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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Daughter Has Acetone Breath
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9 posts in this topic

This past weekend, my 8 year old daughter was complaining that she was always thirsty. Then on Tuesday, my husband noticed she had acetone breath. She has had it before, last January, and they did the blood sugar test in the pediatrician's office and it was fine. They said her bad breath could be from not brushing her teeth properly. I don't really buy that but it did go away until now. She had just brushed her teeth when my husband noticed it. Because of the increased thirst and the acetone breath, I have her scheduled for the blood test again on Monday, when her doctor gets back from vacation.

Are there any other causes of acetone breath that aren't related to diabetes? Even if her blood sugar is ok, could this be a sign she is at risk of diabetes?

I'm already expecting the doctor to think I'm just an overzealous mom. I did tell her the girls are on a gluten-free/CF diet due to Enterolab and she didn't seem overly interested one way or the other, so maybe there is hope she will be ok with this.

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I don't know about acetone breath, but I notice my kids get very bad breath even right after they've brushed if they have loose teeth, even slightly loose, it's like you can smell the root rotting away.

I'd still have her checked out to be sure, but it's not unusual for a kid to have bad breath.

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This is an excellent link that discusses why a non-diabetic child may have acetone breath.

http://www.childrenwithdiabetes.com/dteam/...10/d_0d_bc8.htm

a bit from that link:

My six year old adopted son has had acetone breath consistently for several weeks. I've tested his urine with the strips for glucose and ketones twice, and they are both negative. He has had this previously only when he was slightly dehydrated from bouts of nausea and vomiting. He is otherwise perfectly healthy and active and has no symptoms of diabetes. We have a dog with diabetes which is why I am familiar with the signs and the breath odor and have the urine strips. Are there other causes of acetone breath in an otherwise normal six year old? In view of the negative strips should I still have his blood glucose tested?

Answer:

Not everyone can smell acetone, but if you can, the most sensitive vehicle is the breath which may explain why urine testing has been negative. Ketosis in children can occur when the body is unable to get sufficient basal energy needs from the metabolism of carbohydrate and resorts to the breakdown of fat stores with the production of ketones. This can occur because of diabetes, but, as you have noticed, this is most likely to occur when appetite is diminished by intercurrent illness. The same can happen if energy consumption is increased and a child is too busy to eat sufficiently.

I think it very unlikely that what you describe has anything to do with diabetes, but if you have a diabetic dog and the means of measuring blood sugars you might test your son after a period of energetic activity to see if it is low because the phenomenon I have described is called ketotic hypoglycemia.

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Thanks. I'm glad to know there are other causes. I think I will get some of those test strips so I can test her when it happens.

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My kids get Acetone breath once in a while. I actually posted about this on this board before. My DD usually only has it when she is sick (and not eating much), but my DS has it a lot more often. I just found out that both of them are gluten intolerant. I wonder if my DS was getting acetone breath because he wasn't absorbing enough nutrients (he is also very skinny). I was also thinking about testing him with strips when I smell his breath like that. Diabetes (both type 1 and 2) run on DH's side of the family. I know children who have diabetes usually get sick really fast, but I still can't help but worry a little. I sure he is fine, but I still worry.

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any person, child or adult that has acetone breath as result of diabetic ketoacidosis is very sick and would be diagnosed quickly - becasue the symptoms would have you in the ER. Vomiting, stomach pain, pale, rapid repsiration, very sluggish, very thirsty / peeing alot and the synptoms would not improve or go away and then come back.

There are other reasons for acetone on the breath (as mentioned in previuous post). Try not to worry. If the child is wanting to eat, chattering away, and interested in things going on around them, picking fights with siblings - then it is not diabetes.

My son was diagnosed with diabetes at age 9 and he wasnt even ketoacidotic yet. The peeing/drinking fatigue precedes the acidosis stage. Even without acetone breath it was clear that something was terribly wrong.

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My daughter had that off and on for 20 yrs.  We finally went to a gastroenterologist who did a hydrogen breath test and then tested her for H. Pylori bacteria which came back positive.  She was put on antibiotics and then heavy doses of acidopholis for years.  When we finally found out she had Celiac and she went gluten free, it went away completely.   It's is such a social problem for someone at any age. Hope this helps!

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My daughter had that off and on for 20 yrs.  We finally went to a gastroenterologist who did a hydrogen breath test and then tested her for H. Pylori bacteria which came back positive.  She was put on antibiotics and then heavy doses of acidopholis for years.  When we finally found out she had Celiac and she went gluten free, it went away completely.   It's is such a social problem for someone at any age. Hope this helps!

 

 

Just an FYI - you are responding to a post from 2006.  The poster hasn't been on since 2008

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My daughter had that off and on for 20 yrs.  We finally went to a gastroenterologist who did a hydrogen breath test and then tested her for H. Pylori bacteria which came back positive.  She was put on antibiotics and then heavy doses of acidopholis for years.  When we finally found out she had Celiac and she went gluten free, it went away completely.   It's is such a social problem for someone at any age. Hope this helps!

 

Hi Kim,

 

If the h. pylori does come back someday, you can try some natural treatments for it.  DGL and mastic gum are two natural treatments that help.

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