Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Does An "accident" Mean All Work Done, Lost?
0

12 posts in this topic

By accident, I mean I have no clue what happened. Wednesday was supposedly 5 weeks Gluten-free Casein-free, but ugh.. I was feeling awful. Had a reaction to something I ate.

Only two new things I had that could have caused it, were some Glutano's Petzels (maybe the yeast? lol) and a little Rice Dream's Orange Vanilla Swirl Icecream. I know the plain Vanilla isn't safe, and it's labelled so on the containner, but the Oranga Vanilla swirl didn't have anything saying it wasn't, unless they decided not to mark it, grr!

But, my main question.. since I had an icky reaction to something, does that mean all the work I put in trying to be Gluten-free Casein-free for the past 5 weeks has been ruinned? I don't know, and hope not!

Though, Friday night started up intestinal cramping in the large intestines, which has continued into today so far, which doesn't feel good.. and pretty much, looking at this week, I might even say I'm worse than when I started going Gluten-free Casein-free.. so, why should I even bother with the diet?? Sigh.. was hoping by now, to be noticing some improvement.

Also.. anyone know of any really knowledgable and good Celiac Doctors in the Central New York area (near Syracuse)? My doctor doesn't believe I have celiac disease, and has never heard of Enterolab, so.. be nice to find a doctor who could be more helpful!

Thanks all. =)

0

Share this post


Link to post
Share on other sites


Ads by Google:

After my bad reaction with Rice Dream's Vanilla flavor, which gets cross contamination from other dairy products at their factory, I avoided the orange vanilla swirl flavor which I assumed used the same 'vanilla' Rice Dream product in that vanilla/orange mix.

I don't think your recovery progress is 'ruined'. Every bit helps. ;) But I found the longer I went gluten-free/CF the harder 'slip' symptoms hit me. I'm just ending my 5 day recovery from some gluten contaminated dried onions used in my homemade quacomole (which I made last weekend and finished on Tuesday night). I ate a little of that for 3 days and spent the next 2 days working up to my 'peak' day of excruciating abdominal cramping and bloating and the next 2 days coming back to normal. Maybe I get so used to not having symptoms that symptom recurrence is more of a shock than when I had them all the time. :o

Chin up. It does get better! ;) And keep gluten/casein sleuthing. :)

BURDEE

0

Share this post


Link to post
Share on other sites

STICK WITH THE DIET!!!!!!!!!!!! a mistake doesn't mean you are back at the begining, defenitly not, but you now know how sick you get when you get gluten or casein, more the reason to stick to the diet, when you feel so good and then suddenly you get cross contamination, you will get really sick because your body has adjusted to the diet and then suddenly it is like i don't want this in my body so i am going to everything I can to get it out, hence forth the more violent reaction, if you have the disease you need to stick to the diet and you will start to feel better but only if you really adhere to the diet and get no cross contamination.

0

Share this post


Link to post
Share on other sites

Thanks you two. And yeah, not giving up on the diet, I just haven't felt better at all yet, even before this. Kinda despressing, lol.

burdee -> Yeah, I noticed how their Vanillia was made on the same machines as dairy products, grrr.. how can they claim to call it dairy free?? But guess I was being stupid to think that the vanilla in the orange swirl would be okay, despite them not having the warning on it too. Oh, and at the GFCFdiet website, they do say their Rice Drink isn't safe, think you weren't entirely sure in another thread?

Just annoyed too. First time I tried to go gluten-free (was rather clueless, lol), seemed like I might have been getting better, slowly. Though went back on gluten for biopsies, no real problems.. now that I'm being serious with it, trying to be Gluten-free Casein-free, just can't say I see much results yet. But, maybe having a bad reaction is a good sign then? Never use to have any noticable reactions to gluten (slowly fell into poor health), and only noticable to casien if indigesting like a glass of milk. Piece of cheese wasn't enough, lol.

flagbabyds -> Thanks. I figured though if my body was adjusting to the diet, it'd show signs of healing too. Guess maybe I was wrong there, and the healing may take longer.

I read somewhere, that those intolerant to gluten are more likely not able to handle yeast either? That's a concern too, because I really haven't had much of anything with yeast in it either.. and with how I'm feeling, really don't want to test to see which product was the bad one, lol. (Note to self, try only 1 new product per day!!)

Thanks again you two, and sorry if I'm rambling, don't really know any other place I can ramble on this subject! =)

0

Share this post


Link to post
Share on other sites

Dear Alex,

Please don't give up on this diet! It took me 6mos to even

start feeling better! I guess I had been so sick for so long,

it just takes longer. I still can't tolerate dairy but soy milk

seems ok, I just had a bowl of strawberries and blueberries

with milk. I could not have done this a year ago. Hang on,

it's worth it!!

