Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Waah! It's Soy! :(
0

37 posts in this topic

OK, ever since going gluten-free, I've noticed my nose getting stuffy and my throat getting tight sometimes when I ate. I didn't know what was doing it, but it'd do it on even little things like Hershey's chocolate bars.

So tonight I did a test. I drank some egg nog (that was soy free) and about 2 hours later ate a KinniToo cookie. NOTHING happened when I drank the egg nog, but w/in about 5 minutes of eating the soy filled cookie my nose was stuffing up. WAAAAAAAAAH!

I thought gluten was in everything but SOY... that's nearly as pervasive as corn. I could cry. :(

Shalia - who is going to have her last chocolate bar and will start her soy free life tomorrow. :(

0

Share this post


Link to post
Share on other sites


Ads by Google:

That was my reaction when I had to stop eating soy :(:(. I had the same symptoms as you too. There are soy-free chocolate bars. If I remember correctly, I think Green and Blacks is okay. But can you have dairy? If so you still have tons and tons of options.

0

Share this post


Link to post
Share on other sites

Shalia,

I sympathize with you. I'm so sorry. Soy is awful for some of us!

Check out enjoy life foods chocolate chips. They are dairy, gluten, soy free, etc. They are delicious!!!!!! I can't tolerate them anymore because of other food intolerances but they are wonderful. I used to eat them like candy, and bake with it, and melt and put on fruit...etc.

Hope that helps. And welcome to the soy free world!

0

Share this post


Link to post
Share on other sites
That was my reaction when I had to stop eating soy :(:(. I had the same symptoms as you too. There are soy-free chocolate bars. If I remember correctly, I think Green and Blacks is okay. But can you have dairy? If so you still have tons and tons of options.

*so far* dairy is still OK. The egg nog caused no problems at all. And that was both egg and milk.

The cookies, however... :(

Thanks for the empathy, I appreciate it! I've never even seen Green & Blacks. Where do I find THAT?

0

Share this post


Link to post
Share on other sites

whole foods has a soy free chocolate bar you could look for that

0

Share this post


Link to post
Share on other sites




Shalia,

I sympathize with you. I'm so sorry. Soy is awful for some of us!

Check out enjoy life foods chocolate chips. They are dairy, gluten, soy free, etc. They are delicious!!!!!! I can't tolerate them anymore because of other food intolerances but they are wonderful. I used to eat them like candy, and bake with it, and melt and put on fruit...etc.

Hope that helps. And welcome to the soy free world!

I've heard good things about Enjoy Life. I'll give them a try. Thanks for the suggestion.

Thanks for welcoming me to the world. I'm just going to pout right now, though. :angry: (pretend that's a pout) I'll get over it soon enough. I did w/ gluten.

whole foods has a soy free chocolate bar you could look for that

Well, there's no whole foods in Utah, but there is a Wild Oats. Maybe they'll have something. Any idea what the chocolate bar is called?

0

Share this post


Link to post
Share on other sites

I am soy intolerant and LOVE Enjoy Life Chocolate Chips. I had to switch to those to avoid the soy lecithin.

0

Share this post


Link to post
Share on other sites
I am soy intolerant and LOVE Enjoy Life Chocolate Chips. I had to switch to those to avoid the soy lecithin.

That's three votes for them, zero against. I guess I'll give them a try! :)

It sure can't hurt.

I'd rather that than continue w/ my throat feeling closed up and feelign hard to breathe like I am now.

Shalia

0

Share this post


Link to post
Share on other sites
I'd rather that than continue w/ my throat feeling closed up and feelign hard to breathe like I am now.

Shalia

That sounds scary. I have an intolerance and don't have those reactions. I assume it would have caused damage to my intestines had I stayed on it. Of course, I haven't tried having it again, no interest.

0

Share this post


Link to post
Share on other sites
I am soy intolerant and LOVE Enjoy Life Chocolate Chips. I had to switch to those to avoid the soy lecithin.

Shalia - I've been off soy for 10 years. It's a hard one, but it's doable. Believe me, I'd rather be intolerant to soy than eggs! Eggs are the one food, even above gluten, that I'd like back.

Andrea - I'm curious to know if you react to soy lecithin. I was told that it was okay and I have never reacted to it as far as I know. The reason I'm asking is because I'm interested in doing a soy challenge - it would be nice to have soy sauce once in a while and not have to be quite so careful about everything. Maybe because I don't react to the lecithin I have a chance to reintroduce a small amount? I'll never eat much of it, because I don't think it's healthy.

