Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Endoscopy Tomorrow
0

10 posts in this topic

My endoscopy is tomorrow, and my doctor's receptionist gave me the usual steps for the procedure. I hope I am not setting myself up for a disappointment, because from what everyone has told me, since I've been gluten-free for this amount of time, I will be. Sorry to sound so negative, but today has officially sucked and I am fed up with the people around me in my home and in my life who assume they have me pegged, but don't really understand. How nice it is to have a parent pay for an insurance plan because you're a college student, and then listen to them complain about the bill!!!! I love being blamed for causing a disease to which I have a genetic predisposition. It's been so entertaining to have my a**hole father (we never get along, because he thinks I don't understand him--apparently people with ADD can't understand adult conversations, and apparently my memory, to him, is so bad now that I could never possibly finish school). I had to pay for lights I left on!!! My father calculated the f******g kilowatt hour rate--apparently I owed him $4.28! Pay, pay, pay!! I'm sorry people have to pay, pay for me, pay for this, pay for that. I'm sorry that they're so stupid that they must think that I don't appreciate anything anyone does for me, because they're too angry to just look around!

I also feel the usual frustration of waiting for the day to happen, and I don't know what to do if the test turns out to be negative. Then I guess it's back to throwing up every meal, every day. I can't wait to hear my family then.

I'll stop now. There is no need for such profanity on the board, and this is a side of me even I don't like seeing.

I thank everyone on this board for looking out for each other.

0

Share this post


Link to post
Share on other sites


Ads by Google:
I also feel the usual frustration of waiting for the day to happen, and I don't know what to do if the test turns out to be negative. Then I guess it's back to throwing up every meal, every day. I can't wait to hear my family then.

I'll stop now. There is no need for such profanity on the board, and this is a side of me even I don't like seeing.

We all need to vent sometimes...........and if the biopsy comes back negative, you can either ingest more gluten and try again, try enterolabs, or be satisfied with a personal diagnosis. I'm sorry you don't have a more supportive family to help you through this....that sucks that someone would complain to you about doctor bills as if it's your fault that you have the disease...and the lights---that just sounds cruel--he can't have cared that much about the $4. I have had an absolutely terrible day......(I'm trying to refrain from curses, but it's difficult)....I am so discouraged and dejected and I have never felt so hopeless with this celiac disease before. The dr. immediately dismissed my SIBO theory and pretty much thinks that I have to let this run it's course....and he thinks I should weigh much more...and he thinks I look like an 11 year-old cause I'm not as far along in puberty as other kids my age are....and he thinks that I should be careful not to blame everything on Celiac...and he thinks that my pediatrician is right that I might also have Cyclic Vomiting in addition to celiac disease......and my day has kinda sucked too.....though yours seemed much worse. When I was diagnosed I thought: good, 1-3 months of symptoms and I'll be fine. Then it was like: what the hell (quite a euphemism); why aren't I getting better.....then I was just starting to feel optimistic about this--thinking that I can just get this SIBO treated and I'm done......and now I'm told I'll have to just deal with symptoms and put on more weight -- I shoulda gained a hell of a lot more than 7 pounds in half a year.........I am so frustrated and dejected......I can't speak entirely freely for language purposes, but you get my point. Sorry your family doesn't understand -- although I still have issues w/ celiac disease and God knows what else, at least I can say that my family is trying to be as supportive as possible. Hope tomorrow is better.

-celiac3270

0

Share this post


Link to post
Share on other sites

celiac3270--

Thank you very much for listening and replying.:) I've cooled off somewhat, and I think I'll just trust my GI's assistant--if they don't find anything, I'll take the next step--whatever that may be.

My father isn't actually a bad person--just very strict, and that's putting it lightly. Let's just say that my grandfather was a Marine. The lights thing actually happened a week ago--I just had to spit out a few angry things before I went crazy. He and I just don't understand each other, and sooner or later we have to address it.

Is the doctor who's disputing your SIBO the Celiac doctor that you've just begun to see? Maybe you can find medical documents showing its link to celiac disease--I'm not completely educated about it, but anything is still possible.