0

Share this post


Link to post
Share on other sites




Eep, really Judy? How were your symptons? Mine started up about 10 years ago, and just got worse and worse and worse! Been pretty worse for some time now. So guess that means healing could take awhile, lol.. just wish the doctor I'm seeing would think that too! He doesn't though.

And no worries, not gonna give up on the diet, I just wrote that in frustration, forgot to mention I wasn't really going too. =D

Thanks!

0

Share this post


Link to post
Share on other sites

I've been about 5 months on the diet -- and my abdominal pains are still coming -- ugg.......I thought it'd be 1-3 months at the beginning, then I read how it can take some people a year........ick......I'm going to a new, more knowledgable doctor to discuss the possibility of SIBO..........(small intestine bacterial overgrowth)......actually, my appt. is tomorrow........I hate feeling sick.....it's been 6 years pre-diet (since I was 7 years-old) and nearly 1/2 year on diet....this stinks.......I just wanna feel normal; and by now I've forgotten what normal even feels like.

Oh, by the way, Molly is right -- one mistake does not set back all your progress.......after all, if it did, you'd only need to eat a tiny bit of gluten before a biopsy. No, it takes at least a steady month of gluten to knock you back to square one...don't worry about that.

-celiac3270

0

Share this post


Link to post
Share on other sites

Alex,

Keep in mind that there was probably dairy (and possibly gluten, since Rice Dream is not gluten-free) in the Rice Dream "ice cream". But also that when you have one food sensitivity you can easily have others. My three kids and I are gluten and dairy intolerant, and one of the things my kid's doctor mentioned was the possiblilty of them being intolerant to SOY as well. They seem to be fine on it, but the pretzels you had are made from soy flour, so if you try them again (after your current stomach problem is better) and you get a stomachache again, then you might want to consider soy as a problem. Or maybe you already know it isn't a problem. Do you drink soy milk?

Also, 5 weeks is not very long, and you need to give yourself time to heal. Go easy on your digestive system for a while though, and try to stick with simple foods that are easy to digest.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

celiac3270 -> Wow, guess you'd like to smack me for complaining about 5 weeks, while you've been at it for 5 months? =)

Though I can understand your feelings, I've been dealing with my problems for about 10 years now. Least I've hopefully found the cause, just need to get better now!

And great point about the biopsies! Thanks.

gf4life -> It was pointed out to me that the Rice Dream drink isn't gluten free (oops there!). Though seems at least like the "icecream" is. So maybe there was dairy in their non-dairy product.. grrr, that should be illegal!

Pretty sure I'm okay with Soy. I have a Soy Margarine I use, and haven't noticed any problems like I had. Though I'm still wondering if maybe it was the yeast, that's possible right? Because looking at the products I eat, that's the only one that has had yeast in it. Though yeast is naturally in the body too (I believe).. so be kinda odd to be intolerant of it.

Though I do think I have an allergy or something to nuts, so have been avioding eating them, but have been eating products that might have trace amounts. Dumb?

And thanks, my doctor seems to make it sound like I should be feeling better now. So that doesn't help, lol. =)

0

Share this post


Link to post
Share on other sites

My daughter is going through the same thing. She's been on gluten-free diet 2 months now. She's disabled so I prepare all her meals. She's back at school and taking lunch w/her. She has an aide and so I would know if she has sneaked anything she shouldn't have.

I've been really careful what I give her, cook all our meals gluten-free for the whole family. Today she finally had a normal bm and then about 1/2 hour later she had diarrhea! I'm so frustrated not knowing why.

I'm not giving her any milk products, not even her Wishbone Ranch Dressing which she loves, no ice cream, cheese, etc.

I'm reading that it gets better and I hope it does. I'm not one to give us but this is really really difficult.

Lee :unsure:

0

Share this post


Link to post
Share on other sites

Hang in there, everyone. My son has been gluten-free for almost 10 months and still occasionally has a bad day. (He had some Rice Dream Vanilla swirl....hmmmmm) We try really hard not to measure the time gone by -- it only emphasizes the feeling of not getting anywhere. We had "good days" "bad days" and then my oldest invented the term "going forward days" for ones that didn't seem to be either. I kinda liked that feeling -- even if it wasn't a great day, or if we had escaped a bad day (not enough food, not enough variety, feeling lousy) we were still "going forward". I think doctors tell you (and GIG does too!) a few weeks and they just are measuring marginally improvement -- not how long it will take to sort out all the allergies, intolerances, or other issues the celiac has masked or created.

