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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Digestive Enzymes
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23 posts in this topic

Is it OK to take digestive enzymes early in recovery? I have been gluten, corn, rice, soy, milk, nightshade free for one month and still have brain fog, weakness, and a little looseand cannot put weight back on (97 lbs). I am only able to eat a few veggies, chicken and beef and pears - all cooked. I'm afraid that digestive enzymes will be harsh.

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What kind of digestive enzymes would you be interested in taking? There are enzymes for panreatic insufficiency. They are needed when the part of the pancreas that produces enzymes does not work.

They are very expensive and not needed if pancreas works fine.

Are there others who have tried enzymes and felt they helped?

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Anne, you may try taking them AFTER eating, rather than before. I heard that they're a lot more effective in people with celiac disease that way. I followed that advice before I discovered that the enzymes I was taking had salicylates, and stopped. But while I took them before meals, they'd give me a stomach ache, and they didn't when I took them after meals.

Also, glucosamine sulfate will help heal your intestines faster. Your diet sounds like mine did for many months. It will get better, hang in there.

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Is it OK to take digestive enzymes early in recovery? I have been gluten, corn, rice, soy, milk, nightshade free for one month and still have brain fog, weakness, and a little looseand cannot put weight back on (97 lbs). I am only able to eat a few veggies, chicken and beef and pears - all cooked. I'm afraid that digestive enzymes will be harsh.

My pancease works fine. I just read on the internestthat celiac disease heal their intestines faster with digestive enzymes. Wondering if this is true?

Anne, you may try taking them AFTER eating, rather than before. I heard that they're a lot more effective in people with celiac disease that way. I followed that advice before I discovered that the enzymes I was taking had salicylates, and stopped. But while I took them before meals, they'd give me a stomach ache, and they didn't when I took them after meals.

Also, glucosamine sulfate will help heal your intestines faster. Your diet sounds like mine did for many months. It will get better, hang in there.

One web site said Glutamine. Is this similar to glucosamine sulfate? Where can I get this?

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I take digestive enzymes all the time. I take them with most meals and have found a big difference. My mom is very sensitive and she didn't do well with them but there are lots of people here who take them. I believe mine are enzymedia and they are vegetarian.

I wonder if you have something else going on. I wasn't feeling great after going gluten-free and I had problems with candida, an amoeba, nasty bacteria and almost no good bacteria. If you don't start feeling better you might want to have more tests done.

Also, more than digestive enzymes, you may try probiotics. Good bacteria is especially important to us and that may help you tolerate more.

I hope you feel better.

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My pancease works fine. I just read on the internestthat celiac disease heal their intestines faster with digestive enzymes. Wondering if this is true?

One web site said Glutamine. Is this similar to glucosamine sulfate? Where can I get this?

there is a theory that proteases (protein digesting enzymes) will clean up ulcerated intestines and act as a a sort of antiseptic to aid that sort of healing, I don't know if thats true. A lot of enzyme instructions come with a warning not to take if stomach ulcers are present - which sort of contradicts that theory. My only personal experience on this matter is that sores in my mouth did heal quickly despite eating powdered enzymes.

another healing theory is that fiber digesting enzymes will kill candida fungus (by splitting the casing of the candida plant) thus allowing a leaky gut to heal better - from personal experience I believe this to be true.

there is another theory that taking starch digesting enzymes will allow the body to feed on the starch carbs instead of feeding the candida. From personal experience I believe this to be true.

there is another theory that by taking enzymes which would normally be produced by the intestinal villi (but are damaged by celiac) then by not feeding bad bacteria more likely to get a good intestinal bacteria balance. I'm not celiac so this wouldn't apply to me, although by getting better digestion plus probiotics i've been able to get a friendlier bunch of bacteria to live in me :)

I don't think that enzymes can help the villi grow back if thats what you read on the internet.

my problems aren't understood (least of all by the docs), all I know is that I need to ingest a massive quantity (20 tablets or so, or the powdered equivalent with one small meal) to remain fit and active (I wither away without them). I agree with Ursula's suggestion that taking them after eating reduces any chance of a stomach ache, I take the enzymes during and after eating.

every one is different, not everyone needs them. Only way of finding out if they help is to try them.

cheers,

Mike

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They help a lot with bloating and stomach pain for me. They only work for me if I take them at the beginning of a meal.