I see what you mean about looking younger than your biological age--I'm 21, but look at least 16. The good thing is, when we're older, and reach the "don't tell" ages, we'll look younger than 30, 40, 50, 60...you get the idea. :)

Hopefully we'll both find our answers and start feeling better

Thanks again, and good luck,

0

Share this post


Link to post
Share on other sites

Think you can rant away here Jill, believe most of us have been there, done that, might have thrown a few things too, lol, oops.

Least you haven't had any doctors tell you it's in your head, you're fine, live with it, go see a shrink, have ya? Oh that's fun!

If the results do come back negative from the biopsies, well, you could always try Enterolab? Though that costs money, and may not be an option, from the sound of your family, unless you could pay for it yourself.

But if you are feeling better on the diet, then forgot everyone else, just keep sticking to it! =)

0

Share this post


Link to post
Share on other sites

It wasn't that I was annoyed at the doctor or that he was wrong or anything....I just didn't hear what I wanted to....didn't hear that it was something that could be cured with a simple antibiotic or something. I, too, am much better now......and some of the things I said in my last post made it sound like the dr. was mean or something, which he wasn't; I was just frustrated that he didn't provide an easy solution.

Now I'm journalling everything I'm eating, trying to eat more, and if I can't gain more weight, he's going to give me some supplement that you put in a drink and it gives a lot of nutrients.......a good idea cause I'd love to gain about 12 pounds. He seemed to know a lot about celiac disease -- a ton more than I do, which is good, cause I can listen to him. Thank you for listening to my venting, though I did blow a lot of things WAY out of proportion.

-celiac3270

0

Share this post


Link to post
Share on other sites




It's ok to blow things out of proportion once in a while...I did the same thing.

0

Share this post


Link to post
Share on other sites

Alexolua:

A shrink was actually the first person I saw--he told me the same thing. Thanks for your reply!!!

:)

0

Share this post


Link to post
Share on other sites

Jill, so sorry that you are having to deal with all of this. If you are feeling better gluten-free, then stay that way. I know that if I ingest any gluten now, after being gluten-free since Halloween, I truly pay for it.

For me the pay off has been feeling so much better, I had my second EGD on Monday, and was a bit disappointed to know that I am "still showing inflammation consistent with Sprue." But at least now, there is no active bleeding, and the anemia has resolved itself after taking iron supplements for months.

Hope you are feeling better, and hope all went well for you.

I notice your doxie, I just got a mini in June and she is such a hoot.

Feel free to email me if you need to.

It DOES get better, and I have found that it has gotten easier.

Sharon

0

Share this post


Link to post
Share on other sites

~wAvE WeT sAnD~

You're welcome! I ended up seeing a shrink maybe 3rd or 4th. I got first sent to a more surgeon type doctor who thought surgery would fix all my problems. Obviously, it didn't, and was certainly fun, lol.

0

Share this post


Link to post
Share on other sites

Shar4,

Dachshunds are one of my favorite breeds of dogs!! Aren't they cute? :) I have a mini black and tan who looks just like my avatar! Her name is Tootsie Roll, and she's 11 yrs. old.

What color is your Wiener dog?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,676
    • Total Posts
      921,696
  • Topics

