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Symptoms Other Than Gastro
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I'm wondering if anyone has noticed symptoms other than gastro after ingesting gluten (usually by mistake, sometimes just from frustration). I notice that other than the bloating and constipation I also sometimes experience headaches and mood swings. After reading about all the celiacs worrying about losing too much weight I'm confounded. I've gained over 15 lbs in a year. I feel like I'm going to explode! If I ingest gluten I usually get very constipated and bloated and then maybe a few days later the diarrhea hits. But back to the topic, I also have found that I can get very headachy and irritable, usually the next day. Has anyone else noticed this?...tagger

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I remember a thread about this very topic. It would be an interesting read, I'm sure; it had collected a number of replies last time I looked! I hope this helps.

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I have gotten severe migraines since I was a teenager. We could never figure out what caused them. They would last days at a time. Now that is one of the things that happens when I have been glutened. I think those were my first signs of celiacs. Just my opinion.

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The stomach pain is often the symptom that resolves fastest.  I to get fatigued, cranky, achy, migraines, constipated, bloated, and I swear my IQ drops, but that could be the fatigue.  I even lose hair.   :rolleyes:

 

There are over 300 symptoms of celiac disease... It's amazing how the symptoms can manifest!

http://www.cureceliacdisease.org/wp-content/uploads/2011/09/CDCFactSheets10_SymptomList.pdf

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Yes.  So many symptoms beside the gastro.

 

My immediate symptoms are brain fog and a "heaviness" in my legs.  And those occur within a few hours.

 

After that, it's water retention/bloating, constipation, fatigue, no sex drive, mild aches in my joints, and irritability.  If the glutening was bad, all of that can get bad but the fatigue in particular will be bad.  Depending on the severity, symptoms last from 3-7 days.

 

While it's all unpleasant, the fatigue seems the worst part of it.  I hate that feeling.

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Some celiacs can't gain weight if they tried, some of them have pretty damaged stomachs that take sometimes years to heal.  I was diagnosed over a year ago and have lost 40 pounds since, can't keep weight on to save my soul.  I don't get a lot of stomach issues when I'm glutened, it's all mostly neurological for me, headaches, brain fog, moodiness/anxiety, muscle/joint aches and pains, nerve pain.

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    • I would be very careful in giving this kind of advice, she is in an advanced stage. I was there and one additional symptom that I was getting was a strong urge to commit suicide so eating gluten for three months might not be the way to go for some people. If a gluten free diet stop the problems them gluten is the problem or a least part of it. I eliminated MSG from my diet because I notice that the common denominator for some products that affected my well being was MSG. I eliminated oats because I notice that I would get canker sores every time I ate it. Wheat is what affect my brain the most, irritability gets uncontrollable, my mental capacity greatly diminish, rash in my arms appear, can't sleep,etc. Barley makes my stomach groan, and constipated. Will try testing how Rye affect me some later time. 
    • Hi Aly and welcome You may want to repost this in a new thread, that way more people will see it and can advise you.  I think you would be much better off getting the celiac test now, if you stay off gluten you will need to go back on it and that can be much harder. That said, loads of your symptoms look like they could be gluten related.  I had a persistent 'trapped nerve' for instance under my eye which would twitch like crazy. Since I went gluten-free doesn't happen any more.  Best of luck! Matt
    • Your scalp sounds like seborrheic dermatitis. I have that and although its better after going gluten-free its very persistent. The dermatologist recommended Nizoral shampoo for it and it does help. I think dairy has a big part to play with skin problems, for me at least. 
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
    • Just found this site today. Did you ever find one? I was diagnosed this year and I live on Oahu.
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