Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

For Those With Constipation...
0

3 posts in this topic

The reason I am asking (obviously not for myself, I would celebrate if I ever became constipated, after years of diarrhea), but for my sister. My sister has also had years of intestinal problems, but she tends to be constipated quite often. She is also exhibiting other symptoms that relate to celiac. I have tried to convince her to go get tested, but she thinks that it is only diarrhea, and not constipation, that celiacs have. She is also starting to believe she has fybromyalgia (sp?), and I honestly believe she has celiac.

Also, she is married to a Greek, and of course, they are huge bread eaters.... I would like to convince her to go get tested, any suggestions how to show her this is a possibility?

Thanks!

Karen

0

Share this post


Link to post
Share on other sites


Ads by Google:

Take a look around the celiac.com site for the articles listing symptoms - the newer ones include constipation. Also, try searching pubmed.com for journal articles discussing celiac such as this one, and this one, and also this one (which is titled "Constipation can be a sign of coeliac disease", but the text isn't available online and you might have to find the journal at a local medical scool), and definitely this one (which specifically sites that 15% of celiacs have constipation).

I'm one of those who got the constipation end of the spectrum.

0

Share this post


Link to post
Share on other sites

Hey Karen: You could show your sister this post about MY celiac disease symptoms which included mostly constipation but rarely diarrhea:

I had MANY celiac symptoms from the time I was about 6 years old: bloated stomach, frequent bouts of 'stomach flu' when I would wake up in the middle of the night throwing up (but nobody else in the house caught the 'flu'), a chronic rash that could have been DH, steatorrhea (floating, mucous covered stools) and hard, infrequent stools (constipation?). My mother focussed on the symptoms and took me to a doctor for a weight control diet for my protuding tummy (ignoring my skinny arms and legs), put ointment on my rash daily and gave me laxatives and frequent enemas. I 'outgrew' the rash, but kept the bloated tummy and constipation throughout childhood and added anemia once I started menstruating. I was the shortest person in our family. I later had a year of amenorrhea. The dermatitis returned in my early 20s as well as more anemia. I lost more weight but never could predict when my stomach would get bloated and gassy, so I felt 'fat'. In my 20s I took laxatives just to stay 'regular'. In my 30s I ate more 'fiber' for regularity and stopped laxatives, but my periods disappeared for another 10 years. (I never had any pregnancies.) In my 40s I started taking extra magnesium for constipation, but experienced more cramping with the bloating and gas. I was diagnosed with gastritis and acid reflux and prescribed antiacids (which contained gluten) and Zantac. I also was later diagnosed with the 'constipation' form of Irritable Bowel syndrome and told to eat more high fiber (wheat bran) cereal. <_< Despite magnesium, lots of fruits and vegies, daily wheat bran cereal and milk the constipation became more severe and unpredictable. I developed painful hemorrhoids after years of constipation and needed surgery to remove those 5 years ago. Along with bloating, cramps and lotsa gas I began to occasionally experience what felt like bits of broken glass passing through my intestines with more severe constipation (about once a month). When I saw a naturopath about my symptoms, he wondered about celiac, but we dismissed that because I was always CONSTIPATED, but rarely had diarrhea. A year later, after a frightening experience with an impacted stool, I saw a newspaper article about celiac disease which included as symptoms cramping abdominal pain, gas, bloating and CONSTIPATION. I called the wife of a celiac friend about the the possibility that my symptoms were celiac disease related and started avoiding gluten the next day. After 2 gluten-free months I did the Enterolab tests which confirmed I had gluten AND casein sensitivity and the gene for celiac disease. Removing gluten helped to resolve the chronic constipation, but avoiding casein helped even more to become 'regular'. However, every gluten or casein 'slip' brings back the cramping/bloating/gas symptoms and then a few more days of constipation. I have read that the classic celiac symptoms of diarrhea, fatigue and weight loss only describes 10% of celiacs. Many more have bloating, gas and cramping pain. Others ALSO have CONSTIPATION. <_<

Tell your sister to get tested ASAP. Chronic constipation can cause hemorrhoids which requires a painful surgery and recovery. Undiagnosed celiac can lead to a whole host of other autoimmune diseases (which may include fibromyalgia) as well as intestinal cancer. She won't have to give up breads, pastas or pastries. There are MANY great gluten-free substitutes for all those gluten sources. I wish I would have heard that CONSTIPATION is a celiac disease symptom years ago and not struggled for sooo many years with undiagnosed celiac disease. :(

BURDEE

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,092
    • Total Posts
      920,314
  • Topics

  • Posts

    • WOW.  That looks eerily familiar.  Last December the temporary provider here at my local (rural) clinic gave me doxycycline to experiment with, but it was a mere ten milligrams.  Lol, no wonder it didn't help!  I'm glad you're feeling better.
    • I got cross contaminated some time ago & the rash came back pretty badly. I've attached a photo taken on June 11th of my back. It was also in my scalp, around my neck, on my front, shoulders, inner wrists and more.   Tonight I am not itching at all! I haven't itched all day long!!!! I can't take Dapsone because I'm allergic to sulfa drugs & Dapsone is a sulfa drug. Obviously that means I also can't take any of the other sulfa drugs that are used to treat dh after Dapsone is not an option. After those comes tetracycline. I really needed some relief! I began researching the dosage & particulars on tetracycline for dh. Extensive & exhaustive research did not pan out. The best I could find was treating Bullous phemphigoid. That said something like 500mg of tetracycline 4 times per day and about an equal amount of niacinimide. I really didn't want to take that much medication and in such strong doses. So my doctor (my PC doc) & I began experimenting. We tried Doxycycline 100mg twice a day. It seemed to be helping some but it just wasn't enough. Then we upped it to 200mg Doxycycline twice per day. It has taken about 5 days of that & I sit here not itching all day for the first time in a long, long time! This may not work for everyone. I did want to post it though as it is, at present, working for me. I am not thrilled at taking it but I have toughed this rash out before for years with no meds and I just couldn't do it again.
    • I laughed out loud at the 'little notebook' comment!😂 It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never eat in a restaurant again.  But the notebook comment is spot on.  Hopefully within the next 10 years restaurants will evolve enough to offer us a menu that clearly lists the delicious and extensive offerings that they have lovingly prepared just for us...and not just an ingredient list with nutritional values that take longer to read than War and Peace.   I am grateful that there are places to go that at least make the effort.  Who knows?  Eventually there may be restaurants which will have to offer menus with GLUTEN options available!
    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,123
    • Most Online
      1,763

    Newest Member
    ForeverYoung&GlutenFree
    Joined