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Help Confused
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Hi, My 5 year old daughter goes for her biopsy on january 29, 2004 both blood tests came back posative for celiac disease. Her symptoms are usually diarrhea and vomiting this month she has been doing better but I noticed her stool is almost white and it floats when I told the doctor this I thought I saw some concern on her face is this just another symptom of celiac?

Thanks,

Hillary

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Not sure about the symptoms. I would just keep an eye on it and if she is getting better on gluten-free diet not worry about it. If it persists, then explore it further.

Curious why the biopsy is necessary if blood tests are positive. Is she eating a gluten-free already?

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Hillary, oops, I already replied to you on the endoscopy report thread before I noticed this post, so see that thread for my input! I hope you have a good day!

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Thank you Sarah. No ronni hasnt started the diet yet in fact her doctor hasn't mentioned it to me she said we will discuss it after her biopsy what I have learned about the diet is through the message board. In regards to having a biopsy I thought it was standard procedure to have one after the blood tests. I just hope she'll be okay and Im concerned on the damage thats being done while we wait for the biopsy.

Hillary

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It's only 9 days away so I wouldn't worry about it too much, you could cut down on her intake of gluten but she really needs to be ingest gluten to have the biopsy come out right too.

We go in with our son tommorow for his endoscopy, he has not had blood tests yet.

As far as the stools go.. pale floating stools are a sign of malsorption and fat in the stools. If you want to bulk her up try giving her pediasure if she can keep it down. Otherwise just hang on till the 29th and we are always here to back you up!

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In regards to having a biopsy I thought it was standard procedure to have one after the blood tests. I just hope she'll be okay and Im concerned on the damage thats being done while we wait for the biopsy.

I didn't think it was standard procedure to have a biopsy if the blood test proved positive. I can't see the point of it other then causing more pain for someone not being on a gluten-free diet.

I may be biased though, because I am self diagnosed. I was told I had IBS and went off gluten and began to feel better in 2 weeks....

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    • What?  Wine that contains  milk?  That is new to me.   You know that there are about 300 symptoms for celiac disease and you do not have to have intestinal issues.  You do not even have to have ANY symptoms (aka silent celiac).  I think you need to wait for your endoscopy.  When is it scheduled?  I assume it is not for months and that you will be expected to consume gluten daily for 2 to 4 weeks (called a gluten challenge) prior to the endoscopy.  Because you have to be on a gluten-containing diet to get results (see University of Chicago's celiac website).   Celiacs can have many intolerances that can resolve once the body heals.   I would be worried about getting a proper diagnosis.  Did your doctor advise you to go gluten free prior to the completion of all testing?  
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