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Digestive Enzymes


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#1 Anne AMP

 
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Posted 29 October 2006 - 08:45 PM

Is it OK to take digestive enzymes early in recovery? I have been gluten, corn, rice, soy, milk, nightshade free for one month and still have brain fog, weakness, and a little looseand cannot put weight back on (97 lbs). I am only able to eat a few veggies, chicken and beef and pears - all cooked. I'm afraid that digestive enzymes will be harsh.
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#2 2kids4me

 
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Posted 29 October 2006 - 08:50 PM

What kind of digestive enzymes would you be interested in taking? There are enzymes for panreatic insufficiency. They are needed when the part of the pancreas that produces enzymes does not work.
They are very expensive and not needed if pancreas works fine.

Are there others who have tried enzymes and felt they helped?
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#3 Ursa Major

 
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Posted 29 October 2006 - 08:50 PM

Anne, you may try taking them AFTER eating, rather than before. I heard that they're a lot more effective in people with celiac disease that way. I followed that advice before I discovered that the enzymes I was taking had salicylates, and stopped. But while I took them before meals, they'd give me a stomach ache, and they didn't when I took them after meals.

Also, glucosamine sulfate will help heal your intestines faster. Your diet sounds like mine did for many months. It will get better, hang in there.
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I am a German citizen, married to a Canadian 29 years, four daughters, one son, seven granddaughters and four grandsons, with one more grandchild on the way in July 2009.

Intolerant to all lectins (including gluten), nightshades (potatoes, tomatoes, peppers, eggplant) and salicylates.

Asperger Syndrome, Tourette Syndrome, Addison's disease (adrenal insufficiency), hypothyroidism, fatigue syndrome, asthma

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#4 Anne AMP

 
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Posted 29 October 2006 - 08:57 PM

Is it OK to take digestive enzymes early in recovery? I have been gluten, corn, rice, soy, milk, nightshade free for one month and still have brain fog, weakness, and a little looseand cannot put weight back on (97 lbs). I am only able to eat a few veggies, chicken and beef and pears - all cooked. I'm afraid that digestive enzymes will be harsh.

My pancease works fine. I just read on the internestthat celiac disease heal their intestines faster with digestive enzymes. Wondering if this is true?

Anne, you may try taking them AFTER eating, rather than before. I heard that they're a lot more effective in people with celiac disease that way. I followed that advice before I discovered that the enzymes I was taking had salicylates, and stopped. But while I took them before meals, they'd give me a stomach ache, and they didn't when I took them after meals.

Also, glucosamine sulfate will help heal your intestines faster. Your diet sounds like mine did for many months. It will get better, hang in there.

One web site said Glutamine. Is this similar to glucosamine sulfate? Where can I get this?
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#5 Guest_cassidy_*

 
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Posted 30 October 2006 - 02:35 AM

I take digestive enzymes all the time. I take them with most meals and have found a big difference. My mom is very sensitive and she didn't do well with them but there are lots of people here who take them. I believe mine are enzymedia and they are vegetarian.

I wonder if you have something else going on. I wasn't feeling great after going gluten-free and I had problems with candida, an amoeba, nasty bacteria and almost no good bacteria. If you don't start feeling better you might want to have more tests done.

Also, more than digestive enzymes, you may try probiotics. Good bacteria is especially important to us and that may help you tolerate more.

I hope you feel better.
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#6 Mr J

 
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Posted 30 October 2006 - 09:07 PM

My pancease works fine. I just read on the internestthat celiac disease heal their intestines faster with digestive enzymes. Wondering if this is true?
One web site said Glutamine. Is this similar to glucosamine sulfate? Where can I get this?


there is a theory that proteases (protein digesting enzymes) will clean up ulcerated intestines and act as a a sort of antiseptic to aid that sort of healing, I don't know if thats true. A lot of enzyme instructions come with a warning not to take if stomach ulcers are present - which sort of contradicts that theory. My only personal experience on this matter is that sores in my mouth did heal quickly despite eating powdered enzymes.

another healing theory is that fiber digesting enzymes will kill candida fungus (by splitting the casing of the candida plant) thus allowing a leaky gut to heal better - from personal experience I believe this to be true.

there is another theory that taking starch digesting enzymes will allow the body to feed on the starch carbs instead of feeding the candida. From personal experience I believe this to be true.

there is another theory that by taking enzymes which would normally be produced by the intestinal villi (but are damaged by celiac) then by not feeding bad bacteria more likely to get a good intestinal bacteria balance. I'm not celiac so this wouldn't apply to me, although by getting better digestion plus probiotics i've been able to get a friendlier bunch of bacteria to live in me :)

I don't think that enzymes can help the villi grow back if thats what you read on the internet.

my problems aren't understood (least of all by the docs), all I know is that I need to ingest a massive quantity (20 tablets or so, or the powdered equivalent with one small meal) to remain fit and active (I wither away without them). I agree with Ursula's suggestion that taking them after eating reduces any chance of a stomach ache, I take the enzymes during and after eating.

