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Could I Have Celiac?
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4 posts in this topic

Quick history:

I've had stomach problems since Junior High (now 33)..usually the worst about 30 minutes to 1 hour after eating. Usually, symptoms are worse after eating out vs eating at home.

Main symptoms are: diarrhea, gas, stomach cramps, naseua/lightheadedness and beofre the stomach troubles start in earnest (meaning, having to run to the bathroom) I feel very flushed and hot all over. My husband would always get frustrated that I was spending my life running to the bathroom.

One doctor told me I had IBS a long time ago, and another tested me for hypoglycemia...nothing conclusive. I've been food allergy tested and possibly am slightly sensitive to garlic, peanuts and tomatoes, but it wasn't very conclusive either.

I defintiely have issues with Lactose intolerance/dairy, but not all the time. It seems to come in clumps...like 3 bad months, then 4 good months.

I'm always tired/lethargic, which is really annoying. I tend to be overweight...not under.

A year ago I started a low-carb diet where I tend to avoid most flours, oats etc and saw a HUGE improvement in my symptoms. I still have an episode once in awhile, but rarely (though I still have issues with being tired off and on).

Do you think this could be celiac disease? I've seen the symptoms lists and they're so long and varied that it confuses me. :) The one symptom I didn't really see mentioned was that intense feeling of heat/getting flushed prior to an outbreak of symptoms.

Any ideas? I'd love to hear your opnions. Thanks for all your help.

--Julie

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Wow, you sound exactly like me, same symptoms, age and everything. I even found out the same way! I have not had the test for Celiac, and have only been attempting to live wheat free for a short time (very unsuccesfully I might add, lol). I have had the flushing before an episode before too. I could have written your post! I've had the hypoglycemic episodes too, just not the lactose... Right now, I am just assuming I am gluten intolerant and not celiac, I will see if my doctor recommends having hte test. My sister has seen improvement off wheat also, so that makes me wonder tho.....

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If you are going to get tested (which I think you should) go back off hte low-carb diet because then the test will be bad, yes you could very welll be celiac, everyone's symptoms are different

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Main symptoms are: diarrhea, gas, stomach cramps, naseua/lightheadedness and beofre the stomach troubles start in earnest (meaning, having to run to the bathroom) I feel very flushed and hot all over.

I had the very same symptoms plus a few more ;) . Of course mine always hit me while driving to work in the mornings ;) . I think you should look into getting tested either through your GI doc with blood tests or through www.enterolab.com which is a stool panel test and is more sensitive than blood and more accurate.

I do hope you find some relief soon as I know exactly how you are feeling.

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    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
    • I have intolerances to a few foods now, so I was wondering about that.. I love cashews though, and a month or two ago I was eating them all the time with no problems at all. I mean, could I really have developed an intolerance to them since then? I don't know if they're made on shared lines (it didn't say on the package so I assumed they weren't), but I'll give them a call. I'm really, really sensitive to cross contamination. Even if something is just made in the same facility (but not on shared lines) it will make me sick. If that's not it, then I'm not really sure
    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
    • I react to both wheat and barley.  I've opted to just go completely gluten free, for the sake of simplicity and my sanity.  I don't have a diagnosis of celiac disease, but I strongly suspect it.  Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing.  I just know I need to avoid the gluten grains, so I do.  
    • I think that we have to remember that celiacs often develop intolerances due to our  damaged guts.  Our guts do not ncessarily heal either (usually adults) for  a variety of reasons even if their symptoms improve (see links below).   Nuts are just plain hard to digest.   I can not tolerate almonds, but can handle walnuts and cashews in small amounts.  I can eat peanuts too, but resort to Peanutbutter after a Glutening as it is easier to digest (maybe I have to learn to chew better!  😀)  My nut symptoms have  nothing to do with gluten as I have purchased certified gluten-free nuts and suffered with the same symptoms.  .   https://www.verywell.com/celiac-disease-when-will-your-small-intestine-recover-562341 http://www.cureceliacdisease.org/treatment/ http://www.ncbi.nlm.nih.gov/pubmed/23936873 i call the manufacturer when I suspect the manufacturer is sharing the line or if I just want to know.  I bought some Black English walnuts and called the company.  Those are the only nuts they process and they do not have any flavored nuts.   if you really want to test your theory out, buy some nuts from Nuts.com (certified gluten-free).   See if you get a reaction or ask your GI to retest your antibodies (which should be done annually anyway).   I just hate to have Planters get a bum rap when you do not really know for sure.......😥    
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