Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

The Funny Pages - Tickle Me Elbow - The Original
0

51,027 posts in this topic



Wow, a great video! And what a terrific shopping venue for you industrious, creative, admirable New Zealanders.... . ...makes me wanna get myself down there even more. :)

...But maybe after all those aftershocks... . . . . . :unsure:.. . . . .. .man, they've been rattling youse guys for a long time!...

0

Share this post


Link to post
Share on other sites

Was that you modeling the undies, Shroomie? :P

Well, I do have an exhibitionistic side but didn't know you would recognize me - not too bad for someone of my advanced years, what??? :rolleyes:

0

Share this post


Link to post
Share on other sites

...But maybe after all those aftershocks... . . . . . :unsure:.. . . . .. .man, they've been rattling youse guys for a long time!...

Only nine last week, and they were all llittle tiddlers - if they were fish we would have thrown them back :D

0

Share this post


Link to post
Share on other sites

I started to write a post and it just didn't fit the topic. So I sent y'all a very depressing email :rolleyes:

xoxoxoxo

0

Share this post


Link to post
Share on other sites

I started to write a post and it just didn't fit the topic. So I sent y'all a very depressing email :rolleyes:

xoxoxoxo

I'm sorry, whatever is wrong. I'll send good thoughts your way. I noticed you haven't been around much lately.

0

Share this post


Link to post
Share on other sites

I'm sorry, whatever is wrong. I'll send good thoughts your way. I noticed you haven't been around much lately.

Did you get the email I sent a few weeks ago?

0

Share this post


Link to post
Share on other sites

Did you get the email I sent a few weeks ago?

No.

0

Share this post


Link to post
Share on other sites

Did you get the email I sent a few weeks ago?

Crap! I just looked and you've disappeared from my contact list! I'll figure it out and send you both emails.

0

Share this post


Link to post
Share on other sites

Crap! I just looked and you've disappeared from my contact list! I'll figure it out and send you both emails.

I PMed you.

0

Share this post


Link to post
Share on other sites

Lots to catch up on. . . ...... ..great to see you here, R.... . .. ..:wub::wub:

0

Share this post


Link to post
Share on other sites

Rach..there are brighter days ahead ;) xxxooo

1

Share this post


Link to post
Share on other sites

Rach..there are brighter days ahead ;) xxxooo

I surely hope so!! ;)

1

Share this post


Link to post
Share on other sites

Checkin in again. I'm tempted to start reading back....but I KNOW better than to do that.

Update about me: Many of my Celiac symptoms refuse to disappear. I'm ready to fire the NPA that I'm seeing. The one I had and loved has moved on. This one apparently feels I'm in need of "counseling", and that if I take drugs to help me sleep I'll feel, oh so much better, and that I MUST be cheating on my diet (does she think I WANT to be deathly ill again????) Finally, I went back to the gastroenterologist that had diagnosed Celiac for me (4 years ago now), had a consult and colonoscopy. I have microscopic colitis....which explains a lot! I also went to a second rhuematologist (the first one took a blood test, declared that I did NOT have arthritis, threw up her hands and said there was nothting that she could do for me.....ehhh!). THIS one spent more than an hour with me....sent me for xrays, and lo and behold I have degenerative arthritis, calcium deposits and bone spurs. Her big concern is that the (oh, brain-fart! I can't think of what they're called)...where the nerves pass through the spine......have narrowed and are causing a lot of pinching of nerves. Explains the pain, the neuropathy....so much. I'm currently waiting for my next appts with both doctors for where to go from here. Nsaids that might help with arthritis will cause trouble with the colitis.

Anyway...thanks for giving me a place to whine and cry. I'm still working, though on many, many days I don't know if I can get through a day. Perhaps now I can address some of this......

Thanks most of all for being right here in my computer when I need you, and for needing me, too.

0

Share this post


Link to post
Share on other sites

Happy to be trapped in your computer, waiting to offer a hug or a shoulder, as needed. :)

Fire the NPA, and when you do it, drop a copy of your new diagnoses on her desk and tell her she would have eventually killed you if you had listened to her.

My mom has spinal stenosis, and I fear it for myself, eventually. Please pass on anything you learn.

0

Share this post


Link to post
Share on other sites

Checkin in again. I'm tempted to start reading back....but I KNOW better than to do that.

