Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

A Question For The Veterans


emcmaster

Recommended Posts

emcmaster Collaborator

When you were first gluten-free, did you have random days where you had some glutening symptoms but not all? I ask this because I've been gluten-free for 6 months and occasionally will have a day or two where I have the bloating and pain, but not the other symptoms. And since it only lasts for a day or two, I know I haven't been glutened or had a reaction from my other intolerances.

Am I just healing and having a few bad days because of that?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LKelly8 Rookie

It could be from something else; another food intolerance, transient virus, GERD, PMS, etc.

Or you have :ph34r: hidden gluten in your diet somewhere.

Link to comment
Share on other sites
Matilda Enthusiast

...

Link to comment
Share on other sites
aikiducky Apprentice

At six months I think I was more or less bloated all the time. :) Yes it was very much up and down and not always because of a glutening. Bloating is still the last thing to go away after I have been glutened, it's the most stubborn of my symptoms. But nowadays I'm not bloated all that often (two years on the diet).

Pauliina

Link to comment
Share on other sites
emcmaster Collaborator

Thank you for the replies! I suspected other intolerances, went on an elimination diet and still had the random bad days. I added back all the foods I suspected and most weeks, have 1 or 2 bad days a week unless I've for sure been glutened or consumed one of my other off-limits foods.

It makes me feel a lot better to know that you were experiencing bad days sometimes at 6 months in. (Not that I'm happy you were feeling badly, just happy to know I'm not abnormal!)

Link to comment
Share on other sites
Rikki Tikki Explorer

Hi Elizabeth:

It took me a couple of years to feel really well. But I would suspect hidden gluten or cross contamination. It was so overwhelming for me for a while, just trying to find out what all contained gluten. Watch your medications, they use gluten in some,.

Best of luck and good to meet you! :D

Link to comment
Share on other sites
Guest nini

It took me about 2 years to feel almost human, but I'm still having bad days 3 1/2 years into this.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola

After 17 years I can't remember how long it took me to feel human again. But, there will always be ups and downs, although not so many over the years. Bloating is a problem with almost all of us and I'm not so sure that it is always caused by gluten. I seem to get it sometimes when I'm simply under stress and not eating a proper balanced diet. Sometimes salads will cause it and sometimes an over abundance of fruit. I know we tend to jump on a gluten contamination as soon as we start feeling uncomfortable, but there are times when that is not the cause.

Hang in there, the fact that we feel better over all is a good thing! :D

Link to comment
Share on other sites
emcmaster Collaborator

A big thanks to all you who replied!

I'm undiagnosed and am keeping my fingers crossed that this is it and that I won't go back to feeling badly all the time!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,094
    • Most Online (within 30 mins)
      7,748

    Eva Ann
    Newest Member
    Eva Ann
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...