I was diagnosed with some other stomach pains and he said it was probably just IBS. And thus gave me medicine for it. Other than that I haven't been back.

Thanks for the input gals!

0

Share this post


Link to post
Share on other sites

Rachel, even though Carla might be right, what Matilda says could be true as well (or it could be a combination of things). Have you tried eliminating dairy and soy? My youngest daughter is intolerant to all dairy (so am I, but my symptoms are different). She gets very nauseated by especially cheese, and might even throw up in the middle of the night after cheating and eating pizza. Also, she'll get bad stomach aches that last a day or so. If you keep eating the offending food, then you might feel nauseated for weeks on end.

Look adrenal fatigue up on google, and see if the symptoms fit, and go from there. I think it would be a good idea to see a doctor, tell him what's happening, and suggest what you suspect might be the problem.

You could also be anemic. I think asking to have your levels of essential nutrients checked would be a good idea.

0

Share this post


Link to post
Share on other sites




I'm sorry to hear you are feeling nauseated, believe me I know, I've been nauseaus for about a year now.

I find keeping a journal can be helpful in tracking my reactions. Have you tried that? Are you eating dairy? A friend who just had a baby has developed an intolerance to dairy, in fact the baby is about three months old now. She has a rash as the primary symptom. Do you have any other symptoms that are odd or occasional that don't seem related to the nausea?

I hope you will be feeling better soon.

0

Share this post


Link to post
Share on other sites

Good advice regarding the journal and investigating other intolerances. I would start with the most common reaction causing foods like dairy and soy, noting the reactions to those foods in the journal--do not forget to break down any combination foods like say, chicken parmesan into the separate ingredients. It is better to stick to simple foods if possible. The journal is a valuable tool to have for your doctor to see as well. Not only for him to see your symptoms written there, but for him to see you are taking an active role in trying to figure this out. Take care.

0

Share this post


Link to post
Share on other sites

You sound exactly like me. Turns out I have acid reflux and 25% of patients w/ reflux present with nausea and NO heartburn.

I wake up at night nauseated, too, in fact, I dream I am throwing up. Waking up at night is one of the BIGGEST symptoms of reflux. You also will want to try sleeping in an elevated position.

Nexium works wonders for this. You have to find the right meds, though. I tried Prilosec OTC and it made the problem worse.

Nexium is a good choice. Ask your dr. for some samples of it. I'll be you see a huge difference in just a few days.

0

Share this post


Link to post
Share on other sites

I would do the search for adrenal fatigue and see if it's a fit for you. If it is, I would definately start on the suggestions as they actually would be helpful for anyone who's had stress or been ill for a long time.

That being said, I think you should also keep a food diary to see if any specific foods are causing problems and have your blood levels looked at to check thyroid, anemia, etc. If you're anything like me, you're definately ill, but all your levels look fine. That doesn't mean your body is working at its optimal level ... you can have sub-clinical problems -- things that are an issue but not a disease yet.

In three weeks time I've gone from not being able to get out of bed to being able to do simple tasks and light exercise. So, it's a significant improvement, but still have a ways to go.

0

Share this post


Link to post
Share on other sites

Nausea's the pits, isn't it? Everyone else has posted great advice, and I'm sure you would know if you were pregnant, but just in case--it IS possible to get pregnant immediately after giving birth, even if you are breastfeeding.

My sister-in-law is exactly 10 months older than her sister, who was full-term. And my neighbor thought that she couldn't get pregnant if she was breastfeeding, but she got pregnant 4 months after her first baby was born, and then had twins less than a year after that one was born!! :blink:

Then she had her tubes tied.

0

Share this post


Link to post
Share on other sites
Nausea's the pits, isn't it? Everyone else has posted great advice, and I'm sure you would know if you were pregnant, but just in case--it IS possible to get pregnant immediately after giving birth, even if you are breastfeeding.

My sister-in-law is exactly 10 months older than her sister, who was full-term. And my neighbor thought that she couldn't get pregnant if she was breastfeeding, but she got pregnant 4 months after her first baby was born, and then had twins less than a year after that one was born!! :blink:

Then she had her tubes tied.

This is true. I taught natural family planning for 7 years. We taught how breastfeeding can help space babies, but what signs to look for to see if fertility is returning. You can get pregnant breastfeeding, though it's unlikely to get pregnant if you are exclusively breastfeeding for the first six months (about 97 or 98% chance of not getting pregnant -- which isn't 100%!).

