Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How Much Would You Pay For A Pill?
0

19 posts in this topic

I am doing some research on developing potential new therapies for celiac disease and am wondering, how much would you be willing to pay each day if you could take a pill that would let you eat a normal diet? How much would you pay per year?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Thats a good question. at $5 to $6 a loaf of brick like bread and $8 a box for average cornflakes...It adds up..I'd pay a lot if I could afford it. I'd start at $10 to $15 Canadian per week... About $500 to $800 per year...I 'd find that difficult to afford but I'd go for it!!! ...RDV:)

0

Share this post


Link to post
Share on other sites

I wouldn't give one red cent for a pill. I have taken pills all of my life because of this disease. I would just keep on with the diet as is. I feel better than ever and have more energy than most 60 year olds should have. Pills? Thanks any way. RS

0

Share this post


Link to post
Share on other sites

I wouldn't take it regularly. Following the diet, when you get creative and good with your cooking (branching out where need be) really isn't that hard, and is healthy to boot. I'd consider paying up to $2/dose for special occasions, but that'd be ~twice a year.

0

Share this post


Link to post
Share on other sites

I agree with Tiffany. I wouldn't use the pill on a daily basis, but would probably use it more than twice a year. Following the diet at home is easy, but we take chances every time we go out of the house and eat somewhere else. I would certainly like the option of having a pill that would lessen the reaction to accidental intake of gluten, but as a treatment everyday, so I could eat all the gluten filled foods I want...NO THANKS!

I don't think it would even be possible to develop a pill that would be able to keep the intestines from being damaged and I would not want to risk my health just to be able to eat more conveniently. I mean even Lactaid doesn't stop a person from being lactose intolerant. They still have to be cautious with dairy foods and it doesn't completely stop every reaction. With gluten we are talking actual intestinal damage, as well as an increase in the risk for intestinal cancer and other complications. It just isn't worth it.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites




I'm not trying to be negative, but life isn't always about taking the easy way...

0

Share this post


Link to post
Share on other sites

Do you mean a pill that would cure my celiac disease forever, or a pill that I would have to take everyday, till the end of my life, just to be able to eat gluten?

If you mean the former, I would pay any amount I could afford, even if it would take not just one "magical" pill, but a longer therapy (say, a few weeks or even a few months). If in the end I could hope to be cured, I would give it a try at any cost.

If you mean the latter, I'm not sure I would use it - maybe for special occassions, as the people above already said, and only if I could be sure that it really blocks the damage done to my intestines. Having a pill that would enable us to eat normally sounds just great, but I'd be worried about the side effects of taking any medication every day, for years and years. Surely that cannot be good for your liver. I'd be worried even more that the pill could not be 100% sure - like I'm not sure Lactaid helps you digest every single bit of lactose that you ingest. What if despite taking the pill, there would still be some amounts of gluten left that would hurt your intestines? In my case, I could not know about it for a long time, because I don't have symptoms after small amounts of gluten, but I would still suffer from it in the long run.

To be honest, when I first read the question, it reminded me of an opinion I have read in some newspaper some time ago, stating that it will be a long time before some kind of vaccination for AIDS will be invented, mainly because drug makers gain too much profit from selling all those medications that are believed to help people with AIDS live longer. I am not jumping to conclusions that the question that started this thread was asked with such meaning, and I think any efforts to find remedy for celiac disease should be supported, because some day, someone might manage to find it. Still, as for myself, I'd prefer a treatment for the disease itself and not for its effects only.

0

Share this post


Link to post
Share on other sites

How much would I pay for a pill that would allow me to eat anything I wanted and not feel sick, GUARANTEED? Well right now I am on many different medications for celiac disease, which help me dramatically. If I could get rid of all those, take one pill and eat anything....HMMMM I think I would pay what I pay now for scripts monthly, about $100.00. If this magic pill would cure me forever, I would pay whatever I could afford.

I would hope that this pill would come with some sort of guarantee.

I hope this helps with you research.

Linda

0

Share this post


Link to post
Share on other sites

It is so refreshing to actually hear people say they'd just stick with the diet. We live in such a "take a pill and it'll be okay" kind of time that I expected more people would go with that option. I have to agree. I don't think a medication could be developed which could guarantee that I wouldn't have other problems in the long run. Same kind of reasoning I use in my decision to avoid artificial sweeteners-all of them.

