Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Celiac Disease And Ulcerative Colitis
0

8 posts in this topic

I was diagnosed with UC 13 yrs ago. Since then I have been hospitalized more times then I can count, often for conditions not directly related to UC.

I started reading up about celiac disease recently and decided to try a gluten free diet. Many of my worst symptoms have subsided drastically.

Anybody else see a drastic improvement in their UC on a gluten free diet? Makes me wonder why in all these years I was NEVER tested for celiac disease.

0

Share this post


Link to post
Share on other sites


Ads by Google:
I was diagnosed with UC 13 yrs ago. Since then I have been hospitalized more times then I can count, often for conditions not directly related to UC.

I started reading up about celiac disease recently and decided to try a gluten free diet. Many of my worst symptoms have subsided drastically.

Anybody else see a drastic improvement in their UC on a gluten free diet? Makes me wonder why in all these years I was NEVER tested for celiac disease.

Hi Bumblebby - I don't know if what I will have to say will help you but you sure have me questioning a link between celiac and UC as well. When my son was born in 1993 he cried constantly and his doctor said it was colic. As time went by (weeks) he continued to cry nonstop and could not keep his formula down. A few tests were done but did not get a diagnosis soon enough to avoid the tragedy soon to come. My husband (at the time) shook my son and damaged his brain very badly. He was left severely brain damaged, blind, cerebral palsy, seizures.... After this his crying and inability to keep food down was thought to be related to his brain damage. He had surgery so his food would go directly to his stomach and a fundo. to keep the food down. A few years after that he was diagnosed with UC and based on the symptoms I believe it was diagnosed correctly. He got a colostomy bag and had constant D which I thought was because of the shortening of the length of intestine he had. My Jordie passed away last year due to RSV and pneumonia.

A few months ago I saw an episode of "House" with the outcome being the mother had celiac and her baby also had it. I now question whether or not my Jordie had celiac and that was the start of our"new lives". My friends say not to think about it as it doesn't change anything but I wonder if that was the problem.

So yes, if I was told there was a link between celiac disease and UC I would believe it.

0

Share this post


Link to post
Share on other sites

Sorry to hear about your son. That is just horrible.

It would be interesting to see if there are more people who have had experiences that they believe relate UC and celiac disease.

0

Share this post


Link to post
Share on other sites

i have a feeling it might be related too b/c i ended up with uc and celiacs as well. I know UC is a very common misdiagnoses of celiacs. i'm planning on doing more research on it online.

0

Share this post


Link to post
Share on other sites

I am so sorry Noel for the hardship that you and your son had to go through. I am sending you many Hugs.

I was diagnosed about 40 years ago with UC. Over the next couple of years it went away. Before it disappeared, I was in the ER several times and put on so many drugs to control the pain. Which leads me to believe that it was not UC but probably my undiagnosed Celiac Disease.

0

Share this post


Link to post
Share on other sites




I am so sorry Noel for the hardship that you and your son had to go through. I am sending you many Hugs.

I was diagnosed about 40 years ago with UC. Over the next couple of years it went away. Before it disappeared, I was in the ER several times and put on so many drugs to control the pain. Which leads me to believe that it was not UC but probably my undiagnosed Celiac Disease.

Thanks for the hugs mouse.....unfortunately I am still needing them. So based on the responses so far it does look like there could be a connection. It just angers me so much if celiac disease was what my son had to start and the doctors missed it and the death of my son and the pain for all of us could have been avoided! Sorry for ranting just so much pain

0

Share this post


Link to post
Share on other sites

Noel, please accapt a hug from me, too. I don't know much about UC, but it does seem like there could be a link. I know that a lot of UC patients do better on a gluten-free diet.

I'm so sorry about what happened to your Jordie. Your story made me so sad. I also don't blame you for still trying to get answers for him. Not being able to change what happened is no reason to tell you to move on and not think about it. It's quite possible that the poor little thing had Celiac--of course you'll never know for sure but it's clear that there was something else going on with him.

Take care :)

0

Share this post


Link to post
Share on other sites

I'm sorry for your pain, Noel. Doctors seem to be of no help in these things and much suffering comes because of their inadequacy, many times.

I've read of a curious link between nicotine and ulcerative colitis. Some people with ulcerative colitis get sick of the awful, often ineffective drugs, and use either a nicotine patch, or real tobacco in the equivalent of around 4 cigarettes' worth per day to control uc symptoms.

I've run across another study that says celiac disease doesn't happen as much in smokers as in nonsmokers, same as uc. Sometimes when people stop smoking they get smacked with sudden onset of celiac or uc.

I've read another study that says canker sores are a common complaint in people who stop smoking...canker sores can sometimes be a symptom of celiac disease.

