Guest_~wAvE WeT sAnD~_*
Posted 03 August 2004 - 09:13 PM
I guess, now, to adapt the expression to my liking, the calm AFTER the storm. The numbness after hours of screaming and crying to fight everything away.
I'd like to thank every person who has been supportive of and helpful to me throughout this journey. I'll keep you posted.
Posted 03 August 2004 - 10:30 PM
Posted 04 August 2004 - 08:43 AM
This is a great site for support.
Posted 05 August 2004 - 07:33 AM
Guest_~wAvE WeT sAnD~_*
Posted 05 August 2004 - 08:36 PM
I cannot thank you enough for the posts. Such support is priceless
It went well. I don't remember the doctor feeding the scope down my throat. Here's the whole story.
My endoscopy was scheduled for 2:00, but the hospital had me arrive at 12:30 to complete all the necessary paperwork (sign here, sign there, blah blah.) I was then hooked to the original rehydration IV, adn the nurse had me repeat my name, SS#, and procedure to him (even thought it was on my bracelet). I sat and talked to my mom until two kids dressed entirely in red (candy stripers, I think) walked in, stopped in fron of me, and stared. "Is it time?" I asked them. They simply reached over and pulled the bars up on either side of the bed and started to wheel me away. My mother stopped them so I could take my glasses off( I usually wear contacts, but I figured it would be smart to leave them out). So then the two teen-aged red blurry things led me to the operating room. What was funny is that my vision is horrendous--nurses kept walking by me, smiling and saying hello. I couldn't see them, and I bet they wondered why I was "glaring" at people (mostly staring off in space because I'm as blind as a bat in a cardboard box). Finally, I went in. One nurse ran over another nurse's foot with my bed (haha!). Then they parked me next to the monitor, and my GI started asking me questions (did I know what celiac disease is, etc.) I told him I'd researched the disease online. He then said, "Well, young lady, tell us what it is you know and I'll grade you." He's such a nut! So I told him the whole wheat-sticking-to-villi crap, he gave me a "A" (haha!), and then began telling me of the risks involved with the procedure (intestinal tearing, hemorraging, etc.) What a time to tell a person! Then, a nurse in yellow (she's important--I remember her later ), says "Have you had this procedure done before?" I say no, of course. She picked up an aerosol can with a bulb on the other end and told me to hold my breath and open my mouth as wide as I could. She sprayed this banana/paint thinner tasting Novocain into the back of my throat, and I swallowed (with what muscles in my esophagus could still move). She explained the whole scope business ( I couldn't even SEE the scope!!! The black blurry hissing snake on the little table thingy), to me, told me to turn on my left side, and said, "Jill, are you starting to feel sleepy yet?" I said, "I don't know, is the thing in my arm?" (the IV drip) "Yes," she answered. I then remember her saying, "Here's your mouth guard." (the tan plastic thing with the hole in the middle for the scope). Then, at some point, she held my head up and said something to me. I was so drugged up that I don't remember anything else until I saw people moving. I remembered that nurse's yellow shirt and had watched her moved further to the left when I "woke up". She walked over to me to push me out, and I said, "Are we done yet?" She said, "Yes," and pushed me back to the room I was in before the procedure. My GI came in and ten minutes later and showed me the pictures of my duodenum (lower portion of the stomach/beginning of the small intestine) and part of the small intestine. He said that portion was healed, but the intestine is often "patchy" (I may have damaged cells further down where the scope cannot reach). I thought, "they actually got those?" Since I didn't remember them getting the scope in, I was amazed they had for some reason My mom drove me home, and I reclined in the passenger seat. I came home at 4:00, ate scrambled eggs with cheese and had a bowl of Cream of Rice with butter, cinnamon, sugar, and Hershey's syrup (it sounds gross, but's it's delicious!! ) I went to bed at 7:00 pm.
The hospital called me today to ask if I was ok. I told the lady on the phone I was ok, but a little tired. Whatever is in that sedative, it makes you energetic the next day, because I spent two hours pulling weeds out of our flower beds, cleaned my bathroom, and swept grass off the driveway!!! And I was EXCITED about it! (how sad. I know I it's wrong to start a sentence with a preposition, but oh well!)