Linda-Do you mind my asking what meds you take? Just curious, as I didn't know anything really helped except gluten-free.

Celeste

0

Share this post


Link to post
Share on other sites

does anybody know about any research thats bein done on celiac disease that would give us some hope in the future for us or for our children to not have celiac disease?

i'm wondering how far they are from a cure?

0

Share this post


Link to post
Share on other sites

Ditto to most of the other comments. I take ZERO pills or meds, and I like it that way! I will only take a pill if it is life or death - and even then I might stop and think about it!!! :P

Besides, why do I need a pill? I've already been cured! (the diet)

Since this disease is an autoimune disorder anyway, I doubt there ever will be a pill. Seems like more of a genetic engineering thing to prevent our offspring from getting it, rather than us being "cured".

Sadly, this is one of the biggest reasons this disease remains in the shadows. Since there is no pill, you don't have multi-billion dollar pharm. companies advertising on the evening blues every night. Just about everyone knows about acid reflux disease, erectile dysfunction, and a host of others because of these commercials.

0

Share this post


Link to post
Share on other sites

If a celiac pill came out I would probably only use it to avoid cross-contamination when eating out or when eating at other people's houses. I don't know if I would trust it to use all the time. In order to convince me to use it all the time, I'd have to see good scientific results and scientific studies that prove that it works and does not allow any intestinal damage.

I would pay up to 75/year to use only when eating out, which would be about 2-3x a month if I had the pill.

-Carrie

0

Share this post


Link to post
Share on other sites

I don't take any pills other than vitamins but if there was a celiac pill, i'd take it probably every day. Not sure how much I'd be willing to shell out for it but I am italian and grew up italian my entire life . . . if there were no other side effects from the pill, I'd have more than one a day!

0

Share this post


Link to post
Share on other sites

i also would use a pill like that sporadically, maybe once or twice a month, when i go to a bbq or party. it would be nice to be able to pick on something that i normally wouldn't have. i would pay 2 dollars (us) for that.

WHAT I WOULD PAY UPWARDS OF $5 FOR would be a pill that would stop a gluten reaction when it's already started. lol, keep dreaming, bubble.

0

Share this post


Link to post
Share on other sites

lol, I would pay $10-$20 for something that would stop a gluten reaction if I got contaminated!

0

Share this post


Link to post
Share on other sites

I know my BF missed pizzia and Olive Garden bread sticks. . .

If there was a pill my consern would be heath before luxury. If a pill a day could help relieve symptoms and help prevent/stop bodily damage it would be a worthwhile investment even if it wasn't a "magic cure". So much like insulin. . .it doesn't mean you can eat all the sugar you want but it makes living with it a ton easier.

0

Share this post


Link to post
Share on other sites

I agree with the others, I WOULD pay for a pill that would completely stop in it's tracks a gluten reaction from contamination! The amount I would be willing to pay would depend on how well it worked! And as I said before would like the option of preventing a reaction when eating away from home, but why would I need to buy pills to take daily just to eat anything I wanted. I'm healthier now and losing weight for the first time since I was a teenager, and believe me that is a big deal! I am an overweight Celiac who chose to do the diet before I got sick to the point of weight loss and massive intestinal damage. To chose to go back on gluten and trust my new found health to a pill just seems odd to me. It might be nice to have a pill around for when we are on vacation and are eating out at every meal, since it is awful to feel sick while on vacation.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

If there were a "Gluten-Blocker" that I could take before Thanksgiving dinner at my sister-in-law's or before a special wedding dinner, I'd shell out $5 - $10 for - it to be able to eat without worry. As for a daily pill, I'd rather stay gluten-free, I think. I'm so used to it it's not a big deal.

0

Share this post


Link to post
Share on other sites

If a daily pill could be developed to counter celiac disease, that would be a major breakthrough. I would pay $50/month easy. That wouldn't be much to live a normal life.