0

Share this post


Link to post
Share on other sites
Do you think I should try to do the treatment for adrenal fatigue before I spend tons of money going to doctors that might not be able to diagnose me? Does it take a long time to feel a difference?

However I just want this figured out. I guess I should go back to my gastroenterologist. I have yet to meet a family doctor who really knows much about celiac disease. I went back to him about a year and a half after I was diagnosed with some other stomach pains and he said it was probably just IBS. And thus gave me medicine for it. Other than that I haven't been back.

Thanks for the input gals!

I would go to a doctor and get it cked out. Other ideas: gastritis or ulcer. So you don't have any pain? What about any dizziness?

0

Share this post


Link to post
Share on other sites
I would go to a doctor and get it cked out.

That's the best advice. We can all speculate, but until you get to the doc and get poked and prodded you'll never know. (i know doctors aren't always right/helpful/insightful/caring, yada yada yada, that's fodder for another thread) You PCP should be able to ask the right ??s and help figure out what's ailing you. If you watch this thread long enough you may be convinced that you have everything from malaria to jock itch. ;)

I'm not trying to make light of your situation, I just think a trip to the doctor is your best course of action.

Everybody means well, but the doctor would be my first stop.

0

Share this post


Link to post
Share on other sites
That's the best advice. We can all speculate, but until you get to the doc and get poked and prodded you'll never know. (i know doctors aren't always right/helpful/insightful/caring, yada yada yada, that's fodder for another thread) You PCP should be able to ask the right ??s and help figure out what's ailing you. If you watch this thread long enough you may be convinced that you have everything from malaria to jock itch. ;)

I'm not trying to make light of your situation, I just think a trip to the doctor is your best course of action.

Everybody means well, but the doctor would be my first stop.

I think that if you read everyone's advice more carefully you will notice that almost everyone suggested seeing her doctor -- the only other things suggested were keeping a food diary for him to see and seeing if her symptoms matched up with adrenal fatigue (the cure of which is rest, eating right, lowering stress, etc.). I don't see that anyone has suggested anything weird or radical like jock itch or malaria. :o The doctor can rule out a few things and assure her things are okay, but chances of him actually finding out what's causing the nausea are slim. :blink: People are just posting their experiences so she can learn from them, which is why she asked here ... she seems to have wanted to hear our ideas. :rolleyes:

0

Share this post


Link to post
Share on other sites
I think that if you read everyone's advice more carefully you will notice that almost everyone suggested seeing her doctor -- the only other things suggested were keeping a food diary for him to see and seeing if her symptoms matched up with adrenal fatigue (the cure of which is rest, eating right, lowering stress, etc.). I don't see that anyone has suggested anything weird or radical like jock itch or malaria. The doctor can rule out a few things and assure her things are okay, but chances of him actually finding out what's causing the nausea are slim. People are just posting their experiences so she can learn from them, which is why she asked.

I didn't mean to come off sounding flippant or put down anyone's input. I don't think I made my point very well. I agree that doctors don't have all of the answers, but a good one should do just what is being done on this thread, asking about symptoms, history, etc and for all the money we pay them, and for all the years they spend in school I would hope that they could at least narrow it down and run some tests to further narrow down a diagnosis.

Maybe I stepped over the line invoking jock itch, and for that I am sorry. My point is that we can all relate our experiences - and that's great -my point was to emphasize a visit to the doctor is a good idea. In hindsight I should have said just that and stopped there - I in no way intended to flame or inflame :(

back out of thread with tail between legs... :ph34r:

0

Share this post


Link to post
Share on other sites

After being gluten-free for 1.5 years, I began getting sicker and sicker (out of the blue). Nausea was a main symptom for me (along with severe fatigue, stomach pains, D, and weight loss). Drs checked it all...follow up blood work, small bowel x-ray, endoscopy, colonoscopy...told me nothing was wrong. It turns out that I am now intolerant to other foods....I am still eliminating them, but it has made such a difference. I never thought I would have other intolerances. But, my nausea is almost all the way gone...thank goodness. But, my doctors blow me off when I talk about other food issues, who cares...I know that to feel better, this is what works.

Whatever the problem is, I hope you find it and find a fix! good luck, hon.