  • Posts

    • I doubt it. I would think that would be a questions for the company that make them.    But if smoking makes you feel bad....and you are able to quit for several weeks at a time....why go back to it?
    • Hi. I've noticed that after a break of smoking (2-3 weeks) I feel bad, when I begin to smoke again.  Maybe they contain some additives with gluten??
    • Thank you everyone! Good to know I am not alone with this. I am asking for a referral to a new cardio. Hopefully it will all go away the longer I am gluten-free. It started up in February/March after a gluten challenge and mostly vanished until July when I had a lot of shortness of breath. It absolutely was CRAZY just a few days after the glutening. I was gasping for breath and the beats were all over the place just walking through a parking garage and I was only mildy anemic at the time.   But it seems to "quiver" and do funny things for a bit still. I sort of theorized maybe it was inflammation in the heart because after this last glutening, my head felt like it was in a vice and my eyes would sting or get stabbing pain hurt (that is finally going away thankfully...knock on wood).  The head/eye pressure I learned also happens to my sibling who has celiac and his naturopath told him that sometimes the brain gets inflamed. Hopefully I can meet the new cardio soon and feel confident that he is taking me seriously. It is sort of difficult to feel confident in the opinion of a doctor that your ticker is ok when they are not really listening and end up making you cry. LOL. A friend of mine in the mental health field recently listened to my story of doc after doc and test after test and said that it was akin to the folk story of blind men describing an elephant. A group of blind men all feel one part of an elephant (tusk, tail, ear, tail) and then compare notes only to find they all disagree.  In some  versions they argue intensely. In other versions they have to collaborate and listen to each other in order to "describe" an elephant.    
    • Good afternoon! I am new to this board and fairly new to researching Celiac Disease, although I had a general idea what it was. My health has become a huge mystery to me, and it's one that I am desperate to solve. The biggest issue right now is horrible, life affecting fatigue. I have been dealing with it for several years now- as many as 5 to 6. It has gotten progressively worse, and nothing at all helps. Sleep apnea has been ruled out. Intestinal issues are something I have dealt with for almost two decades. I'm 45, but I've already had two colonoscopies as well as two endoscopies. My first endoscopy was as a child for persistent, severe stomach pain. My last colonoscopy and endoscopy was two years ago. The only thing that has come from those is an Irritable Bowel type condition and GERD, which is pretty bad. My bowel movements have always been crazy. They can be very normal and healthy to completely crazy. I've had periods of persistent diarrhea to occasional constipation, which is a fairly new thing within the last year. Last week, I went from having diarrhea that morning to hard, round balls of stool by that evening. My most common stools here lately, though, are not quite diarrhea, but more fluffy, large piles. Gas is an ongoing, daily issue for me. I have copious amounts of gas every day no matter what I eat or drink. Most of the gas in non-odorous but it can be very loud. I am currently on a total of 60 mg of Ritalin per day just to function. I often add energy pills, purchased from places such as GNC, because the Ritalin isn't working. Yesterday, I took both doses of Ritalin and two energy pills, and I passed out on the couch after work. I work from 7:30am to 3:30pm, and my work day is nothing too crazy. I try to keep very consistent sleep hours and could easily sleep to 1:00pm or longer if I don't have to get up for something. I sometimes have short periods of energy in the mornings, but that is usually over by noon. The quality of my life is greatly affected. I don't want to go anywhere or do anything because I am way too tired. I'm trying to keep up with my exercising, but that is also a struggle.  I have a history of clinical depression for practically all my adulthood, but it has been very well managed for the last four years. The fatigue is currently causing a great deal of depression, but it is very different from the clinical depression that I use to deal with. When I don't feel sleepy and tired, I don't feel depressed. When the fatigue sets in, I feel very irritable and sad. I realize that the stimulants can cause irritability, but I don't feel irritable or sad when I'm not feeling fatigued.  I've only recently began to explore that the fatigue and the intestinal issues could be related. I have always accepted that I have a sensitive, cooky digestive track. The increasing, unrelenting fatigue is what has lead me to exploring the possibility that everything could be related. I did have blood work last November. My doctor did not test for anything Celiac Disease specific, but she did do a Vitamin D, ferritin level and overall metabolic panel. All of that is normal. My thyroid level is also normal, and I do take thyroid hormone because I had half of my thyroid removed 11 years ago due to what turned out to be a benign thyroid tumor.  I just saw my doctor two weeks ago, and she increased the dosage of my Ritalin. That has not helped at all. She has never mentioned Celiac Disease to me before. I made an appointment for this Friday afternoon to talk about it, but I keep wondering if I'm even heading in a direction that makes sense. I decided to post here for some guidance. I'm sorry this has been so long. I'm not really into cutting something totally out of my diet just to see what happens. I also feel like that if I have something that is poisoning my system, I need a real clinical diagnosis of that. I feel like maybe I'm grasping at straws now and imagining a correlation that isn't there. I am not looking for a quick fix, but right now I have no idea what needs to be fixed. I am open to any information and/or suggestions. Thanks so much!   Jennifer
    • Celiac disease sufferers or those who embrace a life without gluten can check out Canada's Gluten-Free Market when it makes stops in London and ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,673
    • Most Online
      3,093

    Newest Member
    KAN
    Joined