Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Could I Have Celiac?
0

4 posts in this topic

Quick history:

I've had stomach problems since Junior High (now 33)..usually the worst about 30 minutes to 1 hour after eating. Usually, symptoms are worse after eating out vs eating at home.

Main symptoms are: diarrhea, gas, stomach cramps, naseua/lightheadedness and beofre the stomach troubles start in earnest (meaning, having to run to the bathroom) I feel very flushed and hot all over. My husband would always get frustrated that I was spending my life running to the bathroom.

One doctor told me I had IBS a long time ago, and another tested me for hypoglycemia...nothing conclusive. I've been food allergy tested and possibly am slightly sensitive to garlic, peanuts and tomatoes, but it wasn't very conclusive either.

I defintiely have issues with Lactose intolerance/dairy, but not all the time. It seems to come in clumps...like 3 bad months, then 4 good months.

I'm always tired/lethargic, which is really annoying. I tend to be overweight...not under.

A year ago I started a low-carb diet where I tend to avoid most flours, oats etc and saw a HUGE improvement in my symptoms. I still have an episode once in awhile, but rarely (though I still have issues with being tired off and on).

Do you think this could be celiac disease? I've seen the symptoms lists and they're so long and varied that it confuses me. :) The one symptom I didn't really see mentioned was that intense feeling of heat/getting flushed prior to an outbreak of symptoms.

Any ideas? I'd love to hear your opnions. Thanks for all your help.

--Julie

0

Share this post


Link to post
Share on other sites


Ads by Google:

Wow, you sound exactly like me, same symptoms, age and everything. I even found out the same way! I have not had the test for Celiac, and have only been attempting to live wheat free for a short time (very unsuccesfully I might add, lol). I have had the flushing before an episode before too. I could have written your post! I've had the hypoglycemic episodes too, just not the lactose... Right now, I am just assuming I am gluten intolerant and not celiac, I will see if my doctor recommends having hte test. My sister has seen improvement off wheat also, so that makes me wonder tho.....

0

Share this post


Link to post
Share on other sites

If you are going to get tested (which I think you should) go back off hte low-carb diet because then the test will be bad, yes you could very welll be celiac, everyone's symptoms are different

0

Share this post


Link to post
Share on other sites
Main symptoms are: diarrhea, gas, stomach cramps, naseua/lightheadedness and beofre the stomach troubles start in earnest (meaning, having to run to the bathroom) I feel very flushed and hot all over.

I had the very same symptoms plus a few more ;) . Of course mine always hit me while driving to work in the mornings ;) . I think you should look into getting tested either through your GI doc with blood tests or through www.enterolab.com which is a stool panel test and is more sensitive than blood and more accurate.

I do hope you find some relief soon as I know exactly how you are feeling.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,670
    • Total Posts
      921,685
  • Topics

  • Posts

    • So my heart has been doing weird stuff post gluten challenge. Skips beats, arrhythmias, chest pain. It was getting a bit better then worse again in July.   My cardiologist has done 2 stress tests, halter monitor, and we have not caught anything other then harmless pvc's. But I KNOW this is not right for my heart and it has gone wacky out of sync and we never catch it on a damn test. All of my doctor's were connected out of a larger practice, so the GI, cardio, neuro, and primary care can all see the mountains of tests I had and think I am a nutcase the moment I walk through the door. I will admit that I informed the old GI about the DGP test being positive and I sent over some info on the test as they were basically using TTG and old gliadin tests, and they were receptive. But for the most part, I do not trust doctors. I was once told I was in false labor when I actually had 13 gallstones and an infection in my bile duct. I have more horror stories, as we all do. So, my protein and RBC were low in the hospital but all up to good levels now so it is not a vitamin deficiency. My heart has already skipped multiple beats today. The other day, it again went out of rhythm for just 20 seconds or so. I am not drinking coffee or alcohol because of the acidity, so it is not that. I was glutened on August 24th and probably once in July. Does anyone have weird heart issues that vanish eventually? If so, how long does it take? I am an over-thinker, which has its pros and cons. I know we are at an increased risk for CAD which is not really my concern right now. My gut is inflamed, my thyroid is inflamed and my adrenal gland was effected by all of this. I sort of wonder if an exposure to gluten causes some kind of myocarditis, an inflammation that would not be picked up a sonogram per se, and may eventually vanish with a gluten free diet. Has anyone ever had experience with myocarditis? I did a lot of reading on Roemheld syndrome, gastro-cardio syndrome, which is basically a set of cardio symptoms resulting from your gut. Praying it is just that! I just feel like now that I have a diagnosis, I need to rebuild a team of doctors that I feel have my back. This is a sucky disease that can have a lot of ill effects and I need a team I feel is intelligent, supportive and willing to research. I already have a new GI and a great Endocrinologist. I am seriously contemplating a new cardio and neuro as they both talk to me like I am a 12 year-old with "hysterical girl syndrome".
    • I was not officially diagnosed with narcolepsy when I was younger and still haven't.  However, even in my junior high and high school years and on through my college years staying awake was always a struggle for me.  maybe the gluten was a factor back in junior high and just didn't realize it.    There were times in church and other times I would just BAM fall asleep without warning.  Frustrating and somewhat embarrassing to say the least.  Now that I have been off gluten for close to a year now, the "feeling" of needing to sleep is becoming less and less.  Still have periods of sudden sleepiness, but not as often any more.
    • when they first came out, I read the ingredients on them, and they don't seem to contain malt.  But the company, at that time specifically posted on the website that they  are not gluten-free.  So I don't drink them.
    • Rum is naturally gluten free, but in cases where it is flavored, spiced, etc. you have to be careful where they might add a malt in the natural flavorings. I been using Admiral Nelsons coconut rums in cooking for finishing off stir frys, and adding a bit of flavor to caramelized ingredients for a few years now, I have never had issues with those. As for the Morgan, I would be careful with the spiced version as they might use a malt based ingredient in it. I did a bit of research and like you found no conclusive evidence to if it contains gluten or not. The plain rum from them is listed on many and been tested by several groups and has come up gluten free. On a side note if your a celiac or have intestinal damage I would avoid alcohol or drink in moderation. I personally only use it in cooking.
    • Hi, It seems they advertise it as a malt beverage.  Malt is made from barley normally, so it would not be gluten-free.  Unless they specify the malt is corn malt, it is always assumed to be barley malt per FDA labeling regs.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,669
    • Most Online
      3,093

    Newest Member
    Cjplmon
    Joined