0

Share this post


Link to post
Share on other sites
back out of thread with tail between legs... :ph34r:

No need to ... seeing a doc is good advice. It's just that on other threads people mentioned that they are hesitant to post answers to questions anymore because it seems that they get attacked ... I just didn't want anyone to feel hesistant to throw things out there ... the more things said, the more options she has to consider. It's really the fault of the medium ... can't see people's expressions ... which is why I edited mine to include emoticons ... :rolleyes:

0

Share this post


Link to post
Share on other sites

I really appreciate everyone's input! I've tried cutting dairy out of my diet before, and didn't notice a change. I talked to my husband about it, and he agreed to help more at home and with the baby to lower my stress and to make it a priority that I get some more exercise. I'm also going to go to my family doctor and talk to him about the acid reflux...it runs in my family. So hopefully it's one of those two things. I checked online for ulcer symptoms...but I didn't really match them exactly. With that you feel nauseated 2-3 hours after a meal...but I feel sick right after or even in the middle of a meal. So who knows?? I guess I will just have to go to the doctor and see!

Thanks again for all the help!

0

Share this post


Link to post
Share on other sites

Did you have an endoscopy? If so, that would have shown whether or not you have acid reflux ... if you had one, you can probably just call to find out.

0

Share this post


Link to post
Share on other sites
This is true. I taught natural family planning for 7 years. We taught how breastfeeding can help space babies, but what signs to look for to see if fertility is returning. You can get pregnant breastfeeding, though it's unlikely to get pregnant if you are exclusively breastfeeding for the first six months (about 97 or 98% chance of not getting pregnant -- which isn't 100%!).

My OBGYN had the best advice: she said, "Basically, if you feel like doing it (after giving birth)--you're ovulating!" :P

0

Share this post


Link to post
Share on other sites

I did have an endoscopy, but that was more than 3 years ago. I did feel sick a lot before I found out I had celiac disease...but we all know why. I felt tons better for awhile, but then the nausea would come back every now and then. But this time, its almost unbearable. I don't have many chances to actually rest, so I have to work through it. You have to eat to live, yet when I eat I feel so sick...it makes me not even want to eat. But I do, of course. I just need to keep an eye on everything...see if there's a pattern...keep the diary everyone has suggested...try to have less stress...and go to the doctor. Hopefully that will do it for me! :)

As for pregnancy and all that...I'm not breastfeeding (my son did not respond well to it...it seemed to really upset his stomach...but when we switched to Nestle Good Start formula he was a whole new baby!!!) and I take birth control every morning at 8. Besides being careful that way...we are careful other ways as well (I'm trying to keep this as G rated as possible!!) because we don't want any more children. So...I highly doubt that is it ;)

0

Share this post


Link to post
Share on other sites

You can't always tell if you have reflux from an endocsopy-only if there's damage. The best way a GI doc can help you if the endo. is clear is by hearing your symptoms and letting you try some samples of meds.

If your dr thinks it sounds like reflux let him/her give you some samples of Nexium or Prevacid. If it helps, you have reflux.

I really think this is what you have based on waking up nauseated at night. That is a HUGE indicator of reflux and the very first question my dr. asked me to diagnose me "Do you wake up with heartburn or nauseated in the middle of the night?" If so, you probably have reflux.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,367
    • Total Posts
      917,517
  • Topics

