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Blood Test Results

HeatherR

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HeatherR Newbie
HeatherR
Posted

Well, I talked to my primary doctor today, who filled out the lab work for me at my son's pediatrician's request. But he doesn't know what it means!!!

He said I have one of the genes: HLADQ2?

He is sending the lab work to my son's GI, so I will get more information on Oct. 5. I've been staying on gluten until I know whether I have to have a biopsy. Will a full celiac panel show if I am celiac, or are there more tests besides the biopsy?

Just curious as I'm having a hysterectomy soon, and don't know which to do first!

Thanks,

HeatherR

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AndreaB Contributor
AndreaB
Posted

Heather,

I haven't been through this, but from what I've read the full celiac blood panel should tell you (if the numbers are high enough in your blood) whether you have celiac or not. The biopsy can rule it in, but can't rule it out as they could miss a spot that is damaged or you may not have much damage yet.

DQ2 is a celiac gene.

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ravenwoodglass Mentor
ravenwoodglass
Posted
Well, I talked to my primary doctor today, who filled out the lab work for me at my son's pediatrician's request. But he doesn't know what it means!!!

He said I have one of the genes: HLADQ2?

He is sending the lab work to my son's GI, so I will get more information on Oct. 5. I've been staying on gluten until I know whether I have to have a biopsy. Will a full celiac panel show if I am celiac, or are there more tests besides the biopsy?

Just curious as I'm having a hysterectomy soon, and don't know which to do first!

Thanks,

HeatherR

There can be some false negatives with both the blood test and the biopsy. Have you thought about using Enterolab?

In my opinion you should find out about whether you need to be gluten-free before the other surgery if you can. If you do need to be gluten-free and start following the diet it will be helpful to you while you are going through the healing process from the hysterectomy. Additionally many of us find that a stress to the body like surgery or an illness can make our celiac symptoms much worse. This could make for a harder recovery. If at all possible I would try to address the gluten issue presurgery.

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carynanne Rookie
carynanne
Posted
Just curious as I'm having a hysterectomy soon, and don't know which to do first!

Thanks,

HeatherR

Why are you having a hysterectomy?

Caryn

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HeatherR Newbie
HeatherR
  • Author
Posted

Caryn,

I have fibroid tumors and an enlarged uterus. Also some pain that gets pretty fierce at times.

HeatherR

Ravenwoodglass,

I have many of the same symptoms as you wrote about yourself. I was curious about the nerve damage, whether it stays or not. I am on year 13 of misdiagnosis, and am concerned that much of my problems will stay.

When you say residual nerve damage, how much do you consider "residual"?

Thanks,

HeatherR

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    • Bayb
      Trying to read my lab results

      By Bayb · Posted

      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      Constant low back, abdominal and pelvic pain!

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      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
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      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
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      Why?

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    • mishyj
      Why?

      By mishyj · Posted

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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