Headaches In Celiac Patients
Posted 16 November 2006 - 07:25 PM
Diagnosed May 2006 - Hashimotos Thyroid after being diagnosed in 1977 and told it didn't matter.
Diagnosed June 2006 with adrenal insufficiency.
Diagnosed June 2006 as Gluten Intolerant after I failed the Challenge Diet. Negative blood test.No biopsy.
Diagnosed June 2006 as B12 low. Needed weekly injections for a year.Still have them every 2 weeks.
Trialled Dairy Free Diet and reacted positively to that challenge in January 07.
News Flash! Coeliac Genetic Testing done April 08 . DQ2 Positive !
Diagnosed July 2010 FODMAP. Limits on Fructose, lactose, polyols, fructans. NO ONION! But I can have hard cheese, butter and cream again!!!
Posted 19 November 2006 - 03:17 PM
Blood test, No Biopsy
IgA off the scale 44 now 3
(tTG) IgA 25 now 2
(tTG) IgG 1 now 1
now border line low iron 10
Gluten Free since August, 02, 2007
Diagnosed with Osteoporosis November 2006
As of Jan 2007 all numbers looking good
As of Feb 2007 no more Pork, having Allergic reactions
Posted 19 November 2006 - 06:34 PM
Posted 22 August 2008 - 06:11 PM
I started getting the headaches in my 30's long before I was diagnosed with celiac. I went through 2 nasoplasty surgeries thinking they were sinus related. The headaches got progressively worse over the years and would last 3 days and I would be noushsous as well. My doctors tried Imitrix but the only thing that helped was Demerol and it only helped the first day then the headache was right back. Finally I went to an Urgent Care clinic with a full blown headache with nausea to get a shot of Demerol and a doctor who normally headed a pain clinic asked if he could try something else which had to administered by IV drip at first. I said yes thinking it probably would not work. But after about a half an hour, I walked out with no headache or nausea.
The medication is DHE 45 and the generic is Dihydroergotamine Mesylate Injection, USP. It has to be injected inter-muscular in the thigh at the onset of the headache, but it is the only thing that has worked for me.
I was not diagnosed with celiac until being treated for Hepatitis C which caused the celiac to become full blown and put me in the hospital. After this I had some really bad episodes of headaches; the worse lasting for about 15 days. It was a very stressful time in my life and occurred in the months of June and July, so I think it was a mixture of allergies and celiac aggregated by stress. Usually at their worse the headaches came once or twice a month. At the time I had a job where I could take time off without pay or use vacation time or I would have been let go.
When that job left the state, I finally had to apply for disability and the judge was amazed I was able to work as long as i did. The headaches have gotten less frequent with age and strict dieting, but I still get them. If I take the shot as soon as I feel a headache coming on, it will stop it after a couple of hours and the next day it will be gone.
If you have high blood pressure you may not be able to use this medication. I hope this information helps.
Posted 22 August 2008 - 08:42 PM
They are, however, better since going gluten-free. So yay for that. Also, I just feel a whole lot better since going gluten-free, just waiting for my energy to return.
(Texas girl in AZ)
Bloodwork - positive, 2/19/08
Biopsy - positive, 2/26/08
Colonoscopy - clean as a whistle!, 2/27/08
Posted 23 August 2008 - 06:19 AM
And they were getting worse-- more frequent. I was missing work. I was missing life.
And it happened that at the end I was down to eating "simple starches" and getting sicker and sicker.
For example, I would eat spaghetti and get sick. So I would think-- wow! It must be the spices or tomto sauce. I guess I won't eat those any more. Or I would eat a salad and get sick. So I would think-- wow! I must not be able to digest lettuce! I guess I better stop eating that. In the end I would eat toast, crackers, noodles in broth-- that sort of thing. My God! I went for over 20 years like this.
And I was getting these hideous headaches five times a week. I might only have one of two good days. Life stank. I almost lost it.
But since going gluten-free (Dec. 1 will be one year!) tyhe headaches are gone. I never once, never ever, got a bad one like that again. For that alone I will never eat another bagel.
Posted 16 July 2012 - 04:45 AM
Posted 16 July 2012 - 05:52 AM
I went gluten free in March 2011 and have not needed to buy any since then - still have half a bottle left. I get occasional headaches (usually sinus related) now and then, but nowhere near what was "normal" for me in the past.
I was also diagnosed with GERD - supposedly from taking too much advil - but those symptoms have gone away since being gluten free as well.
Posted 16 July 2012 - 07:23 AM
I was also treated for GERD, and haven't had any of those problems since going gluten-free either.
Seems to be a common theme.
I used to suffer from extreme anxiety too, and that has lessened since going gluten-free, but I still get mild anxiety. Hopefully it will go away completely once my body is totally healed.
Posted 16 July 2012 - 11:53 AM
I started my gluten free journey 6 weeks ago and I've had 3 migraines in that time. Thing is I can point to accidental gluten ingestion each of those times. Although its challenging and I do miss bread I will gladly stay gluten free to rid myself of the migraines!
Posted 17 July 2012 - 07:31 AM
"Acceptance is the key to happiness."
ITP - 1993
Celiac - June, 2012
Hypothyroid - August, 2012
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