Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Help Confused
0

6 posts in this topic

Hi, My 5 year old daughter goes for her biopsy on january 29, 2004 both blood tests came back posative for celiac disease. Her symptoms are usually diarrhea and vomiting this month she has been doing better but I noticed her stool is almost white and it floats when I told the doctor this I thought I saw some concern on her face is this just another symptom of celiac?

Thanks,

Hillary

0

Share this post


Link to post
Share on other sites


Ads by Google:

Not sure about the symptoms. I would just keep an eye on it and if she is getting better on gluten-free diet not worry about it. If it persists, then explore it further.

Curious why the biopsy is necessary if blood tests are positive. Is she eating a gluten-free already?

0

Share this post


Link to post
Share on other sites

Hillary, oops, I already replied to you on the endoscopy report thread before I noticed this post, so see that thread for my input! I hope you have a good day!

0

Share this post


Link to post
Share on other sites

Thank you Sarah. No ronni hasnt started the diet yet in fact her doctor hasn't mentioned it to me she said we will discuss it after her biopsy what I have learned about the diet is through the message board. In regards to having a biopsy I thought it was standard procedure to have one after the blood tests. I just hope she'll be okay and Im concerned on the damage thats being done while we wait for the biopsy.

Hillary

0

Share this post


Link to post
Share on other sites

It's only 9 days away so I wouldn't worry about it too much, you could cut down on her intake of gluten but she really needs to be ingest gluten to have the biopsy come out right too.

We go in with our son tommorow for his endoscopy, he has not had blood tests yet.

As far as the stools go.. pale floating stools are a sign of malsorption and fat in the stools. If you want to bulk her up try giving her pediasure if she can keep it down. Otherwise just hang on till the 29th and we are always here to back you up!

0

Share this post


Link to post
Share on other sites




In regards to having a biopsy I thought it was standard procedure to have one after the blood tests. I just hope she'll be okay and Im concerned on the damage thats being done while we wait for the biopsy.

I didn't think it was standard procedure to have a biopsy if the blood test proved positive. I can't see the point of it other then causing more pain for someone not being on a gluten-free diet.

I may be biased though, because I am self diagnosed. I was told I had IBS and went off gluten and began to feel better in 2 weeks....

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,131
    • Total Posts
      919,521
  • Topics

  • Posts

    • Cyclinglady is absolutely correct, after hours of internet research the only gluten-free food available at JNB is a fast food chain called 'Nandos'. I was hoping for a bit more variety, but I'll take what I get.   
    • I'm so confused about my daughter's diagnosis.  I hope somebody can help.   My 4 year old daughter has a swollen belly, stomachaches, and lots of gas.  She does not have diarrhea or delayed growth.  Because of her symptoms and because it runs in the family (2nd degree relatives) I had her tested for celiac.   She was weak positive for TTG (IGA)  and strong positive for DGP (IGG)   TTG (IGA)  8   (0-3 neg, 4-10 weak positive, greater than 10 positive) TTG (IGG)  2   EMA: Negative DGP (IGG)  47  (0-19 negative, 20-30 weak positive, greater than 30 positive) Last week, she had her endoscopy.  The doctor found inflammation and little holes or bumps on her duodenum.  He started her on prevacid and said based on his observations, he was suspicious of celiac, but he would not be able to confirm until the biopsy came back. The biopsy showed no signs of celiac disease.  He said that he could not diagnose her with celiac without the biopsy report saying there was celiac damage.  He said he would categorize her as a potential celiac, keep her on a gluten diet and redo the endoscopy in a year or two to check for damage again.  My questions are: 1.)  If it is not celiac, something is causing her duodenum to be inflamed and have little holes or bumps on it, right?  Could it be a wheat allergy or gluten sensitivity?  What else could it be and how do they test for it?  Given her elevated celiac antibodies, how likely is it to be anything besides celiac causing the damage?  2.)  How likely are false positives for TTG and DGP?  I've heard they are pretty sensitive and specific.  Does getting two positives make false positives less likely? 3.) What have you done in this situation?  I want her to have an official diagnosis to make things easier at school and to feel confident that we are eliminating gluten permanently for a worthy reason, etc.  But, I'm having a hard time imagining keeping her on gluten and waiting for her to get more sick and have more intestinal damage just for a diagnosis.     Thanks in advance for your help.  I'm so overwhelmed and confused.  I hope someone has some insight and experience that will help clear things up for me.            
    • Yeah I actually live in Japan which is pretty similar, because Coeliac disease is rare over here so is the understanding and accommodating it. When I mention Gluten to some restaurants they think I am talking in English and they are unfamiliar with the word in Japanese.    So it seems I can write off my chances of getting some authentic Chinese gluten-free food at the airport, but at least there is a Thai restaurant in T3 so I won't starve. Its called  'Phrik Thai' for future reference. http://en-shopping.bcia.com.cn/store/739.html  
    • While in Boston I found Cheer's  Bloody Mary mix that says gluten-free on the bottle and have had no issues and  tastes pretty good 
    • I always assumed plain coffee was, but I have seen some controversy online about this. I know someone who is gluten free and only buys whole beans and grinds them herself because she doesn't trust how the grounds are processed.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,166
    • Most Online
      1,763

    Newest Member
    jen4az
    Joined