0

Share this post


Link to post
Share on other sites
That sounds scary. I have an intolerance and don't have those reactions. I assume it would have caused damage to my intestines had I stayed on it. Of course, I haven't tried having it again, no interest.

Yep, my nose gets stuffed up and my throat gets swollen up and it feels hard to breathe. :( Ick.

I'm over mourning over gluten and that was only 2 months or so. I'll give soy time, and then I'm sure I'll be used to it. :)

0

Share this post


Link to post
Share on other sites
Andrea - I'm curious to know if you react to soy lecithin. I was told that it was okay and I have never reacted to it as far as I know. The reason I'm asking is because I'm interested in doing a soy challenge - it would be nice to have soy sauce once in a while and not have to be quite so careful about everything. Maybe because I don't react to the lecithin I have a chance to reintroduce a small amount? I'll never eat much of it, because I don't think it's healthy.

Liz,

I haven't tried it. I copied over an article I had saved that I found online. This is just a snippet from the article. I am not IgE allergic so it would be hard for me to know if it was causing problems with me. I went off soy in February and soy lecithin/soy sauce in May I think.

The Hidden Dangers of Soy Allergens

The huge rise in allergic reactions to soy is in line with the increasing use of soy products in processed foods during the 1990s, and should be regarded as a major public health concern.

Extracted from Nexus Magazine, Volume 11, Number 5 (August-September 2004)

PO Box 30, Mapleton Qld 4560 Australia. editor@nexusmagazine.com

Telephone: +61 (0)7 5442 9280; Fax: +61 (0)7 5442 9381

From our web page at: www.nexusmagazine.com

by Kaayla T. Daniel, PhD, CCN © 2004

From Chapter 23 of her book

The Whole Soy Story: The Dark Side of America's Favorite Health Food

(NewTrends Publishing, 2004)

Website: http://www.wholesoystory.com

Some of the most allergenic fractions appear to be the Kunitz and Bowman–Birk trypsin inhibitors. Food processors have tried in vain to deactivate these troublesome proteins completely without irreparably damaging the remainder of the soy protein (see chapter 12). Having failed to accomplish this, the soy industry has decided to promote these "antinutrients" as cancer preventers. To date, its proof remains slim, although cancer statistics might improve if enough people died from anaphylactic shock first.

Although extremely rare, death from allergic reaction to trypsin inhibitor has been a matter of public record since the New England Journal of Medicine carried a report in 1980.37, 38 The Kunitz trypsin inhibitor has been identified as one of three allergic components in soy lecithin—a soy product often considered hypoallergenic (i.e., it has diminished potential for causing an allergic reaction) because it is not supposed to include any soy protein, but invariably contains trace amounts.39

Soybean lectin—another antinutrient now promoted as a disease preventer—has also been identified as an allergen.40 Whenever there is a damaged intestinal lining or "leaky gut", soy lectins can easily pass into the bloodstream, triggering allergic reactions (see chapter 14). Indeed, this is very likely because both soy allergens and saponins (an antinutrient discussed in chapter 15) can damage the intestines.

Histamine toxicity can also resemble allergic reactions. In allergic persons, mast cells release histamine, causing a response that strongly resembles an allergic reaction to food. In cases of histamine toxicity, the histamine comes ready-made in the food. This is most often associated with reactions to cheese and fish, but soy sauce also contains high levels of histamine. Researchers who have calculated the histamine content of foods consumed at a typical oriental meal report that histamine intake may easily approach toxic levels.41

0

Share this post


Link to post
Share on other sites

Thanks for the article, Andrea. Useful and helpful to read something. :)

Shalia

0

Share this post


Link to post
Share on other sites

I don't mind not having soy as much as not having dairy.. but I guess each person has a different preference

and just a heads up though you probably either know or would notice on your own but soy is in many cans of tuna.. I was surprised by this (there's often an ingredient of vegetable broth in tuna which contains soy)

0

Share this post


Link to post
Share on other sites

Soy is hard, I know, but it does get easier once you know what to look for. I shout this out on a lot of threads, but yay!! Hellmann's has a great canola mayo!!

Btw, charlie, clark bent, I love your sports blog --didn't read a lot yet, but hey it is good stuff!!!

