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Bony Tori
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Does anyone else have very large jaw bones? I have always had bony growths extending from my lower jaw. If you look uner my tongue they are quite large and bizarre looking, and according to my many dentists they are called bony tori. I don't notice them much, except when trying to get my teeth xrayed by the dentist or back when I was fitted for a retainer, but they have gotten so much bigger in the past year. Recently I was wondering if bony tori are related to celiac disease. I know there is a higher incidence of kidney stones. I have a theory I want to put out there and get feedback on: my body's tranglutaminase (from gluten exposure) was getting bound to calcium and then couldnt be excreted by the kidneys (like in the kidney stone theory) but instead of giving me a painful kidney stone, this brotein-bound calcium built up in my mouth. Now I have very large bumpy jaw bones under my tongue and also on the sides of my jaw.

If this is indeed why I have such remarkable bony tori (Ive been told by dentists I could be in dental textbooks) then I wonder if its permanent but just wont get bigger now that I'm gluten free, or if they will get smaller... Time will tell, I guess.

I am really hoping someone else out there knows what Im talking about...

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Hi. I had never heard of Bony Tori until now - after reading your email. I have what you describe under my tongue (and have just looked at some photos on the net to be sure). No dentist has ever mentioned them. I even had a bunch of dental x-rays taken recently (2 weeks ago) and no one said a thing. I had noticed them but figured they were normal. Since no mention had ever been made I haven't given them much thought. Until now. I've been doing quite a bit of research on diseases associated with gluten intolerance and have not noticed anything on bony tori...but then I wouldn't have because I didn't know what it was.

Fascinating!

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