Posted 29 July 2004 - 01:20 PM
Posted 29 July 2004 - 02:02 PM
Posted 30 July 2004 - 06:01 AM
Posted 30 July 2004 - 06:28 AM
Damage is still being done every time you ingest gluten.
positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)
Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.
Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......
"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
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Laughter is the shortest distance between two people.
-- Victor Borge
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"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Posted 30 July 2004 - 01:49 PM
I also haven't reacted when I've eaten gluten by accident but I don't doubt I have it. It nearly killed me. Literally.
Richard, you've said before that celiac disease nearly killed you. How so? Were you malnourished to the extent that it almost killed you? Thanks.
Posted 31 July 2004 - 04:48 PM
Posted 01 August 2004 - 02:53 AM
Posted 01 August 2004 - 10:31 AM
Yes it was malnourishment that nearly killed me. I didn't, however, suffer for months or years -- the effects came on suddenly. It was like I had a flu that wouldn't go away with fevers of up to 105. After 11 days of that and a weight loss of 20 pounds my doctor put me in the hospital. By that time I could barely walk by myself and I was too exhausted to even carry on a conversation. I had terrible chills and sweats. I couldn't add simple numbers. My liver started malfunctioning. My wife, who is a nurse, told me later she wasn't sure I was going to make it.
I spent 11 days in the hospital and missed 10 weeks of work. I had fevers over 101 every day for two months. It was five months before I could do anything other than go to work at a desk job and then come home and collapse. It was 10 months before I returned to what I considered normal strength. It was a nightmare but in some ways I consider myself lucky. I was soooo sick that the doctors tested me for everything they could think of, including celiac, even though my only classic symptom was anemia.
Posted 03 August 2004 - 05:34 AM
Posted 03 August 2004 - 07:34 AM
Posted 03 August 2004 - 05:18 PM
so lets see wat happens when i start exercising and gettin back in shape...hopefully i'll feel better and get some of the lost weight...
Sudden weight loss and "laziness" -- which actually might just be fatigue because you aren't getting the nutrients you need -- are two of the classic symptoms of celiac disease.
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