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I've been gluten-free for 1.5 years and just started taking digestive enzymes a few months ago. They do seem to help me.

I read a book called "Micro Miracles" by Ellen Cutler. She says to only take the plant based/vegetarian enzymes because they can survice the acidity of the stomach (or something like that). I'm taking Digest Gold by Enzymedica. The label says no: dairy, soy, wheat, gluten, yeast, nuts, etc.

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just an fyi - my nutritionist advised me that while they could cause no damage, that digestive enzymes were fairly pointless. He said the pancrease produces enough enzymes to break down 15 meals, much less one. Take it or leave it...

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just an fyi - my nutritionist advised me that while they could cause no damage, that digestive enzymes were fairly pointless. He said the pancrease produces enough enzymes to break down 15 meals, much less one. Take it or leave it...

well that may be true for the world champion competetive eater! - a young Japanese fellow I believe who can pack away an incredible amount of hot dogs.... but not all of us have that digestive capacity.

your nutritionist is assuming a working pancreas with all the nerve feedback loops in place to make it operate properly. That statement is like saying that a diabetic doesn't need insulin coz the pancreas makes more than enough to cope with glucose in the bloodstream.

I'm not diabetic so i don't need insulin and that specific function of my pancreas works, similarly someone with a perfectly operating pancreas will not need, protease for protein digestion, amylase for starch and lipase for fat. But for example the pancreas does not produce lactase for milk sugar - that is the job of the villi. So would your nutritionist say that a celiac who has had villi flattened would not benefit from lactase supplements coz the villi produce more than enough lactase?

my villi aren't flattened and seem to produce the enzymes for digesting sugars very well - i know this coz if i ingest fruit juice or something similar on an empty stomach i get an immediate burst of energy with no bloating.

However if I attempt to eat meat or starch without proteases or amylases digestive misery is guaranteed for me :(

not everyone needs them - I do

cheers,

Mike

PS I visited a nutritionist who was very enzyme supplement aware and dealt with cystic fibrosis patients (blocked pancreas ducts) so allthough their pancreases can make enzymes it gets blocked from reaching the small intestine. CF patients take about 20 animal based enzymes per meal.

also enzymes can damage - cause intestinal damage - this is known from observing cycstic fibrosis patients taking large quantities of pancreatic (animal product) enzymes. The long term effects of plant based enzymes (which is mainly what I take) is not known as far as I can find out. But I want to live a reasonable life now and am not prepared to wait until more complete knowledge is available, so I take large quantities of them now. The alternative for me is that I will get very very thin without them

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I know loraleena said the enzymes need to be taken at the start of the meal and ursula suggests the opposite. I agree with both suggestions! To me its not contradictory coz of the different types of enzymes. I dose myself with the following categories of over the shelf enzymes

1. fiber digestive enzymes eg cellulase. this can be taken at the start without stomach irritation and I think its most effective at controlling candida when done that way. Enzymes such as beano say they have to be taken at the start, same with lactase (but I'm not lactose intolerant so I don't need this) they will not stop the bloating if taken at the end apparently.

2. amylase starch digesting enzymes - I find this works best for me if I either mix in the powdered form with the food to get an even delivery from the start, or munch the chewable tablets at regular intervals from the start of the meal. They don't seem to irritate my stomach.

3. protein digestive enzymes proteases or protelytic enzymes are the ones that have the potential to irritate my stomach. So I mix in powdered enzyme with my food and due to the large quantity I need take some protease tablets at the end of meal

the amylase enzymes that I have seen and use all have some protease and lipase enzymes mixed in too. Something has gone horribly wrong with my digestive system and I wish I didn't need all these supplements, and even with all that I can't eat normal meals. Have to eat protein on without any complex carbs or I'll get bloating and indigestion. When I eat a protein meal I do not take any amylase. When I eat a predominatly starch meal I don't take much protease.

