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Help Confused
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Hi, My 5 year old daughter goes for her biopsy on january 29, 2004 both blood tests came back posative for celiac disease. Her symptoms are usually diarrhea and vomiting this month she has been doing better but I noticed her stool is almost white and it floats when I told the doctor this I thought I saw some concern on her face is this just another symptom of celiac?

Thanks,

Hillary

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Not sure about the symptoms. I would just keep an eye on it and if she is getting better on gluten-free diet not worry about it. If it persists, then explore it further.

Curious why the biopsy is necessary if blood tests are positive. Is she eating a gluten-free already?

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Hillary, oops, I already replied to you on the endoscopy report thread before I noticed this post, so see that thread for my input! I hope you have a good day!

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Thank you Sarah. No ronni hasnt started the diet yet in fact her doctor hasn't mentioned it to me she said we will discuss it after her biopsy what I have learned about the diet is through the message board. In regards to having a biopsy I thought it was standard procedure to have one after the blood tests. I just hope she'll be okay and Im concerned on the damage thats being done while we wait for the biopsy.

Hillary

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It's only 9 days away so I wouldn't worry about it too much, you could cut down on her intake of gluten but she really needs to be ingest gluten to have the biopsy come out right too.

We go in with our son tommorow for his endoscopy, he has not had blood tests yet.

As far as the stools go.. pale floating stools are a sign of malsorption and fat in the stools. If you want to bulk her up try giving her pediasure if she can keep it down. Otherwise just hang on till the 29th and we are always here to back you up!

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In regards to having a biopsy I thought it was standard procedure to have one after the blood tests. I just hope she'll be okay and Im concerned on the damage thats being done while we wait for the biopsy.

I didn't think it was standard procedure to have a biopsy if the blood test proved positive. I can't see the point of it other then causing more pain for someone not being on a gluten-free diet.

I may be biased though, because I am self diagnosed. I was told I had IBS and went off gluten and began to feel better in 2 weeks....

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    • Did your doctor check for SIBO, H. pylori, ulcers, etc. when he was obtaining biopsies to check for celiac disease?  
    • Oh, and as I mentioned in my own post on pain, xanax. I swear. I tried it just to deal with the occasional panic I had at weird scary symptoms and clueless doctors. I am not a fan of long term use. But I recently found that .25 mg seems to aid with the neuropathic pain. It does not go away, but it helps. 
    • It does sound like a Glutening and you are just a few months into the diet.  It might help if you read our Newbie 101 thread under the "Coping" section.   Here is some information about rice milk: https://www.verywell.com/is-rice-dream-gluten-free-562354 Many, many celiacs are often lactose intolerant temorarily or permanently if you are naturally genetically inclined.  When I am glutened, I lose the ability to digest lactose for a while.   Salad?  Great but it can be rough on a sore gut!  Think soups, stews, easy-to-digest foods that you prepare yourself until you feel better.  Did your folks give you salad after a bout of flu?  Or did you stick with jello and broth?  I am intolerant still after three years to garlic and onions (the lactose resolved, thankfully).  You have a leaky gut (Google zonulin and Dr. Fasano who is a leading celiac researcher to verify that this is true) and that means you can become intolerant to anything (hopefully, just temporarily).   If you are 100% sure that you have had no access to gluten....did you eat out lately?.....then see your doctor.  Remember, celiac disease symptoms can change.  And here is the biggie.....it can take weeks, months or years to heal from celiac disease.  Two months in is nothing, really.  Why?  It takes time to figure out the diet and time for antibodies to come down.  celiac disease is an autoimmune disorder triggerEd by gluten.  once triggered it can go on and on damaging your gut especially with repeated glutenings (accidental or through cross contamination). I hope you feel better soon!  
    • I concur! I literally feel your pain as well. Like, at the moment, lol. Did you have an endo to see inflammation or damage? I am close to begging my GI for carafate or something to coat and protect. How about testing your antibodies to see if they are still rising? I read somewhere here rice milk may not be a good option.  Folks here have also suggested to me to stick with whole foods. Limit processed. Especially stuff that is not certified gluten-free, like chex. I think small amounts of gluten are in processed foids and can add up. I too reacted to lettuce the other day like I was ingesting glass. My sibling  had a food sensitivity panel done and it came back positive for a few things he had been eating a lot of. He can now eat them, but had to cut them out of his diet. Lettuce is probably on mine.  I have been drinking carrot and pomegranate juice,  dandelion root tea with hiney, aloe water, lots of squash, fish. Mild, no garlic, no onions or hot sauce. No coffee. It sucks.  Inflammation can tick off other organs, you mention a "Pain below". Not exactly sure which side, but certainly call your doc Monday. Sooner if the pain increases.
    • You should see a GI specialist before you go gluten free.  They should do a upper endoscopy to check for celiac damage.  Colonoscopy won't show anything related to celiac.  Also no you should not feel worse on gluten free, you should feel better.
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