Update about me: Many of my Celiac symptoms refuse to disappear. I'm ready to fire the NPA that I'm seeing. The one I had and loved has moved on. This one apparently feels I'm in need of "counseling", and that if I take drugs to help me sleep I'll feel, oh so much better, and that I MUST be cheating on my diet (does she think I WANT to be deathly ill again????) Finally, I went back to the gastroenterologist that had diagnosed Celiac for me (4 years ago now), had a consult and colonoscopy. I have microscopic colitis....which explains a lot! I also went to a second rhuematologist (the first one took a blood test, declared that I did NOT have arthritis, threw up her hands and said there was nothting that she could do for me.....ehhh!). THIS one spent more than an hour with me....sent me for xrays, and lo and behold I have degenerative arthritis, calcium deposits and bone spurs. Her big concern is that the (oh, brain-fart! I can't think of what they're called)...where the nerves pass through the spine......have narrowed and are causing a lot of pinching of nerves. Explains the pain, the neuropathy....so much. I'm currently waiting for my next appts with both doctors for where to go from here. Nsaids that might help with arthritis will cause trouble with the colitis.

Anyway...thanks for giving me a place to whine and cry. I'm still working, though on many, many days I don't know if I can get through a day. Perhaps now I can address some of this......

Thanks most of all for being right here in my computer when I need you, and for needing me, too.

Did you tell the NPA that the GI & the Rheum are in need of meds, too? :D

0

Share this post


Link to post
Share on other sites

HiYa T,

Good to see you back. Glad your getting some answers and hope you will soon get some relief . . . might I make a suggestion?

...thanks for giving me a place to whine and ...

Yeah . . . wine!! . . . wine anytime, anyplace!! . . . I know some people may disagree with me, but wining is quite theraputic!

(hic)

0

Share this post


Link to post
Share on other sites

Yeah . . . wine!! . . . wine anytime, anyplace!! . . . I know some people may disagree with me, but wining is quite theraputic!

(hic)

Well shoot! I've been trying, but it's not working for me :huh: Perhaps I should just switch to the wodka... ;)

0

Share this post


Link to post
Share on other sites

Well shoot! I've been trying, but it's not working for me :huh: Perhaps I should just switch to the wodka... ;)

Yeah, but you can't wodka for as long as you can wine :blink:

0

Share this post


Link to post
Share on other sites

Are you sure you're wining enough?

If you're gonna switch to wodka, throw a little OJ in there with it . . . you know . . . to make it healthy.

0

Share this post


Link to post
Share on other sites

Update about me:

My goodness! The psillies are just falling apart methinks :huh:

Good to see you T!.......with or without the whine wine. You're always welcomed here

0

Share this post


Link to post
Share on other sites

I'm trying to be as good as possible. Don't want anything to be used against me later. I have to go to a Christmas party with him tomorrow night (sooooooooooooo don't want to!) and I'm not allowing myself even 1 drop of alcohol. Unfortunately, alcohol is the only thing that makes those parties barable... :rolleyes:

0

Share this post


Link to post
Share on other sites

Checkin in again. I'm tempted to start reading back....but I KNOW better than to do that.

Update about me: Many of my Celiac symptoms refuse to disappear. I'm ready to fire the NPA that I'm seeing. The one I had and loved has moved on. This one apparently feels I'm in need of "counseling", and that if I take drugs to help me sleep I'll feel, oh so much better, and that I MUST be cheating on my diet (does she think I WANT to be deathly ill again????) Finally, I went back to the gastroenterologist that had diagnosed Celiac for me (4 years ago now), had a consult and colonoscopy. I have microscopic colitis....which explains a lot! I also went to a second rhuematologist (the first one took a blood test, declared that I did NOT have arthritis, threw up her hands and said there was nothting that she could do for me.....ehhh!). THIS one spent more than an hour with me....sent me for xrays, and lo and behold I have degenerative arthritis, calcium deposits and bone spurs. Her big concern is that the (oh, brain-fart! I can't think of what they're called)...where the nerves pass through the spine......have narrowed and are causing a lot of pinching of nerves. Explains the pain, the neuropathy....so much. I'm currently waiting for my next appts with both doctors for where to go from here. Nsaids that might help with arthritis will cause trouble with the colitis.

Anyway...thanks for giving me a place to whine and cry. I'm still working, though on many, many days I don't know if I can get through a day. Perhaps now I can address some of this......

Thanks most of all for being right here in my computer when I need you, and for needing me, too.

Hi,

I'm so sorry to hear that you have multiple medical problems and doctors who don't GET it. I have Lupus, Leukemia and Scoliosis in addition to my Celiac. The worst thing is when the doctor doesn't believe you. I've lucked out and I have a team of doctors who take care of me. I do have days that I feel like a hypochondriac but it always turns out that there's something wrong. Please know that we're here to support you no matter what you need.