0

Share this post


Link to post
Share on other sites
Btw, charlie, clark bent, I love your sports blog --didn't read a lot yet, but hey it is good stuff!!!

thanks, I almost forgot about it :rolleyes: I haven't written anything on the blog for a month or so since I've been working on my novel again (or at least I'd like to pretend I am)... but I might try and get a column or two up now that football is a couple weeks into the season and I no longer have to watch the phillies once again come up short of the playoffs

0

Share this post


Link to post
Share on other sites

no soy for me either- in fact all legumes so i miss my chocolate and peanut butter but it gives me intense joint and muscle pain even in small amounts. NOT worth it. Enjoy Life rocks!!!!!!!!!!!!!!!!! i haven't found their chocolate chips yet but I snarf down their chocolate chip cookies whenever I get my hands on them. Also, Namaste makes great mixes (including brownie mix0 that are allergen free- no soy or gluten. I LOVE the blondie mix. Melts in your mouth!!!!!!!!!!!!!!!!!

0

Share this post


Link to post
Share on other sites

I am also off of all soy now. It makes me feel horrible! I can't do soybean oil in anything, even tortilla chips or soy lecithin. I do Hellman's Canola Oil. I have heard about Enjoy Life Chocolate Chips, I may need to give those a try. I also use Canola Oil to fry fries or chix nuggets in and olive oil to saute in. I can't use any margarines b/c I haven't found any that are soy free. I use butter, but need to remember to take Lactaid with it b/c I am lactose intolerant.

The hardest part is eating out. Gluten is hard enough to detect, let alone soy. I usually stick to restaurants that I know and that know me.

0

Share this post


Link to post
Share on other sites

I use grapeseed oil, I think the brand I've been buying is Napa Naturals or something like that. It's at Wild Oats. I like grapeseed oil because it can handle higher heat.

0

Share this post


Link to post
Share on other sites
I don't mind not having soy as much as not having dairy.. but I guess each person has a different preference

and just a heads up though you probably either know or would notice on your own but soy is in many cans of tuna.. I was surprised by this (there's often an ingredient of vegetable broth in tuna which contains soy)

Yeah, and we'd just bought tuna, too. Now I have 6 cans of useless tuna. :(

I need mayo and butter suggestions. :(

Thanks for the heads up!

Soy is hard, I know, but it does get easier once you know what to look for. I shout this out on a lot of threads, but yay!! Hellmann's has a great canola mayo!!

Btw, charlie, clark bent, I love your sports blog --didn't read a lot yet, but hey it is good stuff!!!

Great! Thanks for the heads up. :) I was wanting mayo!

I use grapeseed oil, I think the brand I've been buying is Napa Naturals or something like that. It's at Wild Oats. I like grapeseed oil because it can handle higher heat.

Cool, I have some grapeseed oil. I'll give that a try. :) Thanks!

0

Share this post


Link to post
Share on other sites

Shalia,

Feel free to pout. And even as you go on, you'll probably still pout now and then. But, you know this because you are gluten free. :)

Check out spectrum organics. I think they have a non soy based mayo. I think its canola based.

Laura

0

Share this post


Link to post
Share on other sites
Shalia,

Feel free to pout. And even as you go on, you'll probably still pout now and then. But, you know this because you are gluten free. :)

Check out spectrum organics. I think they have a non soy based mayo. I think its canola based.

Laura

Cool, thanks. :) I'll go look them up now.

I'll get over the poutyness if it makes me feel better. I'm good about that eventually. ;)

Shalia

0

Share this post


Link to post
Share on other sites

I'm right there with ya. But sometimes, you have to go through the "bad" feelings to get to a place of good feelings. (I say this as I am craving chocolate something awful, and am reacting to it.) Ugh.

Good luck with the mayo, etc.

0

Share this post


Link to post
Share on other sites
I'm right there with ya. But sometimes, you have to go through the "bad" feelings to get to a place of good feelings. (I say this as I am craving chocolate something awful, and am reacting to it.) Ugh.

Good luck with the mayo, etc.

Wow, just looked at your list. What ARE you eating? It'd be easier to list your "can" foods than your "can't"!!

0

Share this post


Link to post
Share on other sites

Shalia,

I use Spectrum Naturals Canola Mayo. It's pretty good.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,125
    • Total Posts
      919,501
  • Topics

  • Posts

    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,161
    • Most Online
      1,763

    Newest Member
    Jashan8534
    Joined