I think if doctors had as much brain power as they want us to believe, research would be ongoing to find a safe way to deliver nicotine to people who could benefit from it medicinally, not to mention just learn to accurately diagnose people so that they can fight a disease before it destroys life and health.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,880
    • Total Posts
      919,457
  • Topics

  • Posts

    • Celiac - How many symptoms can there be?
      As you doubtless know now, there are so many ways celiac can present, here's as big a list as I could find online. It would probably be quicker to list what isn't a factor For me personally, nausua, check, left sided back hip pain (my laymans theory here is that celiac is affecting the sciatic nerve which runs from lower back down leg) , check, chest pain also - but for me this comes in short bursts more I guess like heartburn - I thought I was having heart attacks... Check to the rest too... And, for what its worth, other things like being prone to bronchial infection oh hell yes.  I'm currently in the glutened / affected by something group myself so I can only share the advice I've been given. Start a food diary and see if you can track down anything diet related that may be affecting you. Eat as clean as you can, ease up on alcohol, just try and give yourself the best chance of recovery. Have a google of 'heal my gut' diet tips too, you're in the recovery phase at the moment. All the best, at least there's comfort in knowing you're not alone!   Matt  
    • Depression / anxiety issues
      Thanks for the advice Matt, I will be sure to take it all onboard. It's really good to talk to others that have had similar experiences. I'm currently upping my b12 and also taking a additional (gluten free) multi and b complex, also omega 3s and Vitiam D3. I had been noticing small improvements that I forgot to mention in my previous post. I noticed that I fall asleep now much easier than before going gluten-free, I also have moments where my body feels more calm, then blood in my stool has stopped I haven't had any in 10 weeks. My mind was constantly fixated on negative thoughts for the past 2 years and they slowly began lifting from all day negative thoughts to maybe half a day of negative thoughts if that makes sense, but this pass week and a half they have come back, I'm also finding my self very nervous again around other people I'm hoping this will pass. The anxiety / depression is the worst symptom for me I would not wish it on my worst enemy, if that went away I would be the happiest man in the world. I found it very hard to talk to people about my mental health issues at work before I lost my job as I found some people stigmatise me and don't understand or really care, but I figure i don't need narrow minded people like that anyway, and as a man its hard to open up but my wife is very supportive and encouraging. Thanks again for the advice really apricate it
    • Depression / anxiety issues
      G'day Chris and welcome to the forum. You have found what I think is the single best resource on the web for advice, support and understanding for this condition. There is so much info here it's difficult to know where to start, but that's what this thread is for, please check it out. I think I got the recommendation for 'Real life with Celiac Disease' by Dennis and Leffler there, I'll second that, there's a lot of very useful info in there which helps to answer a lot of your questions. May be useful for your partner also. Chapters are short and informative so you can dip in and out.  There will doubtless be more advice to come from others with more experience but there's a few things which occur. Firstly, 10 weeks is very early days. Your body has been under an assault for many, many years. Your immune system has been working overtime and like so many others you've only reached diagnosis after reaching a crisis point. You are now healing but it won't be instant and it won't be without ups and downs, speedier and slower phases.  Second, being strict on gluten is essential, but it's only one part of the puzzle. You also need to eat really healthily and try to heal your gut. As you remove gluten you may find that your body starts telling you that other foods are also an issue. Don't panic, it doesn't mean that will always be the case. But you need to approach the next 6 months as a period where you're giving your body the easiest ride possible. That may mean taking probiotics, bone broths or it could also mean avoiding dairy or other foods, at least until your body has had a chance to heal. If you think you may still be getting gluteny effects keeping a food diary, noting what you eat, when and how you feel would help to track down any further issues.  I too battled through the anxiety, had an all too brief moment of bliss as the diet kicked in, then faced a bumpier recovery period in the weeks that followed. It gets easier but it's still difficult for me from time to time. I tried to articulate some of this recently here, it's a long read but maybe some of it will strike a chord. It will get better and you will become better equipped to deal with it. If you're like me you'll find other things getting better over time that you would never have thought to connect to gluten. Now, I've been exceedlingly nice here and not mentioned the England Rugby drubbing but I can feel my self control beginning to slip. So I'll leave it there   Matt
    • Depression / anxiety issues
      Thanks for the advice Irene. I will look into that book. I know I'm a long away from healed but I got my hopes up when I felt better in that first week, it's just constantly a battle. I am hoping and praying that I get better soon 
    • Celiac - How many symptoms can there be?
      Do you take digestive enzymes and probiotics? That may help. Have you met with a dietician for help figuring out how you're getting glutened?
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,924
    • Most Online
      1,763

    Newest Member
    sealy-yak
    Joined