Think Husband And 2 Yr Old Son Have Celiac
Posted 09 August 2004 - 05:44 PM
My son is 2 years, 2 months old. Yes, I am still nursing him. He is having MAJOR problems with weaning. I expected to have him nursing 2 times a day by 18 months, but instead he is still nursing about every hour! I think that this may be a symptom of celiac. His stools are never "solid". I don't change other kids' diapers, so I don't know what his poop is supposed to look like. But one day I was baby sitting some other kids and their poop looked like turds in their diapers. My son's poop is always a pudding-consistency, usually a pretty light color also. My son is very short for his age 31" and 24 pounds. My husband is 5'8 and I am 5'3. My son has major eating issues, but he looks very healthy and acts happy much of the time. Here is my struggle with him over food: He is very hungry often. He asks to nurse, but since I know he is actually hungry I offer him several different foods and drinks that I know he likes. He doesn't want any, he wants to nurse. So I let him nurse for a minute, thinking it will take the edge off for him and make him less frantic so that he can eat. This works about 25% of the time. The rest of the time, he refuses food again and goes back to playing. Then he comes back a few minutes later wanting to nurse again. I offer food for several minutes, trying to find something that he will eat-- anything! All the while he is crying, grabbing at me asking to nurse, when I know that nursing isn't going to make his stomach stop hurting for food. About twice a day I can get him to eat a substantial amount of something. If he had a food that he would eat every day, I would be less frustrated. He likes pasta the most often, but it isn't dependable. He likes to eat chicken quite a bit also. I wouldn't say he's a "picky eater" just because he has eaten many different types of foods and enjoyed them(at least once). I am going to post my husband's symptoms in a separate message because this is taking me forever to post(2 year olds are rather distracting!)
Posted 09 August 2004 - 06:31 PM
I would suggest trying him on a gluten free diet, except that he should be tested first. If you try the diet before testing it can alter future test results and cause them to be falsely negative. So don't cut the gluten out yet.
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 09 August 2004 - 06:38 PM
Anyway, tell me what you guys think. I want to hear from people who have "been there" and know what it is like to see this disease and/or experience it. Thanks.
Posted 09 August 2004 - 06:54 PM
He is always happier after he has taken several bites of something.
Posted 09 August 2004 - 06:58 PM
Posted 14 August 2004 - 08:58 PM
First, change doctors! To not even know there is an antibody test is horrible! Although most doctors won't accept that as diagnosis, they will want to do a biopsy. My husband had many vague symptoms like you described. Our daughter is having trouble; after her positive blood tests, my husband began cutting wheat out of his diet and feeling better. That is really the true test - change the diet and see if he feels better. We went through the biopsy with our daughter, only to get negative test results about a month ago, but I still see the connection - I have logged her food and stool. We just returned from vacation and are going gluten-free tomorrow.
The breastfeeding might still be making your sons looser than normal. You mentioned pasta - my duaghter loves it but I see a reaction to it every time.
Keep us "posted".
Posted 15 August 2004 - 08:24 PM
Posted 20 August 2004 - 04:54 PM
keep it up!! My Celiac son nursed until he was four. i definatly think it was because food was not his friend. He still does not eat much but i think the diet is helping. it has been about a year. remember if he is gluten-free and you are nursing you need to be gluten-free also. good luck, get the blood test.
Posted 22 August 2004 - 04:06 PM
Before going gluten-free I was like your husband in many ways, especially with sleeping anytime, and anywhere. It only took a few days on the gluten-free diet to change my sleep patterns to where I had a very very hard time sleeping. And, I have heard this from other people. Yet, I still don't feel very well in my tummy. It sounds to me like your husband is on the right track.
I also agree about getting another doctor. Many doctors kept giving me IBS meds, and telling me to get more active (when I had no energy for that). I brought up celiac with another doc and she told me the test are expensive stop eating "Carbs" and you'll feel better...DUH! I went to a new doctor last week and I left the office with an order for the blood anti-body test (to be done when I have been eating gluten awhile again, of course). So, what I guess I am saying is don't give up! This doctor was soooo awesome. He listened to why I believe I have it, and he didn't do that "I'm the doctor I know all" crap to me. He was so open. So, don't give up hope. There are good doctors out there!
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