I just finished eating cabbage and 3 oz of tuna. Thats all I ate. Took 4 servings of fiber digesting enzyme (these are good for constipation too) with the cabbage which I ate first. then 3 over the counter pancreatic enzymes and 4 servings of pure protease (an expensive formula) then 7 tablets of cheap papain from papaya plant, then 4 tablets of cheap bromelain from pineapple plant. Its not fun, but thats what I have to do - at least i haven't found any better solutions. If I live like that I get to enjoy an active life ie physical sporting activity :) but social eating forget it :(

Before I go to bed I'm going to have some sticky rice, gluten-free scones, nut butter and avocado, and take a heap of amylase enzymes (8 servings) and one serving of the expensive protease formula

cheers,

Mike

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regardless of whether the pancreas is working or not , even a perfectly functioning human body produces no cellulase fibre digesting enzyme at all. So why would I ever want to take this?

a cow apparently has plenty of this enzyme floating around in the multiple chambers of its stomach. But I'm not a cow living exclusively on grass, although of course I do eat veg. I think a human would die if it tried to live entirely on grass.

I do take a multi-enzyme formula with cellulase and quite a lot of a more sophisticated fibre digesting enzyme which is designed to break down phenols, amines which some ppl are sensetive too (particularly autism sufferers). I don't seem to be bothered by foods containing those chemicals but the fiber digesting effect seems to benefit me. I ran out of my supply of this particular enzyme a while ago and the quality of my number 2 went down, so I know its good for me, plus seems to keep candida under control.

I was thinking perhaps the huge difference between a cows diet and a human is why pancreatic animal extracted supplements (as opposed to vegetable based enzymes) is why they use a pigs pancreas to produce the extract for human consumption? Interesting to note that even a cows body produces no cellulase at all, instead it is produced by the huge quantities of bacteria flora in its stomach chambers. so maybe thats why fiber digesting enzymes benefit some ppl like myself? Helps keep the bacteria/yeast balance in good order.

there are so many different types of commercial enzyme available now.

cheers,

Mike

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I stopped posting here for a while, partly because I was feeling better and partly because I had given up finding out what had gone wrong with me and any improved methods of fixing/coping with digestive failure. I'm really doing the same thing as when I joined this forum. Separating out the carbs from protein and taking massive doses of enzymes. There are two reasons for this - one is that carbs like an alkali digestive environment and amylase enzymes require that, whereas protein likes some initial breakdown with acid and the proteases are happy in acid. So to eat a mixed meal the two opposing requirments start fighting each other. Additionally enzymes are proteins and apparently some proteases are capable of digesting ie destroying the amylases that are needed for carb breakdown. A perfectly function digestive system can cope with all this and just produce all the right enzymes at the right time and no problem with lost enzymes from acid killing the amylases - just produce more replacement enzyme. My system unfortunately copes very badly with this scenario.

I've also given up and restarted requests to Kaiser healthcare to investigate me several times. I don't have scales at home but my lowest weight was recorded at 107 lb with all clothes on (i'm 5' 7 1/2") and I know I got thinner than that :( . I think it was about six months ago that I went to Kaiser (after repeatedly pleading via email messages) to see the gastro specialist.. Eventually he agreed to see me and I weighed in at 120 lb which for me is a big big improvement. I explained how the enzymes had helped me and asked him to prescribe me Creon a brand of prescription only pancreatic enzyme. My reasoning was that if i could achieve that weight gain with over the counter veg enzymes then really powerful pancreatic enzymes like what they give cystic fibrosis sufferers could do better job than the over the counter enzymes I was using?

He said no :angry:

so yes I am much stronger now but far from well, I have to get absolutely everything right, the timing of my meals, everything weighed and calculated and matched to measured quantities of enzymes, or else digestive misery is guaranteed.

