Does An "accident" Mean All Work Done, Lost?
Posted 31 July 2004 - 01:11 PM
Only two new things I had that could have caused it, were some Glutano's Petzels (maybe the yeast? lol) and a little Rice Dream's Orange Vanilla Swirl Icecream. I know the plain Vanilla isn't safe, and it's labelled so on the containner, but the Oranga Vanilla swirl didn't have anything saying it wasn't, unless they decided not to mark it, grr!
But, my main question.. since I had an icky reaction to something, does that mean all the work I put in trying to be Gluten-free Casein-free for the past 5 weeks has been ruinned? I don't know, and hope not!
Though, Friday night started up intestinal cramping in the large intestines, which has continued into today so far, which doesn't feel good.. and pretty much, looking at this week, I might even say I'm worse than when I started going Gluten-free Casein-free.. so, why should I even bother with the diet?? Sigh.. was hoping by now, to be noticing some improvement.
Also.. anyone know of any really knowledgable and good Celiac Doctors in the Central New York area (near Syracuse)? My doctor doesn't believe I have celiac disease, and has never heard of Enterolab, so.. be nice to find a doctor who could be more helpful!
Thanks all. =)
Posted 31 July 2004 - 01:36 PM
I don't think your recovery progress is 'ruined'. Every bit helps. But I found the longer I went gluten-free/CF the harder 'slip' symptoms hit me. I'm just ending my 5 day recovery from some gluten contaminated dried onions used in my homemade quacomole (which I made last weekend and finished on Tuesday night). I ate a little of that for 3 days and spent the next 2 days working up to my 'peak' day of excruciating abdominal cramping and bloating and the next 2 days coming back to normal. Maybe I get so used to not having symptoms that symptom recurrence is more of a shock than when I had them all the time.
Chin up. It does get better! And keep gluten/casein sleuthing.
Gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg free. Enterolab diagnosed gluten/casein intolerant 7/04; soy intolerant 8/07. ELISA test diagnosed egg/cane sugar IgG allergies 8/06; vanilla/nutmeg 8/06. 2006-10 diagnosed by DNA Microbial stool tests and successfully treated: Klebsiella, Enterobacter Cloaecae, Cryptosporidia, Candida, C-diff, Achromobacter, H. Pylori and Dientamoeba Fragilis. 6/10 Heidelberg capsule test diagnosed hypochloridia. Vitamin D deficiency, hypothyroiditis, hypochloridia and low white blood cells caused vulnerability to infections. I now take Betaine HCl, probiotics, Vitamin D and T3 thyroid supplement to maintain immunity.
Posted 31 July 2004 - 01:51 PM
Posted 31 July 2004 - 03:57 PM
burdee -> Yeah, I noticed how their Vanillia was made on the same machines as dairy products, grrr.. how can they claim to call it dairy free?? But guess I was being stupid to think that the vanilla in the orange swirl would be okay, despite them not having the warning on it too. Oh, and at the GFCFdiet website, they do say their Rice Drink isn't safe, think you weren't entirely sure in another thread?
Just annoyed too. First time I tried to go gluten-free (was rather clueless, lol), seemed like I might have been getting better, slowly. Though went back on gluten for biopsies, no real problems.. now that I'm being serious with it, trying to be Gluten-free Casein-free, just can't say I see much results yet. But, maybe having a bad reaction is a good sign then? Never use to have any noticable reactions to gluten (slowly fell into poor health), and only noticable to casien if indigesting like a glass of milk. Piece of cheese wasn't enough, lol.
flagbabyds -> Thanks. I figured though if my body was adjusting to the diet, it'd show signs of healing too. Guess maybe I was wrong there, and the healing may take longer.
I read somewhere, that those intolerant to gluten are more likely not able to handle yeast either? That's a concern too, because I really haven't had much of anything with yeast in it either.. and with how I'm feeling, really don't want to test to see which product was the bad one, lol. (Note to self, try only 1 new product per day!!)
Thanks again you two, and sorry if I'm rambling, don't really know any other place I can ramble on this subject! =)
Posted 31 July 2004 - 06:40 PM
Please don't give up on this diet! It took me 6mos to even
start feeling better! I guess I had been so sick for so long,
it just takes longer. I still can't tolerate dairy but soy milk
seems ok, I just had a bowl of strawberries and blueberries
with milk. I could not have done this a year ago. Hang on,
it's worth it!!
gluten-free since 11/03, neg biopsy, IGA elevated
Posted 31 July 2004 - 09:00 PM
And no worries, not gonna give up on the diet, I just wrote that in frustration, forgot to mention I wasn't really going too. =D
Posted 02 August 2004 - 02:16 PM
Oh, by the way, Molly is right -- one mistake does not set back all your progress.......after all, if it did, you'd only need to eat a tiny bit of gluten before a biopsy. No, it takes at least a steady month of gluten to knock you back to square one...don't worry about that.
Posted 02 August 2004 - 07:34 PM
Keep in mind that there was probably dairy (and possibly gluten, since Rice Dream is not gluten-free) in the Rice Dream "ice cream". But also that when you have one food sensitivity you can easily have others. My three kids and I are gluten and dairy intolerant, and one of the things my kid's doctor mentioned was the possiblilty of them being intolerant to SOY as well. They seem to be fine on it, but the pretzels you had are made from soy flour, so if you try them again (after your current stomach problem is better) and you get a stomachache again, then you might want to consider soy as a problem. Or maybe you already know it isn't a problem. Do you drink soy milk?
Also, 5 weeks is not very long, and you need to give yourself time to heal. Go easy on your digestive system for a while though, and try to stick with simple foods that are easy to digest.
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 03 August 2004 - 06:10 PM
Though I can understand your feelings, I've been dealing with my problems for about 10 years now. Least I've hopefully found the cause, just need to get better now!
And great point about the biopsies! Thanks.
gf4life -> It was pointed out to me that the Rice Dream drink isn't gluten free (oops there!). Though seems at least like the "icecream" is. So maybe there was dairy in their non-dairy product.. grrr, that should be illegal!
Pretty sure I'm okay with Soy. I have a Soy Margarine I use, and haven't noticed any problems like I had. Though I'm still wondering if maybe it was the yeast, that's possible right? Because looking at the products I eat, that's the only one that has had yeast in it. Though yeast is naturally in the body too (I believe).. so be kinda odd to be intolerant of it.
Though I do think I have an allergy or something to nuts, so have been avioding eating them, but have been eating products that might have trace amounts. Dumb?
And thanks, my doctor seems to make it sound like I should be feeling better now. So that doesn't help, lol. =)
Posted 19 August 2004 - 04:41 PM
I've been really careful what I give her, cook all our meals gluten-free for the whole family. Today she finally had a normal bm and then about 1/2 hour later she had diarrhea! I'm so frustrated not knowing why.
I'm not giving her any milk products, not even her Wishbone Ranch Dressing which she loves, no ice cream, cheese, etc.
I'm reading that it gets better and I hope it does. I'm not one to give us but this is really really difficult.
Posted 19 August 2004 - 05:56 PM
Success is never final and failure never fatal. It's courage that counts -George Tilton
Posted 19 August 2004 - 07:05 PM
Does he need to aviod Dairy? The Vanilla swirl isn't dairy free, even though they claim it. The drinks though, aren't gluten-free.
He had some Rice Dream Vanilla swirl
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