Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

"gluten Challenge"
0

12 posts in this topic

Has anyone heard of a "gluten challenge"? Where you have to be eating gluten for a certain amout of time before the biopsy for the biopsy to be correct. I had a blood test about 6 years ago and one of the antibodies was positive so I went on a gluten free diet and I also had a biopsy done 4 years ago and it came back inconclusive, but now I'm finding out that you have to have the gluten in your sytem to determine if you're really celiac or not. Is this correct?

0

Share this post


Link to post
Share on other sites


Ads by Google:

To have any chance at an accurate test you have to eat gluten every day for up to three months. Why are you considering this? Do you doubt that you have celiac?

richard

0

Share this post


Link to post
Share on other sites

I'm considering getting another endoscopy b/c it's not 100% sure that I have celiac. 6 years ago I went to an allergist and found out that I'm allergic to wheat, then I got a blood test and one of the antibodies was positive, but they said that only way to be 100% sure is to get an endoscopy. I didn't want to do that at the time, so I went on the gluten free diet and then I wound up getting the endoscopy 2 years later and the results came back inconclusive, and I'm wondering if that's b/c I wasn't eating gluten before the test (well, I may have been eating trace amounts in modified food starch, etc) So, I guess I would just like some concrete answers as to if I have celiac disease or not. I just made an appt. w/ a GI, but the earliest appt. isn't until Oct. 4th, so I'm not sure if I should try to get gluten in my system before the dr. appt. or just wait to see what he has to say.

0

Share this post


Link to post
Share on other sites

Did you have some sort of health problems that went away after you went gluten-free? If so, in some circles your postive blood test plus improvement on the diet would be considered proof.

Anyway, eating gluten from now until Oct. 4 might or might not be long enough. Everybody is different, but I think the top experts say you need to eat it for three months.

richard

0

Share this post


Link to post
Share on other sites

If you feel better on the gluten-free diet then you don't need to have the biopsy but if you have had no imporovement then you may want to have the biopsy to make sure this is actually what you have.

0

Share this post


Link to post
Share on other sites




What does anyone else know about how long you have to be eating gluten before a correct biopsy can be done?

Thanks

0

Share this post


Link to post
Share on other sites

Most experts seem to agree you need to eat gluten for at least two months, preferably three. And even then damage depends on the individual.

richard

0

Share this post


Link to post
Share on other sites

I just got the results from my bloodwork that was taken in 1998 while I was still eating gluten and the IGG antibody was 17.1 and the normal range was <7

I sent this to my dr. to see what he has to say. I'm hoping that I might not have to have another endoscopy done.

0

Share this post


Link to post
Share on other sites

Just my two cents: If you've got the antibodies for sure, skip the endoscopy. Let that be proof-I don't believe anyone should suffer the "Gluten Challenge"--that just prolongs your symptoms.

Thanks for listening,

0

Share this post


Link to post
Share on other sites

After 6 years of being 100% gluten free (or as close to it as possible!) it might take longer than 3 months back on gluten to cause enough damage to be seen with the endoscopy. Chances of your biopsy showing positive damage by October are pretty slim.

I did a gluten challenge this last winter and was back on gluten for two months. (I had only been gluten free off and on for a total of about two months over a two year period) My biopsy still came back negative, since most doctor will only look for complete damage. I am considering having my biopsy slides reevaluated for signs of early stages of damage, but not sure I can afford the expense.

You could try a few days back on gluten and see if it makes you feel sick. I personally wouldn't risk it, but I can understand your need for a concrete answer. That is why I had the Enterolab tests done, since the conventional tests kept coming back inconclusive and I could not commit myself to a lifelong diet if I didn't really have a problem with gluten. Well, I got so sick during that two month gluten challenge that I would never purposefully go back on gluten EVER!

Let us know what you decide to do. We'll all be here to support you no matter what you decide! :)

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Another thing on top of the fact that I was positive for the IGg antibodies back in 1998, I also went to an allergist then and they told me that I'm allergic to wheat. I'm just confused as what I should do.