Last night I was diagnosed with intussusception. "Intussusception is a serious disorder in which part of the intestine

0

Share this post


Link to post
Share on other sites
Guest
This topic is now closed to further replies.
0

  • Forum Statistics

    • Total Topics
      102,669
    • Total Posts
      914,345
  • Topics

  • Posts

    • Japan (Tokyo And Kyoto) Gluten Free
      i would  tend to agree with your mom and that comes from more than  30 years in and out of Japan. the  quality of the produce, meat and fish tends to be much better than the US  becsaue it gets to market  much faster and becasue there is a demand  for quality  above the demand for low price.  As it was pointed out, this  has  nothing to do with gluten.    There  are  alot of things you can  eat  in just about any restaurant  but there are things to learn like onigiri -- rice balls,  are seemingly innocent  but  90% of htem contain wheat starch.  most larger  grocery stores and  department store basements  you can  get  gluten free soy sauce. ---  most  chefs still assume that  soy sauce is soy  so never  take anyones  word for it when it comes to soy sauce. Of al the mixed  salads at  family mart, 7-11 and lawsons  only the gobo salad was  safe. good luck    
    • Gluten free backing food
      We are prepared for earthquakes at home, in our car and at work.  That means keeping tins of sardines, gluten-free cereal bars,  SPAM, nuts, chicken, fish, rice, etc. in our earthquake kits.  I have to go through it every three to four months to rotate out some of the foods (e.g. cereal bars).  I mark it in our planner.  It works for us.  Tasty?  Appetizing?  I bet my kid will be thankful to have food to eat in the event of an emergency.  
    • Blood sugar, hunger, celiac
      How much fat are you consuming?  Going lower carb and not adding in fats can make you hungry.   So, do you know that Type 1 diabetes is strongly linked to celiac disease?    I would ask your doctor for a GAD antibodies test to rule out type 1.   https://celiac.org/celiac-disease/celiac disease-and-diabetes/ http://www.celiac.nih.gov/CDandDiabetes.aspx   I basically eat to my meter and that translates to a Low Carb High Fat diet.  Keeps my doctor happy with my lab results! 
    • Lower left abdominal, left pelvic & other random pains
      VERY good point cyclinglady, very good point!!!!
    • Even gluten-free Foods Triggering Reaction After Initial Glutening?
      I was glutened in July.  Badly.  I have NO clue as to what got me.  I suspect two things 1) a gluten free store- brand, product that might have been mis-labeled and 2) a prescription generic medication (contacted the manufacturer to confirm a gluten-free status but got the old liability statement of no guarantees).  Both items were NEVER consumed by my gluten free hubby who acts as my canary.     I probably got glutened again by eating out while on vacation even though I only at at restaurants recommended by other celiacs.  The rest of the time I was at my parent's house and I have a dedicated kitchen there for us.   Who knows?  But I was sick with anxiety, tummy issues, vomiting, the works.  It was strange since anemia was my original symptom and I really did not have tummy issues at the time of my diagnosis.  So, celiac symptoms can evolve at least for me!  Six weeks after my first sign of a glutening, I was tested by my new GI because I was not getting well.  He thought I had SIBO or bile duct issues. I asked for celiac blood testing.    Turns out it was gluten all along!   During my glutening, I became lactose intolerant again, could only eat stewed foods because everything hurt to get through my digestive tract.   I was a basket case for three months.    Did I mention new problems resulting from my glutening?  Hives, itching, vomiting, passing out and tummy aches almost daily.  Anti-histamines helped.    My GP thinks I am her most "allergic" patient.  Except it was more like a histamine intolerance or a mast cell issue not allergies.   Who knows?  The hives eventually resolved as I healed from my glutening.    I refuse to test the two items that were suspect.    No way!    Three months later, I got dairy back.  Six months later I am eating gluten free anything....without any issues.  I also do not take any meds (except for Armour Thyroid) , supplements, eat out and I avoid even processed gluten-free items.  But, I feel great.     I suppose that I will eventually slip up and get glutened again.  But I am working hard not too.  I like feeling well.   So, really look to your diet.  I bet you just keep getting glutened.  Stick to whole foods, follow the FODMAP diet and wait.  Wait.  Wait.    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      59,686
    • Most Online
      1,763

    Newest Member
    Rene53
    Joined