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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

New To Gluten Free
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Greetings, I just wanted to introduce myself. I discovered after going on the atkins diet for weight loss, that I am gluten intolerant. I have had IBS since I was a teenager and noticed how much better I felt without bread and my symptoms were much better. So now I am off the atkins diet and *trying* to learn to eat gluten free. I don't think I am CS, but I haven't tested either. I don't really have alot of the symptoms, although my sister, who as also recently gone gluten-free does have, although she has had Lyme's before and thinks they are related to that (I am trying to convince her to have the test, esp. since she has had intestinal & weight loss improvement from gluten-free, but her muscle/sleep problems continue. Anyway, I am having such a hard time sticking to gluten-free. I finally broke down and purchased some gluten free products. However, I tend to be sensitive to carbs so I really want to limit them. I also have another 10-20 lbs left to lose. Does anyone else have trouble sticking to the diet? I *always* regret when I cheat and wonder what I could have been thinking, lol. Also, I am still learning what I can and can't eat. I was eating oatmeal for hte fiber and realized that's why my stomach was bothering me so. Does anyone know if methycelluose is ok?( main ingredient in citrucel) It's a main made chemical for fiber. My son also has IBS, but I think it is really encropesis, so I am not sure if I should put him on the diet or not.

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As you move from learning all the things you CAN'T have, to all the things you CAN have (and get your house stocked on them) the diet becomes easier. Read around the message board for a while and you'll find a lot of useful advice. It does get easier!

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WELCOME!!!!! This message board is AMAZING, you will find many useful things, i agree with tiffany, think of what you can have, actually a lot of people loose weight when they go gluten-free so that might help you out a bit, get your whole family tested because it runs in families, go to the site index and you can look at the mainstreem products that are gluten-free. if yoyu hvae any more questions you can pm me
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Hi LeslieW,

Welcome to the board! I am five feet tall and have fought the weight problem most of my life. I am intolerant of all grains, milk, dairy, egg whites, and yeast, so I must never touch any of those if I want to breathe (mine comes out as asthma).

Seven years ago I discovered a book called, "The Carbohydrate Addict's Diet," by Drs. Richard and Rachel Heller. It connected weight gain with overproduction of insulin, a factor leading to diabetes, which my mother had. The diet is basically the Dr. Atkins low carb diet 23 hours a day, with a one hour reward meal where you can eat anything you're not intolerant of. This way your body limits the insulin output. I lost about 20 pounds on the diet, and have stayed on it all these years. Today my weight was 106 pounds, and I knew that I could eat anything I wanted during my one hour.

You might want to get that book. Also, stay open to the possibility that you may be intolerant of certain things like Casein (derived from milk) or modified food starch, or some other ingredient in processed foods. I mainly eat as much natural food as possible, and read each and every label, and only eat at certain restaurants that I know I can tolerate. Living with Celiac means being aggressively diligent to take care of your own health, no matter what other people, doctors, acquaintances, or passersby may say. God bless! Welda

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Hi I just wanted to say that I do the carb. Addict's diet too. I've been on it for 2 weeks and have lost 5 pounds. I went on it because a friend of mine lost 35 pounds on it and has been on it for the better part of 3 years. He doesn't crave carbs at all now.

And for me the same thing has happened, I do eat carbs at my reward meal but I don't crave them all day long. So far I really like it.

Susan

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You aren't alone, I was diagnosed in Feb of this year and found it helpful to pack a snack bag before I leave the house. gluten-free Pudding like Hunt's pudding packs, fruit cups, apples, and cheese are some easy grabs. Also, once I was free of gluten...I found that I didn't crave these foods anymore. It used to be an addiction. Almost all of my food allergies disappeared also. I keep easy grabs incase of temptations and I decided that as long as I had my Hershey's chocolate, I could handle the rest! :)

It is a learning process for finding out what is allowed and what isn't, but keep your chin up...it is soooo very worth it!

:D

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Good morning. Just thought I'd check the message board before leaving to have my biopsy for celiac today. Don't know that you'll see this because it's so long after your post (October 16), but WClemens...I have never heard anyone refer to asthma as something that happens to them when they eat wheat. That happens to me too. Now I know I'm not just imagining it. Thanks.

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    • Newbie: mother to coeliac kids
      If uncooked, he might have difficulty digesting them because eating ANYTHING with a Marsh Stage 4 gut is bound to hurt.    If pickled, he might be reacting to any of the ingrediants even though they could be gluten free.   Often, celiacs develop several food intolerances.  Lactose intolerance is the most common.   I'd recommend keeping a food diary and well-cooked stews, soups for a few days or weeks until his symptoms improve.   Good Luck!  
    • Newbie: mother to coeliac kids
      Research indicates that the celiac disease blood test results do not necessarily correlate with intestinal damage.  My blood tests were "barely positive" yet I had a Marsh Stage 3B (moderate to severe damage).   But that's not important.  Your boy's health is more important!   I can see why he is suffering so much.  The good news is that he should feel well much faster because he is young.  My heart goes out to you and your family!  
    • Newbie: mother to coeliac kids
      Sorry, but I would have to remind you and those who are newbies, that a whole foods, well-cooked diet is probably best.  Avoid all processed foods.  If you have severe intestinal damage, the villi tips are so damaged (or non-existent) that they can not release all the necessary enzymes, etc. to help a person digest and absorb food well or barely!!!  Many celiacs are lactose intolerant until healing occurs (for life if you are genetically lactose intolerant like many Asians, for example).  Many celiacs have developed additional foods intolerances, so it is recommended that you keep a food and symptom journal.   Some folks might be corn intolerant and other might have issues with nightshades (like potatoes).  Others might have issues with even a good veggie like cauliflower.  I personally can not digest cauliflower after a good glutening for some unknown wacky reason.  What I am trying to say, is that everyone has to figure it out on their own because we all have different issues related to celiac damage.  Lactose intolerance is the most common and a good place to start especially with SEVERE intestinal damage like Marsh Stage 4.   
    • need advice
      Welcome!  The only way to find out if you have celiac disease is to get tested.  Here are the tests that your GP can order for you: http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/diagnosing-celiac-disease/screening/ THIS IS IMPORTANT!  YOU MUST BE CONSUMING GLUTEN DAILY FOR THE BLOOD TESTS TO BE ACCURATE.  THIS ALSO INCLUDES THE ENDOSCOPY (BIOPSIES) WHICH ARE DONE BY A GI.   Anxiety can be a symptom for celiac disease.  Please do some more research so that you can get a proper diagnosis.  Can you go gluten free?  Sure.  That's what my hubby did 15 years ago per the very poor advice of my allergist and his GP.   Twelve years later, I was diagnosed.  Weird, huh?  Anyway, hubby will tell you that I get way more support.  He get's a lot of eye rolling.  Plus, our kid (and my folks and siblings) get screened every few years because I have a diagnosis.  My kid gets tested every couple of years even without symptoms because you can be symptom free and still have celiac disease.  celiac disease is genetic.   It is an autoimmune disorder triggered by gluten.  It is the only autoimmune disorder that is triggered by something known.  If you have RA, MS or Lupus, for example, doctors do not know what actually triggers these other autoimmune disorders.   So, Keep researching.  
    • Newbie: mother to coeliac kids
      If I am rembering correctly,  Marsh 4 is the worst damage.  So he should avoid dairy products like cheese, milk, butter, cows milk ice cream for a couple of months. celiac damages the tips of the villa that help to digest lactose ( which is in most dairy).  Being unable to digest dairy will lead to more bloating, gas, etc.. 
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