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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Getting Started On Gf Diet
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5 posts in this topic

I have recently been diagnosed with Celiac Disease. I tried to do the diet and lasted only one month...got off of it and just can't make myself get back on. My only symptoms are anemia and bloating....just thoroughly depressed at the thought of having to do this the rest of my life. Does anyone have any suggestions to help me get back on track, change my thinking, perk up my sorry attitude? Even when I was trying, I found I had inadvertently eaten gluten....it's in EVERYTHING! (or so it seems). I don't mean to be so negative...but I am so very depressed about this. Any advice?

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Please re-consider your thoughts on the gluten-free diet.

I have had diarrhea, gas, bloating, anemia, hypothyroidism, for years now. I was first diagnosed with celiac in my early 20's (I am now 41). After a year on the diet, with no change, the dr changed his diagnosis to Crohn's. The symptoms have never gone away..... I have been living half my life with this. Finally, 1 1/2 years ago, the blood test and biopsy confirmed, indeed it was Celiac Disease. But to this day, I still have not gotten rid of the symptoms, after 1 1/2 years on the diet. The dr. at my last visit brought up the possibility of "Refractory Celiac Disease". This terrified me. It scared me enough to do much more research than I had previously done. I have since learned that three things I continued to have had gluten in them -- also, I was sharing the same toaster as the rest of my family, utensils, pots, pans, etc. etc., indicating strong liklihood of cross-contamination. So now I am looking at it as though there is still a chance that I was continuing to be contaminated, and I am starting from scratch again. Of course, the alternative is accepting that it is refractory, and if you do any research on this, the prognosis is not good. That should be enough to scare you back into the gluten-free diet. It really is difficult, I admit that. I am a working mother, four young children, I am the only one celiac. Life gets crazy and hectic sometimes, and the possibility of slips are highly likely..... but just giving up and not even bothering is just going to cause you much more difficulty down the road.

Hugs to you, and I hope you look up refractory and learn what this disease can do to you.....

Karen

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The diet isn't bad - once you get used to it. You've learned to cook WITH gluten for years and years, and if you rely on packaged products, learning to cook without it will certainly take longer than a few weeks. It's breaking a habit - and with all the tastiness in the gluten-filled products, it's a tough habit to break! :-)

Sticking with whole, unprocessed foods, and doing your own cooking makes it easier (not to mention healthier), and - depending on your cooking skills, which improve over time anyway - doesn't have to take much more time.

Don't forget that being depressed, and any tiredness that you may feel from the anemia, can also be connected to celiac, and sticking on the gluten-free diet for a while may help those symptoms as well. I know it's hard starting off... It looks like the whole world gets closed off to you, but with an effort, you start to realize how many things there are out there that you really can have. And there are some things you might never have tried before going gluten-free that you'll become aware of. (For me, it was rice cakes, millet (toasted, yum!), and quinoa.)

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I was also very depressed when I got my diagnosis. I wasn't super sick- very minor symptoms. I was diagnosed by a dermatologist, not a GI doctor. But my dermatologist told me the gluten wasn't only causing annoying blisters to my elbows, but destroying my intestine in the process! It is a very difficult lifestyle change, but it is necessary for your health. If you keep visiting this site, you'll discover you're not alone. It takes hard work, a lot of research, and understanding from others. Good Luck!!!!

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Dear dmckeithen,

Please don't get off this diet! When I first started on this diet I was depressed,

frustated, confused, and mad at the world and everyone in it. Then I researched,

and found out what could happen if I didn't stay on it. I have seen too many

people with cancer, as a nurse, and I said to myself, I can do this, all i have

to do is learn this diet, which I have, thanks to this board, and other research.

I started to keep a journal, kept foods very simple. If I had an accident then

I could trace it back to find the offender. I learned that I also could not tolerate

dairy or tomatoes. I ate mostly chicken, mashed potatoes, rice, applesauce,

bananas, herb tea. For breakfast I usually have herbal tea, banana, scrambled egg

whites, or Van's Waffles. I bought a few gluten-free crackers with Progresso chicken

and wild rice soup, peanut butter and crackers, steamed rice with chicken

and celery and green beans. In the evening my husband usually grills a

steak, pork chops or chicken and we have baked potatoes. At night we

have strawberries, blueberries, with soy milk and my husband will have

Cool Whip. What I am trying to say is keep it simple. I have been able tonight

to have a delicious spaghetti dinner with meatballs and i didn't get sick.

It took me 6mos to get here but I did it and I'm glad I did...and you can too!

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    • Week late aftershock!?
      I had a similar problem, I was glutened after a meal out at the beginning of April and am still experiencing problems, obviously not as bad now, but bad enough.  I have also become intolerant to  xanthan gum since, which cuts down the foods I can eat even more. I'm already intolerant to dairy, soya, and a whole lot of other stuff.  Cyclinglady is right about the auto-immune disorders, and I've noticed I have similar problems to her.  I too, eat easy to digest foods until the glutening symptoms pass. The sinus infection might also be a reaction to the glutening, it effects people in different ways.
    • celiac disease is psychosomatic
      Thanks, I'll check out the information in the link. Do you remember how long you were on a gluten-free diet before your vertigo disappeared? I have been on the diet for 2 years, but I might be glutened from time to time since I am not an expert food label reader. My dizziness still persists.
    • celiac disease is psychosomatic
      Thank you, Arlene, for making tea come out my nose!  I should have known not to read your post while drinking......
    • celiac disease is psychosomatic
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    • Can treatment for Giardia reverse active Celiac
      SugarCube, I saw your other posting today.  I can not believe that I missed your original posting!  Maybe I was doing something super fun that week (oh, my parents were visiting!).   Your celiac blood panel was positive and you had intestinal damage that was caused by both celiac disease and Giardia?  After treating the Giardia, your CD resolved or went into remission?  Are you consuming a diet containing gluten still?  Have you had a follow-up biopsy?   I read your link to the study, but that feature just one patient (a child).  Have you found any other larger studies?  Inquiring minds want to know!       
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