I've been well enough to focus on other things too which is partly why I didn't look at this message board, the gastroparesis message board and the enzyme message boards that I subscibred to. The last time I visited kaiser was to attend the minor injury clinic - had difficulty raising my arm above my head. Was diagnosed as having a sprained or possibly partly torn rotator cuff in my left shoulder. They weren't satisfied with my explanation that i fell and wanted to know exactly how I fell, so had to confess that I came off my skateboard from the top of a skateboard ramp and got sent off to x-ray. No fractures, this is sort of relevant to my digestive woes, I've been diagnosed by a scan as having osteopaenia, which must be a result of being calorie starved. But I am slamming concrete from my skateboarding hobby, I'm not saying that I have strong bones but its seems that they aren't really weak either, I've been hitting it hard enough to cause soft tissue damage to things such as hips and elbow, but so far, touch wood, not breaking anything. So low bone densitiy doesn't necessarily mean really fragile bones. On this basis I refuse to take fosamax which was bad for my stomach when i tried it briefly.

cheers,

Mike

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I started on the enzymes about a month ago and I've seen a lot of improvement in a number of areas, from better memory, less brain fog, more energy, more milk (breastfeeding). Enzymes never occurred to me, it was my GI who suggested it, especially after seeing how wasted the inside of my stomach was (he said it looked like what they see in geriatric patients with severe malnutrition and pernicious anemia). I'm taking Ultrase MT 20:)

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..... I'm taking Ultrase MT 20:)

thanks for that info Satori, I just looked up ultrase mt 20, also goes by the brand name Creon which is what I asked for. It was the suggestion of the nutritionist that I go on this . Of all the healthcare professionals I met, the nutritionist was the most understanding of my condition and appreciated just how difficult it is for someone like me to eat sufficient calories. The usual answer to increase weight is eat more - with me this is counter-productive. Eat more => feel sick => can't eat for a long time => lose weight. She wanted to get me off my vege based zymes of which she had no idea of dosing and effectiveness and treat me like a CF patient.

The resulting refusal of the Gastro Specialist to prescribe me creon went something like this:

Mr J My stomach motility has returnede due to going gluten-free, but unless I take my enzyme supplements I fall apart and atlhough I'm bigger I'm still thin. Won't Creon be more effective?

Gastro Doc: I think you are doing alright, normal albumin in blood, thats the first sign of malnutrition to me.

Mr J: But I still need all these enzymes, what makes you think my pancreas is functioning well enough?

Gastro Doc: your elastase test came back normal.

Mr J: I was told I could keep taking my enzyme supplements for that test, so I did but could they have skewed the results?

Gastro Doc: No

Mr J: the test was specifically for human elastase and not just any animal elastase? therefore any supplements I was takinng including my over the counter pancreatic supplements wouldn't have been part of the amount measured?

Gastro Doc: Yes

Mr J: but could it have had an "enzyme sparing effect" in other words all the supplements I was taking meant that all the elastase didn't get used up and therefore measure normal.

Gastro Doc: Hmmm

Mr J: Is it possible that the feedback loop which stimulates my pancreas has gone wrong and that my supplements are stimulating some missing nerve link and telling my pancreas to operate and thats why they work?

Gastro Doc: maybe.

Mr J: but you do accept that I'm struggling and that not everything is right - my bone density tests, my measured hormone levels were all off even though I've recently restored them thru increase in supplements.

Gastro Doc: oh yes, there is clearly something going on there - hormonal I think.

Mr J: but given the good results i've had with vege enzymes wouldn't Creon be worth ago.

Gastro Doc: I can't justify it

Mr J: why not?

Gastro Doc: all your tests came back normal

????

cheers,

Mike

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Can you see another Dr?

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Satori, is your situation such that your pancreas is ok, but the enzymes help overcome other problems?

on the subject of finding another doc the gastro specialist was unresponsive, so I had asked my primary care kaiser doc to prescribe me Creon, but she balked at this request due to inadequate experience in this field. this might partly have been coz when I was suffering from gluten induced gastroparesis, she agreed to prescribe me metaclorocipramide (reglan) another drug with which she had no experience - this drug played havoc with my mental well being! so thats sort of understandable that she didn't want to give in to any request I made. I'm stuck with this gastro specialist.

I've been sent to an endocrinologist - the result of that went something like this:

Mr J: I'm pleased that your are checking out all my hormones but this loss of hormones has happened to me before, I think its lack of nutrition. When I found a way of consuming more food things got back to normal, its just that my eating ability is so degraded now, thats why I think its happened again.

Endocrinologist: ok some of the results are looking suspicious so I'm going to get some extra tests.

Mr J: thanks

2 weeks later...