0

Share this post


Link to post
Share on other sites

Well, this past weekend I did my own "gluten challenge", I ate some stuff like pizza and wheat bread and I got my answer b/c both Sat. and Sunday I had gas and integestion/acid reflux, basically I felt the way I did before I went on the gluten free diet. So my husband and I just decided that I'll stay on the gluten free diet and forget about doing the endoscopy again. If I felt this bad eating gluten for 2 days I don't want to have to eat it for 3 months before the endoscopy!

So...on with the gluten-free diet!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,142
    • Total Posts
      919,559
  • Topics

  • Posts

    • Mnoosh,    Can you give us a link to the article you read about the increased risk after being diagnosed and maintaining a strict gluten-free diet??       IMO,   You are over reacting to a misprint or most likely a misread article.
    • Yes!  With dairy, celiacs can often have a temorary lactose intolerance due to damaged intestinal villi (where the enzymes normally are released to digest lactose).  Of course you could be naturally lactose intolerant based on race or age.  It is best to stick to a whole foods diet while you are healing.  Really, is ice cream or potato chips going to provide you with nutritional value?  Stick with naturally gluten free foods like meat, fish, fats,  veggies (even those with carbs like sweet potatoes or winter squash) and fruit.  Avoid that processed junk as you may react to the additives right now.  Later, you can add back in dairy (test) and other foods you miss and crave.   Good luck!  
    • Take a deep breath and calm down!    The incidence of cancer with Celiac Disease is rare.......it can happen but the vast majority of people never have that experience.  You may have somewhat enlarged lymph nodes due to inflammation from undiagnosed Celiac but that will all calm down and go away once you get going on the diet.  Believe me, there are many of us that have things happen during the diagnosis and early recovery period and everything turned out just fine.  There is an elevated risk for some cancers with Celiac but that risk goes back to that of the general population after a couple of years on the gluten-free diet. I cannot remember the exact time frame but it is somewhere between 2-4 years, I think.  So many of us went years without a diagnosis and when it was all figured out, we have gone on to be healthy with little complications.  Really...do  not worry about this.  Concentrate on learning all the ins and outs of this disease and how to live gluten free happily.  We are here to help you and guess what? The diet is not as bad as some make it out to be. Many things can be made gluten free and are every bit as good as their gluten counterparts. The diet may not be convenient but it is not hard. I would not lie to you!   
    • Well....one common symptom that most celiacs have when they are diagnosed (or undiagnosed) is anxiety.  So, there is a risk of cancers, but science has demonstrated that that risk goes down on a gluten free diet (if you have celiac disease).  In goes down to the same risk as those without celiac disease.   I kind of was a basket case.  I drive my family a bit crazy because I was anxious.  I felt a bit stupid too.  I guess I had a little brain fog going on too.  All that resolved after I healed. Welcome to the fourum.  Read our Newbie 101 thread under "Coping" (pinned at the top of the page) and learn about hidden sources of gluten and cross contamination.  I think most of us do not worry about cancer. We mourn the freedom to eat anything anywhere!   I did not have swollen lymph nodes, but I am sure others have and they did not have cancer.  Hopefully, they will chime in and set your mind at ease.  If not, you can search for "lymph nodes" at the top of the page (little magnifying glass).  There are lots of members with the same issue!  
    • I was recently diagnosed as having celiac and to be honest the part I'm having the most trouble with isn't the change in food or lifestyle. I'm really upset about what I've read about the risk of cancer increasing with celiac disease. I think this is playing into my fears because I currently have lymph nodes all over my body-my Doctor says they are not considered swollen or concerning, but I don't usually feel nodes. The lymph nodes and horrible diarrhea for the last 3 weeks were what got me into the the doctor for lab work. My blood work came great so I'm wondering if anyone else experienced lymph nodes reacting when they found out they were celiac? Also how do you deal with anxiety surrounding the increased risk of cancer? Thanks!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,175
    • Most Online
      1,763

    Newest Member
    GMO Poisoned
    Joined