9 replies to this topic

[celiac3270]

I also feel the usual frustration of waiting for the day to happen, and I don't know what to do if the test turns out to be negative. Then I guess it's back to throwing up every meal, every day. I can't wait to hear my family then.

I'll stop now. There is no need for such profanity on the board, and this is a side of me even I don't like seeing.

We all need to vent sometimes...........and if the biopsy comes back negative, you can either ingest more gluten and try again, try enterolabs, or be satisfied with a personal diagnosis. I'm sorry you don't have a more supportive family to help you through this....that sucks that someone would complain to you about doctor bills as if it's your fault that you have the disease...and the lights---that just sounds cruel--he can't have cared that much about the $4. I have had an absolutely terrible day......(I'm trying to refrain from curses, but it's difficult)....I am so discouraged and dejected and I have never felt so hopeless with this celiac disease before. The dr. immediately dismissed my SIBO theory and pretty much thinks that I have to let this run it's course....and he thinks I should weigh much more...and he thinks I look like an 11 year-old cause I'm not as far along in puberty as other kids my age are....and he thinks that I should be careful not to blame everything on Celiac...and he thinks that my pediatrician is right that I might also have Cyclic Vomiting in addition to celiac disease......and my day has kinda sucked too.....though yours seemed much worse. When I was diagnosed I thought: good, 1-3 months of symptoms and I'll be fine. Then it was like: what the hell (quite a euphemism); why aren't I getting better.....then I was just starting to feel optimistic about this--thinking that I can just get this SIBO treated and I'm done......and now I'm told I'll have to just deal with symptoms and put on more weight -- I shoulda gained a hell of a lot more than 7 pounds in half a year.........I am so frustrated and dejected......I can't speak entirely freely for language purposes, but you get my point. Sorry your family doesn't understand -- although I still have issues w/ celiac disease and God knows what else, at least I can say that my family is trying to be as supportive as possible. Hope tomorrow is better.

-celiac3270

[Alexolua]

Think you can rant away here Jill, believe most of us have been there, done that, might have thrown a few things too, lol, oops.

Least you haven't had any doctors tell you it's in your head, you're fine, live with it, go see a shrink, have ya? Oh that's fun!

If the results do come back negative from the biopsies, well, you could always try Enterolab? Though that costs money, and may not be an option, from the sound of your family, unless you could pay for it yourself.

But if you are feeling better on the diet, then forgot everyone else, just keep sticking to it! =)

[celiac3270]

It wasn't that I was annoyed at the doctor or that he was wrong or anything....I just didn't hear what I wanted to....didn't hear that it was something that could be cured with a simple antibiotic or something. I, too, am much better now......and some of the things I said in my last post made it sound like the dr. was mean or something, which he wasn't; I was just frustrated that he didn't provide an easy solution.

Now I'm journalling everything I'm eating, trying to eat more, and if I can't gain more weight, he's going to give me some supplement that you put in a drink and it gives a lot of nutrients.......a good idea cause I'd love to gain about 12 pounds. He seemed to know a lot about celiac disease -- a ton more than I do, which is good, cause I can listen to him. Thank you for listening to my venting, though I did blow a lot of things WAY out of proportion.

-celiac3270

[Alexolua]

~wAvE WeT sAnD~

You're welcome! I ended up seeing a shrink maybe 3rd or 4th. I got first sent to a more surgeon type doctor who thought surgery would fix all my problems. Obviously, it didn't, and was certainly fun, lol.