Endocrinologist: we think your loss of hormones is due to inadequate nutrition.

so many of my tests have come back normal, that they don't want to look at me any more.

got tested by the allergy dept - nothing.

allergy doc did notice one thing not related to allergies though - low chloride. I consume a high salt diet - crave it actually, somewhow my body is leaking chloride.

Allergy doc: you have low chloride, have you tested for cystic fibrosis?

Mr J <whassat?>

results of CF sweat test - leaking chloride but only a borderline amount.

go for CF genetic test - test 25 known CF mutations - negative (but apparently there are lot more possible mutations).

However doesn't really fit as my lung capacity is normal for my size and that function is normally impaired in CF sufferers.

I think I need more knowledge and more possibilities to follow up, before I go back to kaiser or i will hit a brick wall again.

right now I'm doing alright, quite well actually - on a restricted diet and over the counter enzymes, but if I look over the past year I do seem to be needing to take more and more of these which worries me. But right now I've got some breathing space and thinking time. Until recently I haven't been thinking, just getting on with the rest of my life.

cheers,

Mike

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Enzymes are very good for your digestion. I use Enzymatic Therapy's completegest

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I am taking l-glutamine powder, 20mg twice a day, with pro and pre(FOS) biotics.

I found that my blood sugar stablized in a couple days. The sweats stopped and I cleared up the congestion and cough I have been plagued with for years.

I am anxious to see what the doctor says about the other enzymes you folks are taking. He's indicated that the l-glute in these doses is a short term treatment.

He also said that Pancrease MT10 should not be taken for more than a month because it can dirupt normal pancreatic function.

I also take Guza Gum (Benifiber).

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just following on from my previous posts...

I've contacted both my regular doc and the gastro doc about my worsening condition, that way it will be more difficult for the lazy gastro specialist to ignore me.

despite my elastase test coming back normal - this was over 6 months ago. I don't think my pancreas is functioning properly. There are other tests, maybe I can persuade them to do. I am undeniably underweight but coz an initial round have tests have mainly returned normal, the gastro specialist has previously told me to just carry on with my over the counter enzymes.

Mike

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I've gone round in a circle trying to figure out and guess what has gone wrong with me. Originally though enzymes, but found enzyme supplements didn't help much (but thats coz I didn't know much about what are the good ones and how much to use).

suspected too little stomach acid, but drinking vinegar and taking acid capsules didn't help. Doc suspected too much acid so gave me pepsid, that didn't help. Neither of these things made me worse either.

then I discovered that gluten was switching off my vagus nerve and stopping stomach motility (gastroparesis). Like many of the ppl here, I hoped that removing gluten would sort everything out, but it didn't :( Having my stomach motility restoraed to its normal rumbling self is a big help, so i won't go near gluten, but its not the complete answer to my digestive distress. I then chased other possible food intolerances with no result. Absolutely removing milk products had no effect despite the casein anti-bodies. I've been unable to find other intolerances.

so my current thinking is that malabsorption hasn't shown coz when my system has digestive trouble it slows everything down to a crawl until absorbtion/digestion does occur - i've had a history of constipation. Similarly i'm guessing that the quantity of elastase enzyme detected per number 2 read normal coz there was so little throughput in my system so it doesn't take much to read normal.

I recently tried taking pepsin - the stomach enzyme which gets digestion going for protein in the stomach, but that didn't help so i'm now back to suspecting the exocrine function of the pancreas which supplies enzymes to the small intestine.

I've got my appt with the gastro doc later this month and am going to ask for extra tests. Anyone had the secretin test for the pancreas?

Mike

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as many of you would know, its a haphazard process for non experts such as ourselves to search the net for possible causes. I once came across the symptoms of gall bladder problems which seemed to fit. There is a procedure for forcing out possible obstructions called the liver flush which I posted here: my old post on my liver flush experience

this showed that my gall bladder was not obstructed and also the normal colour of my number 2 suggests that bile is flowing freely in my system so another dead end.

I have normal blood amylase levels (not elevated which would suggest pancreatitits), normal bilirubin - these things tell the gastro doc that my pancreas/bile production are ok. I've read about the symptoms of pancreatitis - i don't think i've ever had the pain that is described with those symptoms, not sure i've had any pain at all in that region. There is a current thread on that topic here and pain is mentioned. So I can see why the gastro doc hasn't wanted to investigate my enzyme production further.

