This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity
You really need to remain on a gluten diet until that GI appointment. A biopsy requires consuming gluten for four weeks daily (8 to 12 for the blood test). I would hate for you to get negative biopsies and remain in diagnostic limboland.
You need to do some more research. After all, you are your best health advocate! This link to the University of Chicago can help:
By the way, it took me two years to heal. That seems to be pretty common around here. My anemia resolved within a few months, but all the other little symptoms took time!
I am so sorry that you are in a situation living with a roommate who is not considerate! Yes, you could be getting glutened. Can you see your GI and get another celiac test to see if gluten is actually your problem? When I was glutened on 7/7/2015, 30 days later, my celiac antibodies were as high as they had been when I was first diagnosed. Everything, even safe food, hurt to digest. My GI thought I might have SIBO, but it was simply gluten! It took two months to feel better and another month to get back dairy. Yes, I became lactose intolerant again! That was a really a bummer! I also picked up a new illness (rashes, hives and intestinal pain). So that initial glutening and probably another few while on vacation, Set off a celiac autoimmune response and triggered a new illness! I have no clue (but a few suspects) as to what glutened me to this day! (I am not even going to test my theories either!
I hope you can manage for another six months! Good luck and feel better soon!
These are the celiac tests. The catch is for the blood tests you have to be consuming gluten daily for 8 to 12 weeks. That is pretty awful, but that is the way it is. 😫
-Tissue Transglutaminase (tTG) IgA and (tTG) IgG
-Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG
-total serum IgA and IgG (control test)
-AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests
-endoscopic biopsy - make sure at least 6 samples are taken
VERY IMPORTANT: Keep eating gluten daily until ALL testing is complete or the tests can be inaccurate.
(Source: NVSMOM -- 😊)
Let us know how it goes!
Welcome! It is a shame that your chiropracter ordered a gene test, but failed to do a celiac blood panel which would be more definitive. Unfortunately, you need to be consuming gluten for those blood tests to be valid (8 to 12 weeks). About 30% of the population carries the celiac gene. This test most often helps to exclude celiac disease and not to diagnose it.
Your choices are to consume gluten for a month for a biopsy or declare yourself gluten intolerant and continue on with a gluten free diet. The second option is possible. My hubby went gluten free per the poor advice of two medical doctors. Gluten makes him sick. Does he have celiac disease? We will never know. He will tell you that I have had it easier with my diagnosis in terms of medical and family support. It made it easier for my child to get and to continue to get tested too.
Only you can know what is best for you and your family. I strongly recommend more research. You are your best health advocate.
Take care. ☺️