My GI said that even if my biopsy is negative, if I have the antibodies in my blood, I still have celiac disease. My parents and my brother are getting tested next Friday, and while they get bloodwork done, I'm getting my Thyroid checked!! Woo hoo! (I could live at the hospital!) He also said that I'm prone to Arthritis. Is that prevalent in young people with celiac disease!!
Take care and thank you VERY much for your support,
Posted 05 August 2004 - 10:06 PM
My GI said that even if my biopsy is negative, if I have the antibodies in my blood, I still have celiac disease.
Good for you! I'm glad it went so well and that your family members will be tested.
I am not surprised that your intestine showed that it has healed quite a bit in the three weeks being gluten-free.
I am so glad that your doctor is openminded about the negative biopsy, and it still being celiac disease! I wish mine was that open-minded!
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 06 August 2004 - 10:33 AM
Posted 06 August 2004 - 12:02 PM
I'm glad that your procedure went well! I must say, your recount of the endoscopy was quite humorous and I quite enjoyed reading it... perhaps because it brings back those foggy memories of my own! Did they use that "V" drug? Good that you got it in writing because the amnesia will take whatever memories you have left. I hope that they find no damage, but it's also great to hear that your doc would still consider you celiac based on your blood results.
Posted 06 August 2004 - 01:33 PM
Posted 06 August 2004 - 01:50 PM
I'm getting my Thyroid checked!! Woo hoo! (I could live at the hospital!)
I know -- I feel the same way sometimes -- I've had the scope, sonogram, urine, stool, bone density, and nearly ten bloodtests.......it's crazy! .....I'm not sure if I have had my thyroid checked -- my new doc. is going to want it checked if I haven't done so already, but my old GI has to send the info. over to him....that might be why I'm not gaining a lot of weight. My mom has a slow thyroid (hypothyroidism?).......yet another reason to think she has celiac disease (bloating after lots of bread, hypothyroid thing, unexplained stomach pains as a youngster....hmm).
Thanks for filling us in--glad it went well
LOL.. after they were done with my endoscopy, I kept asking them for more drugs! Guess I was enjoying it, I was a bit out of it at the time. (=
Guest_~wAvE WeT sAnD~_*
Posted 06 August 2004 - 07:36 PM
I don't know if it was Vicodin or not (the "V" drug.) Everyone just said, "sedative." celiac3270, hypothyroidism is the correct term. The opposite is hyperthyroidism.
Hahaha I was too dazed to ask for more drugs. I wanted FOOD!!! I was hungry before the procedure, and starving afterward. I'm sure at that point, sawdust would have tasted like gourmet cuisine.
My GI is the best doctor I've seen. Granted, he is a specialist, so he doesn't remember my previous visit (for bloodwork), or that my father is also a patient of his. He calls all men "buddy" and me "the young lady", but he knows what he's dong and is extremely knowledgable about, in my opinion, one of the world's hardest diseases to diagnose. <--*Dr. Smith in his surgery mask* Speaking of which, I heard him tell one of the nurses how many cc's to give me of the drug ("Let's give this young lady 250."). He said it right before Yellow Shirt Nurse asked me if I was sleepy yet.
I'll post my biopsy results and keep everyone updated. I'll put my family members' results as well.
Posted 06 August 2004 - 08:09 PM
LOL, I was really really dazed too. I barely remember asking for more drugs, but was told later I kept asking and asking, when they had finished.
I was too dazed to ask for more drugs.
Before my procedure when I was talking to the nurses, I saw the TV screen that would show my insides, and I was like, "Oh, I get to watch!" And a nurse replied, "Yeah, but you won't remember." And she was basically right. I do fately remember watching, but way too much of a blur, lol.
The last thing I clearly remember, was them telling me to open my mouth and bite down on that thingy.
Hopefully your biopsies shows you are messed up and have celiac disease! Normally a mean thing to hope, but a good thing for someone with celiac disease. =)
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