But given my very positive response to enzyme supplements, in particular the ones produced by the pancreas, thats what I'm suspecting. But maybe another dead end?

cheers,

Mike

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......

right now I'm doing alright, quite well actually - on a restricted diet and over the counter enzymes, but if I look over the past year I do seem to be needing to take more and more of these which worries me. But right now I've got some breathing space and thinking time. Until recently I haven't been thinking, just getting on with the rest of my life.

cheers,

Mike

shortly after I wrote that my digestive system seems to have taken another backwards step. I ate a snack of nuts for some energy and took with it 2 ZymePrime brand multi enzymes - mainly protease and amylase and not much lipase even though nuts have a lot of fat. But its difficult to find hi lipase multi zymes over the counter and this is a good enzyme product and always worked reasonably with nuts. I spent about 1hr 15min of fairly hard activity in the skatepark which i do regularly so nothing unusual. But I remember feeling unusually tired after that, ate my evening meal and felt fairly dead then, bloating and indigestion set in. This did not go away the next day so I've had to cut back on the fat in my diet - which was never that much, which means less energy :( But yesterday I was feeling good, I've found that 8oz of goat milk, with corn grits and half a banana digests fairly well when I mix in the Garden of Life omega zyme powdered product (4 packed scoops). To that I add Peptizyde brand protease which is meant to be good at breaking proteins which are similar to casein and gluten (although i'm not on gluten of course). I had some more goat milk and grits before visiting the skatepark yesterday and it gave me good energy for an hour or so :)

this gave me the idea that maybe predigested feeding formulas like what they give to those with g-tubes (feeding tubes) or to allergy stricken babies might work. So bought some predigested baby formula from the supermarket today. I had a baby formula milk shake this afternoon and works quite well! I added some zyme prime and it digested well. The fats in that formula are mainly MCT which apparently don't need lipase digestion in the same way. Is unrefined coconut oil like what can be bought from whole foods rich in MCTs? anyway i've been using that instead of nut butters the last few days. So right now i'm feeling reasonable again, but i really don't think i've got any more extraordinary eating possibilities left when my system declines further.

I'm quite annoyed with my gastro doc, about a year and half ago he did an endoscopy which was normal (no biopsy - despite all my symptoms gluten intolerance hadn't occurred to him) as it happens my villi are almsost certainly fine (don't have celiac) but what annoys me is that just coz he couldn't find anything he just told me to go home and carry on despite being very underweight. He had no intention of investigating anything else any further.