I am really surprised by some of the earlier replies. A pill would make my life easier as well as my spouse's. Travel would be easier on business trips and it would be great just to have a cold Miller Lite again !!!!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,698
    • Total Posts
      921,787
  • Topics

  • Posts

    • When it's that high, it almost always means Celiac.  Sure, you can have Crohns, too.  Just like you can have Celiac and diabetes, the common cold or a hang nail.  I wouldn't jump to Chrohns.  I don't think the tTg really has anything to do with Chrohns?  Where did you see that?  Sometimes, a slightly elevate tTg can be elevated from other issues, but >100 is not a " slightly elevated" reading
    • Hi! I'm new here, and I'm looking for some information because I'm having a hard time finding it.  Over Labor Day weekend I got some kind of intestinal bug. I didn't think much of it until the D persisted once a day up til now. I tried a priobiotic but that didn't help much. I have bad anxiety and began to think that I was just anxious and stressed. No fever, no pain, all bloodwork is normal, so no infection or anemia. My mother has 5 siblings and 3 have celiac. One other one had a high result on a blood test but was never officially diagnosed and insists she doesn't have it. So I went to my local health fair and got the ttg-iga test, just in case. My result came back at >100. So I have called and scheduled a visit with a GI for next week. Aside from the recent intestinal issues I have never thought that I had any signs of celiac. I do have dermatographism and have had that since I was 20 (I am 28). I have severe anxiety. I had PUPPPS when I was pregnant with my daughter and it was miserable. It looks much like the skin rashes that celiacs have. Again, didn't think much of it. Because of my anxiety I am terrified that this high blood test is from something else, like crohn's. I don't have diabetes, my liver and thyroid numbers are fine. I think it's much more plausible that this is celiac because of my family history. But my anxiety says "what if it's crohns?" Does anyone have any insight? Is it true that the ttg iga can be elevated from crohns and not celiac? Is >100 pretty definitive of celiac? I didn't know if crohns was the cause if the number would be this high.  I'm just freaked out. 
    • This does say it is for NCGS....so not  for Celiacs.  There is a drug being developed that may actually break down the gluten in the stomach before it hits the intestines.  However, that is still in clinical trials.
    • could be from your neck, or it is, literally, in your head. perhaps a scan is needed.
    • The anxiety thing is there I take teas, and supplements along with CBD oil to help with it, and long walks and exercise when I get antsy. As for the human interaction it is a mix of other mental issues, and the way I feel about people who can eat gluten. If they are not eating I have no issue talking with people. I mentioned I have issues accepting them as the same species when I see them eating. My reaction to gluten is so ingrained in me that it is not a food but a poison, that watching others eat it causes a subconscious reaction where I find myself avoiding them and looking down on them like something from another planet. I end up disgusted with them and walking away, I will go out of my way to avoid people and places where foods like this are present. This is my TRAUMA part of the gluten exposure, and one of the big things I am trying to address in my life right now. I know it is irrational to do so but I end up doing it, I have never cared about others race, religion, or looks, but if I see them eating a gluten/poison, it somehow changes how I perceive them and interact with them and I hate this part about me. It is taking a lot of mental effort to try to smile and treat them as a human, and not something to be looked down upon in disgust. I just recall that mental state that gluten puts me in with my mind and body turning against me and not doing what I will it and the fear comes back. This diet is pretty much like mine, I take Doctors best Magnesium powder in a tea that is actually brewed with st johns wort (never thought much of it) , I use Liquid Health Stress & Energy along with the Neurologic Support they have, twice-three times a day for B vitamins(along with a bunch of other supplements) . I can not digest meats or carbs well, meats it is a issue with breaking them down same with egg yolks, I literally just burp up the undigested meats hours later. I have found the only way to eat them is to boil/slow cook them til they melt then blend them into a broth and have it with digestive enzymes so only do it with turkey bacon, longhorn, and salmon in small amounts in soups or for flavoring stock for stir frys.  As for Carbs like rice and potatoes I end up getting really gassy and bloated, same with sugars in any amount greater then like the size of my thumb give or take. Oats I only have gluten-free Harvest in about a tbsp amount when tasting recipes of stuff I sell at farmers markets. So I eat mostly fats and protein from egg whites, nuts, seeds, veggies, and vegan protein powders blends balanced for complete proteins. I have at least 1-2 dried fig, dates, handful of banana chips, or a 1/4 of a small fruit with meals for fruits.  My meals are mostly egg white and veggie omelettes, stir frys, and soups, Always with lots of fats and proteins in each meal. I have found having nutritional yeast to help with my mood and energy levels also and find someway of having it in meals often. I keep my foods on rotation and keep getting updated feed back on ratios with my dietician. I also have a rather odd list of foods I can not eat due to allergies/intolerance.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,704
    • Most Online
      3,093

    Newest Member
    Fbmb
    Joined