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What Can I Drink?


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7 replies to this topic

#1 Canadian Karen

 
Canadian Karen

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Posted 04 August 2004 - 04:32 PM

Currently, I am drinking water and Crystal Light.

Are fruit juices okay to drink on a sugar free diet? I know a lot of the juices on the market are filled with sugar. Anyone know any safe ones?

Thanks!
Karen
  • 0
Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

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#2 burdee

 
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Posted 04 August 2004 - 05:35 PM

Hi Karen:
Any pure fruit juices (NOT JUICE 'DRINKS') would only have fructose, rather than dextrose, if you are trying to avoid sugar. I prefer to eat the fruit (for fiber, since constipation is one of my recurrent symptoms). So I drink herbal teas (esp. peppermint and chamomile which help with intestinal cramping pains) and diet caffeine free pop (limited to 1-2 daily since acidic stuff still bothers me). I also LOVE wine, but I'm limiting that also while I'm healing, because it also has that 'acidic' effect on me. If decaf doesn't bother you, you could consider decaf coffee. I recall you were limiting dairy (??), but was soy a problem for you? I don't drink decaf anymore because I could find an almond or rice milk (since I can't tolerate soy) which didn't separate in coffee. :o
BURDEE
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Gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg free. Enterolab diagnosed gluten/casein intolerant 7/04; soy intolerant 8/07. ELISA test diagnosed egg/cane sugar IgG allergies 8/06; vanilla/nutmeg 8/06. 2006-10 diagnosed by DNA Microbial stool tests and successfully treated: Klebsiella, Enterobacter Cloaecae, Cryptosporidia, Candida, C-diff, Achromobacter, H. Pylori and Dientamoeba Fragilis. 6/10 Heidelberg capsule test diagnosed hypochloridia. Vitamin D deficiency, hypothyroiditis, hypochloridia and low white blood cells caused vulnerability to infections. I now take Betaine HCl, probiotics, Vitamin D and T3 thyroid supplement to maintain immunity.


#3 Canadian Karen

 
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Posted 04 August 2004 - 06:36 PM

Hi Burdee,

Thanks for the suggestion about the pure fruit juices.... Apple juice I can handle, I find though that orange juice is too acidic for me.... Also, I believe Welsh's grape juice is gluten-free - I maybe will try those...

I tried the soy milk before months ago when the dr. suggested for the first time that I cut out dairy - YUCK! It tasted horrible to me - I guess nothing will ever replace the pure joy I had when I gulped down a HUGE GLASS of milk without even coming up for air!! I SOOOO enjoyed my milk, I am truly missing it. But I do have to admit, I am finding some very positive results of these new restrictions - my stomach hasn't been this calm for a VERY LONG TIME!!! I am not running to the bathroom five times in the morning anymore, and instead of going probably 15-20 times during a day, I am only going now maybe 2 - 3 times. Also, I have decided to give Immodium another try, thinking maybe with all these new restrictions, maybe the Immodium will now have a chance to work - and I think it is helping.... Whatever the reason, I am definitely seeing an improvement.

Oh, I phoned my GI dr. to inform him that he prescribed Lomotil to me and that in fact that med contains gluten, he said "Oh, sorry"....... Humppphhhh! I guess I just learned a valuable lesson, ALWAYS check myself what I am putting in my mouth, even a GI doesn't know what contains gluten!!!

Have a great day!
Karen
  • 0
Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#4 burdee

 
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Posted 04 August 2004 - 07:19 PM

Hey Karen:
The first brand/variety of Soy milk I tried was TERRIBLE. I think it was the plain Silk Wave soy milk. I thought trying the plain would tell me whether I liked soy milk, rather than trying a vanilla flavored variety. BAD IDEA!! :( The next brand/variety I tried was Pacific ULTRA soy original flavor, mainly because it had 10 grams of protein (vs. the usual 7 for soy milk and 8 for regular milk). I can't see putting a high carb/low protein milk on a high carb/low protein cereal, if I want my meal to last more than 30 minutes. :o Anyway that brand/variety was FANTASTIC. I loved it. :D Unfortunately, it didn't love my body and I got recurrent symptoms. The next few times (weeks apart) I tried just a tiny bit of soy and still got those symptoms, so I'm completely off soy. However, if you shop around and try different varieties/brands of soy milk, you might find a more palatable one. :) I really miss not having any milk, cheese, yogurt or margarine. But I'm really getting used to feeling better. Today was a much better day (just gas and a few twinges, no cramping or bloating). YAY! :D
BURDEE
  • 0

Gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg free. Enterolab diagnosed gluten/casein intolerant 7/04; soy intolerant 8/07. ELISA test diagnosed egg/cane sugar IgG allergies 8/06; vanilla/nutmeg 8/06. 2006-10 diagnosed by DNA Microbial stool tests and successfully treated: Klebsiella, Enterobacter Cloaecae, Cryptosporidia, Candida, C-diff, Achromobacter, H. Pylori and Dientamoeba Fragilis. 6/10 Heidelberg capsule test diagnosed hypochloridia. Vitamin D deficiency, hypothyroiditis, hypochloridia and low white blood cells caused vulnerability to infections. I now take Betaine HCl, probiotics, Vitamin D and T3 thyroid supplement to maintain immunity.


#5 Canadian Karen

 
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Posted 04 August 2004 - 07:30 PM

Hi Burdee,

I am a bit afraid to try anything different..... I have been gluten-free (with some contaminations I recently found out about!) for 1 1/2 years, with little success (chronic diarrhea).. But in the one week that I have been dairy/sugar/caffeine free, I have notice more improvement this week than I have over the whole 1 1/2 years!!! Something is working, whether it be cutting out all dairy/sugar/caffeine or taking the Immodium again, or a combination of the both... Something is working, though...

Maybe in a month or so I will attempt soy. I do miss my gluten free cereal....
But if I notice even slight symptoms, I will discontinue right away - I don't want to take any steps backwards.... I am starting to truly believe I have a casein intolerance...

Karen
  • 0
Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#6 Canadian Karen

 
Canadian Karen

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Posted 04 August 2004 - 07:33 PM

Also, you and I both had a pretty good day today!! I kept on thinking to myself at work today, "Boy, my stomach is pretty tame today".... "no pain, no gas, no bloating, only went to the bathroom 2 - 3 times instead of 10 - 15 times".... I haven't even had to go into the boardroom after lunch to lay on the floor like I used to have to do.....

Let's keep our fingers crossed!!!!

Karen
  • 0
Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#7 burdee

 
burdee

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Posted 04 August 2004 - 07:56 PM

Hey Karen:
Maybe I will FINALLY learn to keep it simple when I'm feeling well, rather than taking chances and getting sick again. :blink: I vowed to another celiac friend today that I will avoid ANYTHING that bothers my stomach at all when I eat it--which includes anything on the acidic side like tomatoes, citrus, wine, mustard, caffeine, etc. as well as gluten/soy/dairy which don't bother me until they hit my intestines. I readily forget that I've been damaging my intestines for the past 50 years, so even foods other than gluten/dairy/soy may give me uncomfortable feelings until I have time to totally heal. At first I didn't want to restrict myself any more than I absolutely had to, for fear I would feel deprived and rebel by eating gluten/dairy/soy. Now the fear of recurrent excruciating pain is a HUGE motivator to stick to safe foods. Besides I've already found soooo many SAFE gluten/dairy/soy free foods that I never tried before. I enjoyed fresh figs for the first time in my life tonight. :D
BURDEE
  • 0

Gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg free. Enterolab diagnosed gluten/casein intolerant 7/04; soy intolerant 8/07. ELISA test diagnosed egg/cane sugar IgG allergies 8/06; vanilla/nutmeg 8/06. 2006-10 diagnosed by DNA Microbial stool tests and successfully treated: Klebsiella, Enterobacter Cloaecae, Cryptosporidia, Candida, C-diff, Achromobacter, H. Pylori and Dientamoeba Fragilis. 6/10 Heidelberg capsule test diagnosed hypochloridia. Vitamin D deficiency, hypothyroiditis, hypochloridia and low white blood cells caused vulnerability to infections. I now take Betaine HCl, probiotics, Vitamin D and T3 thyroid supplement to maintain immunity.


#8 crc0622

 
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Posted 06 August 2004 - 06:11 AM

At first I didn't want to restrict myself any more than I absolutely had to

I feel the same way. I am only gluten-free for a month and I still drink a cup of decaf coffee almost every day, a Coke every now and then (maybe 2 per week) and any food I want as long as it's gluten-free - although we do eat healthy at home, mostly whole food, not much manufactured stuff. I eat a LOT of fruit since it's all in season right now and yummy!
Anyway, I hope I am not causing myself an extended delay of my healing because of this. Fortunately, I did not get a lot of bad pain with my symptoms - never did - just the normal frequent diarrhea, constant bloating (which was the most painful thing). And it is drastically better in the last month - almost normal again.
So, do you "experts" think I'm hurting myself?
Celeste
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