  • Posts

    • 9 year Old going through testing
      Yes, ATTITUDE, in all caps, and i am in the field of health care...!
    • TTg IAG > 100 but also Hasimoto's
      Thanks for pointing all that out Gemini! I look forward to finally getting off gluten for good to see how much everything changes.  I never thought about the absorption of my synthroid with all my other issues.  I just see my primary dr. for all my thyroid, perhaps I will ask for a referral to an endo dr for further evaluation and treatment.  Thanks for all the information! 
    • Gluten And Vertigo
      Christiana, I just felt to look at the site. I thought I had clicked to get email alerts. But, actually my email has been 'fritzing' sort of.  Thank you for your note. It is important for my diagnosis. I was diagnosed with chondritis of the collar bone a few months before the fall that resulted in the immobile right arm. The osteo surgeon gave me a cortosol shot that helped a lot. That MRI showed a rotator cuff tear nearly 2/3 thru the strip of tissue that connects the muscle tissue to the bone and makes the shoulder 'rotate' in place.  That was almost a year ago now. I have been learning to be very very mindful about how I use that arm, when I reach, carefully, how I rest it and sleep position. Interesting that I did see a search answer that said ' they are saying now that there could be a connection btn rotator cuff tear and inflammed collar bone. My primary doctor also said I could have an inflammed chest wall that resulted in the chondritis. I remembered that word from a child's diagnosis years ago. That was in his knees and was treated by this same osteo surgeon, by casting the legs over summer holiday, which ended in healed x-rays. That was osteo chondritis desicans. He said then, 'if it is horses, we would have to shoot them.'  I tried to get a blood test three weeks ago for the same antibody we were treating that child with thru his then pediatritian, for rheumatoid antibodies/ recurring strep throat. I had gotten a 'sort of' diagnosis, or agreement from that primary care doctor, allowing me to get the recommended antibiotics (one of the few treatments that it is allowed, because of the need to keep the hearing). But, his new nurse did not relay the request properly. I hate doctor office politics. I hope this newbie is not going to mess with this doctor's little family as well. Last month when researching Meniere's one of the things listed about it was that autoimmune disease is connected to it also. I was hurt before the falls and the inflammation and the collar bone chondritis and the rotator cuff tear. I was very very concerned about it setting off some kind of autoimmune inflammation reaction or worse that can happen when tissue cells are being repaired rapidly and it felt like lots of toxins were being cleansed and processed over a period of many months. The only similar feeling I have ever experienced was when I had a 'deep tissue massage' to release and cleanse a cortisol 'hump' I had after a prolonged period of high family stress situation. Right now, my primary (an O.D. , or osteopath) is working with me. There are two ENTs in this area he offered for Meniere's and has given me Physical Therapy at his complex for Balance Therapy. It is great that that therapist has a MIL that is also dealing with Meniere's and getting exercises from a major hospital complex in the city. I was able to give her some celiac's diagnosis information. Sounded like her MIL and her son were likely to be candidates.  I did not know what the definition was of the term 'vestibular' as in vestibular migraine, another connection to Meniere's. I just typed www.bing.com and then typed 'definition of vestibular.' That had information about the connections btn hearing and sitting positions. I will look up costochondritis. Thank you, again. Best wishes, Anne
    • What Are Your Brands & Flavors Of Gluten Free Ice Cream ?
      I don't worry about the same facility, but I check if it is on the same lines. I think it is usually a good idea to find out if things are made on shared lines. And if they are made on the same line as gluten-containing products how good is the cleaning in between? Chocolate is a good example of this. For example, I contacted a company whose chocolate I used to eat before being diagnosed and they outright told me they are not good about cleaning on shared lines and it is not safe for allergies or celiac. I have had this response from other companies as well (especially when it comes to chocolate sadly). I think this is why Godiva is not safe. Its just a good idea to check.
    • TRUSTING OTHERS about GLUTEN! how do you know if someone has used gluten free flour?
      Wow you all have more balls than I do. I've been gluten free since 2007 and I'm still afraid of offending people. It gives me lots of troubles, really. I'm more like rockstarkate I guess...the "people pleasing" aspect.  I love how you all just have the flat out rule I Will Not Eat It Unless I or a Celiac Made it. (Or a trusted family member).  I still simper and grovel and cringe and apologetically turn things away.  People still put dishes in my face and say "This should be gluten free..."  and I have to awkwardly not eat it and then seem rude.  I've done the whole...checking the bottles thing too.  I do try to dart out of things more though now. I volunteered in other countries in recent years and I felt as vulnerable as all heck, having to rely on them to make food, as well as definitely feeling like I offended people who didn't get it at all. I was feeling brave when I signed up for those but after the second time I was like okay, the fear/anxiety/stress about the food is too much. I managed to dodge out of getting sick, and for the most part people humored me...but it was pretty difficult because I don't like offending people, especially other cultures, with them trying to be nice and make food for me...pretty sure I did offend people as well as annoy many others.  Anyway...no OP, you are not alone. For sure I have trust issues eating other people's food. They say they know but I do truly doubt they are as strict as I would be.   A few times I will still brave eating something...like some little mozzarella balls with vinegar...though, I did still look at the labels.  Someone had to give me a persuasive speech and show me all ingredients (just salt and pepper) after making me chicken wings once. I do tell people, basically, NOT to make me stuff. But they still do.  Another time a friend had worked really hard and was having a terrible time and offered me a burger patty when I arrived, assuring me it was gluten free. I knew I hadn't been there to watch whether she used the "bun spatula" on it or not...but I just didn't feel like giving her a fight about it since she was having a rough time and hosts like to feel they are feeding guests, blah blah. So I ate it. And got glutened. And wailed and gnashed my teeth haha. Lesson learned.  I need to stick to my guns more. I just always feel like I'm being too "difficult" as it is. But...sigh.  It is refreshing for me to read these empowered no BS responses though. You all remind me of where I'm coming from, and not that I'm just being some kind of high maintenance, rude, crazy person. You'd think after, what, nine years now, I wouldn't still be bothered by it...
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,513
    • Most Online
      1,763

    Newest Member
    ajrosales
    Joined