Joanna

0

Share this post


Link to post
Share on other sites
He had some Rice Dream Vanilla swirl

Does he need to aviod Dairy? The Vanilla swirl isn't dairy free, even though they claim it. The drinks though, aren't gluten-free.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,873
    • Total Posts
      919,409
  • Topics

  • Posts

    • Help
      Ok so I had my colonoscopy & endoscopy last Thursday. Don't get results until July 13th as GI is on vacation. I've had bad pain in my lower left abdomen that wraps around to my lower back as well for the past 4 days..even hurts to touch lightly. Went back to the ER & they did an ultrasound & CT scan. The Doctor said that I have "prominent" lymph nodes in the area that is painful as well as thickening & inflammation of my Sigmond colon? Um ok what is that all about? Kind of freaking out over the whole swollen lymph nodes thing. Has anyone ever dealt with this before? 😒
    • Enormous Stool
      My 2 year old daughter has sufferd with extremely large stools for over a year. She will have a bm once or twice a week there has been blood sometimes i took her to the docs and they gave her some stool softner which didnt help they tried uping the dose which still didnt help and they told me it would eventually work which didnt she was then put on movicol which she was only supposed to get half a sachet still no diffrence i uped it to the the full sachet which helps a little she doesnt always have large stools but most of the time she does. She has got to a stage where she clenches and wont let it out because of how sore it is i try to put her on the toilet for it to come a little easier for her but she screams and will try hide herself in a corner and wont let you anywere near her it is heart breaking to watch her. If anyone has any in advice i would really like to hear.   Thanks.
    • News: Celiac.com: This Is the Most Severe Symptom of Gluten Intolerance You've Ever Heard Of
      Gluten is public enemy number one for women with celiac disease—an autoimmune ... A gluten-free diet dramatically improved her symptoms. View the full article
    • Starting Over with GI Dr.
      Everything I have learned I have learned through this forum or simply from my last EGD results and labs and then looking them up on the internet.  The drs have given no information except for do a gluten free diet.  My understanding is that a repeat EGD is needed to confirm healing.  When I was tested about this time last year I was a Marsh3b.  Which in my research is pretty serious.  I am still having ill effects from god only knows what these days.  I went strictly gluten free June 2015.  I have had glutenings (not by choice) and the last one I had was because of an antibiotic that I took that has sent me through the roof with anxiety issues.  I try to be as careful as possible but it is like it doesn't seem to matter how careful I am I am either aching and hurting in my joints, tired all the time or OK one minute and the next feel like crap and that my world is about to end.  It is very frustrating to say the least when you go to the dr and you are expecting support or some sort of answer and don't get one.  I have eliminated milk from my diet as of about a month and a half ago.  That seemed to help, some.  But I still have days where I hurt and ache in my elbows and in my hands.  I have moments when I am about to freeze to death and sit with a heater and where I live the temps outside are 90+ degrees plus humidity and the AC is not even on.  Most of this has just started happening I would say in the past 4 months or so.  At night when I go to bed I wear sweat pants and a sweat shirt and sleep under 4 blankets and a sheet.  They say my thyroid is fine.  I feel like I have some issues with my nervous system but to be honest with you I haven't seen drs enough to mention this to them because all they are worried about is if I have diarrhea.  Cycling Lady I will be keeping any all records that I have and continue to gather the ones for anything I have done in the future.  .  I have been through health issues with my husband and would keep all of his records and labs so we would have proof.  Just seems like doctors don't care anymore.  The last GP I went to actually listened to me and I will see her again next month after the EGD.  I did give ALL of my records, EGD, labs, medical records, etc. to the new GI prior to our first visit back in January.  She said she reviewed them.  And told me we would re-draw the labs and schedule EGD to check healing when I went to her this month.  We have scheduled the EGD but no mention of labs.  JMG I am having the procedure re-done so that I can see if I am healing.  Mostly because of all the ailments I still have or seem to be developing every day.  I used to be a person who could remember things and get things accomplished but lately that has not been happening and scares me more and more every day. I understand that no procedure is risk free.  I have had 2 C-sections, wisdom teeth removed and tubal ligation.  Each one had its own issues after they were done.  I am a person who has to see it to believe it I guess.  If I don't see it, it is hard for me to understand it.  It is hard to figure this out when I am the one who usually takes care of everyone else but then when I need to be taken care of, nobody knows what to do.  I think that is it in a nut shell.  All that ya'll have told me is a big help.  Around here I have no support groups or even a good friend I can talk to about stuff that would even come close to understanding.  My husband will listen, but he doesn't understand.   
    • Loved ones with Celiac in nursing home
      It will be in Gluten-Free Living later this year, October I think
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,907
    • Most Online
      1,763

    Newest Member
    Karrie D.
    Joined