cheers,

Mike

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      I am glad you are feeling so much better!  Your posting will encourage others.  Thank you!
    • Last posted 2013 - Improving health
      When I first started this journey, roughly 11 yrs ago with symptoms, I had no clue. Eventually, having no luck with doctors (hypochondriac or psychosomatic), I googled my symptoms over and over looking for something... ANYTHING... that would give me a clue. Among other issues, my insides would not move, I was turning gray, felt like death, and had a persistent cough. I can't remember who but someone had posted on the forum and I found some of my symptoms. Eureka, I immediately began a gluten-free diet to see if it made any difference. Of course that was a journey, not realizing what products contained gluten. Long story shorter – first I went gluten-free, symptoms began to reappear, then it was soy (first organic was okay, then not), symptoms reappeared, took out corn, symptoms reappeared, then it was all grains. So the last couple of years I have been grain-free plus no sulphates. Actually, truth be told, my Celiac pharmacist gave me the recipe for health. I asked her if she liked a certain product. She answered, “I don't know, I have never tried it.” I asked her what she did use. She replied, “Nothing out of a box, a bag, or a bottle.” And that has pretty much been my life for the last couple of years. There is the odd product I try but it always has an after effect and I have to way the consequences against the enjoyment of it. I am one of those who react to 1 crumb in the butter, flour dust in the air, sulphates in anything, sometimes things that don't even seem like they would be a problem, like avocados and blueberries when I am contaminated. January 2016 I began this recitation. It is now May 5th, 2016 - Here I am 4 months later and I feel like screaming to anyone who will listen, “Things are improving!! My gut is healing!!” So what happened?? Someone suggested digestive enzymes. My insides were so compromised that I couldn't eat much besides fruit, veggies, and meat; all plain, all without being touched by people other than me. I could barely stand salt at times when I was compromised. Haven't been to a restaurant in years since I am not in a city that would have one to cater or understand this much of a problem. I started digestive enzymes but I read the label wrong and started with 5 first thing in the morning. Whatever... I began to notice improvements in what I could eat. Not anything different but just that I could eat without feeling ill or having my gut shut down. I stayed on those for a month and a half.. then I picked up a parasite from someone living in a very unclean apartment and visiting there and helping to clean. Well, that was a huge battle. I had to eat to discourage parasites. But in the process my insides began to heal dramatically. I was eating blackberries, drinking garlic keefir (which I couldn't have done 5 mths ago and gave me the first clue my insides had improved substantially), drinking oil of oregano or peppermint oil drops in a glasses of water, eating cabbage and green roughage. Drinking water with apple cider vinegar in it and Aloe Vera juice. After a couple of weeks my insides were a whole different story. I had a feeling of wellness that I hadn't had for years! I FELT like trying to eat something different. So I decided to try Gluten-free Rice Chex. Haven't had them in years.... and I am so happy! I can eat them!! (Not to say they are healthy, cause they are processed crap) but I didn't get sick and that was the amazing part. So now I am beginning to try a few things that would have set me back previously, I have made my own crème brulee because I have always been able to eat eggs. But the sugar was causing problems, but now it's okay. The issue I have now is that I want to try things too fast so I am having to exercise restraint. So here is it – parasites are very common, everyone has them however whether they cause problems depends on your immune system. Does it not makes sense that they would cause leaky gut? An over abundance in the gut would destroy gut tissue and take nutrients from a person and possibly put holes in the gut leading to food reactions? Digestive enzymes help to destroy the protective coating around parasites. Foods that discourage them or kill them are blackberries, garlic, cabbage, oil of oregano, peppermint oil, aloe vera juice, Braggs apple cider vinegar and more (google to find). I found medication didn't do anything so I turned to all the other. So this is how it is today. I don't suggest it is the answer to anyone else's problems but when I found this site, hidden in the posts was the beginning of the answers for me.  I may still be gluten, soy, corn intolerant but I am feeling so good now and I just thought I would tell someone.  I just wanted to share. Thanks for reading.
    • Endoscopy in 9 days after being low-gluten for a year. What to eat?
      Not to mention my hips and knees are killing me and I have really bad calf pains and horrible bloating after just 3 days of glutening. I don't think I could live like this for a whole week.
    • Endoscopy in 9 days after being low-gluten for a year. What to eat?
      I saw my gi today and he said to not worry about eating gluten. I have abdominal pain in the small intestine area and referred pain in my back, indicating pretty bad damage. So I'll just go without the gluten and do the genetic testing if needed.
    • Vagus Nerve Attack
      Hello All: I came across this series of posts from as Google search on "Wheat Vagus Nerve". I find all of your replies very interesting and would like to add mine for those searching for information but with differing symptoms. I have struggled with the vagus nerve impact to breathing as Maria mentioned in the original post, but only an impact to breathing and nothing else.  But my symptoms were brought on not only by wheat, but also by other ingredients such as dark chocolate, probiotics, caprylic acid, mustard, fluoride in toothpaste/mouthwash just to name a few.  I found when I sat down my breathing would return to normal, but as soon I got up, the impact would return. The impact to breathing would come 4-6 hours after ingestion and last for about the same amount of time.  At times I could not even take ten steps without having to stop, not being able to breath even moderately.  The symptoms now are decreasing in severity but not in duration. My doctor checked my blood for celiac and results were negative. A number of chest x-rays to rule out COPD.  I am waiting on an appoint with an allergy specialist in a few weeks to see what they have to say.  Needless to say, it is difficult to maintain a healthy weight. Thanks for your posts, and I hope my contribution is of benefit to others also.
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      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
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      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
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      Hi Peaceflower, Just wanted to say thank you for the chat.
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