every one is different, not everyone needs them. Only way of finding out if they help is to try them.

cheers,

Mike
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age 47
enterolab tests
HLA-DQB1*0602, 0604 - sensetivity genes
Antigliadin IgA and Transglutaminase igA positive
Casein IgA positive
primary problem - gastroparesis - paralysis of the stomach
under control with the right drugs

#7 loraleena

 
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Posted 31 October 2006 - 01:07 PM

They help a lot with bloating and stomach pain for me. They only work for me if I take them at the beginning of a meal.
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#8 sspitzer5

 
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Posted 31 October 2006 - 07:43 PM

I've been gluten-free for 1.5 years and just started taking digestive enzymes a few months ago. They do seem to help me.

I read a book called "Micro Miracles" by Ellen Cutler. She says to only take the plant based/vegetarian enzymes because they can survice the acidity of the stomach (or something like that). I'm taking Digest Gold by Enzymedica. The label says no: dairy, soy, wheat, gluten, yeast, nuts, etc.
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#9 bklynceliac

 
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Posted 01 November 2006 - 12:09 PM

just an fyi - my nutritionist advised me that while they could cause no damage, that digestive enzymes were fairly pointless. He said the pancrease produces enough enzymes to break down 15 meals, much less one. Take it or leave it...
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Diagnosed through Enterolab (9.27.06)
Antigliadin IgA 164 (Normal Range <10 Units)
Antitissue Transglutaminase IgA 75 Units (Normal Range <10 Units)
Quantitative Microscopic Fat Score 874 Units (Normal Range <300 Units)
Fecal anti-casein (cow’s milk) IgA antibody 73 Units (Normal Range <10 Units)
HLA-DQ 2,1 (Subtype 2,5)

#10 Mr J

 
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Posted 01 November 2006 - 06:45 PM

just an fyi - my nutritionist advised me that while they could cause no damage, that digestive enzymes were fairly pointless. He said the pancrease produces enough enzymes to break down 15 meals, much less one. Take it or leave it...


well that may be true for the world champion competetive eater! - a young Japanese fellow I believe who can pack away an incredible amount of hot dogs.... but not all of us have that digestive capacity.

your nutritionist is assuming a working pancreas with all the nerve feedback loops in place to make it operate properly. That statement is like saying that a diabetic doesn't need insulin coz the pancreas makes more than enough to cope with glucose in the bloodstream.

I'm not diabetic so i don't need insulin and that specific function of my pancreas works, similarly someone with a perfectly operating pancreas will not need, protease for protein digestion, amylase for starch and lipase for fat. But for example the pancreas does not produce lactase for milk sugar - that is the job of the villi. So would your nutritionist say that a celiac who has had villi flattened would not benefit from lactase supplements coz the villi produce more than enough lactase?

my villi aren't flattened and seem to produce the enzymes for digesting sugars very well - i know this coz if i ingest fruit juice or something similar on an empty stomach i get an immediate burst of energy with no bloating.

However if I attempt to eat meat or starch without proteases or amylases digestive misery is guaranteed for me :(

not everyone needs them - I do

cheers,

Mike

PS I visited a nutritionist who was very enzyme supplement aware and dealt with cystic fibrosis patients (blocked pancreas ducts) so allthough their pancreases can make enzymes it gets blocked from reaching the small intestine. CF patients take about 20 animal based enzymes per meal.

also enzymes can damage - cause intestinal damage - this is known from observing cycstic fibrosis patients taking large quantities of pancreatic (animal product) enzymes. The long term effects of plant based enzymes (which is mainly what I take) is not known as far as I can find out. But I want to live a reasonable life now and am not prepared to wait until more complete knowledge is available, so I take large quantities of them now. The alternative for me is that I will get very very thin without them
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age 47
enterolab tests
HLA-DQB1*0602, 0604 - sensetivity genes
Antigliadin IgA and Transglutaminase igA positive
Casein IgA positive
primary problem - gastroparesis - paralysis of the stomach
under control with the right drugs

#11 Mr J

 
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Posted 02 November 2006 - 06:36 PM

I know loraleena said the enzymes need to be taken at the start of the meal and ursula suggests the opposite. I agree with both suggestions! To me its not contradictory coz of the different types of enzymes. I dose myself with the following categories of over the shelf enzymes

1. fiber digestive enzymes eg cellulase. this can be taken at the start without stomach irritation and I think its most effective at controlling candida when done that way. Enzymes such as beano say they have to be taken at the start, same with lactase (but I'm not lactose intolerant so I don't need this) they will not stop the bloating if taken at the end apparently.
2. amylase starch digesting enzymes - I find this works best for me if I either mix in the powdered form with the food to get an even delivery from the start, or munch the chewable tablets at regular intervals from the start of the meal. They don't seem to irritate my stomach.
3. protein digestive enzymes proteases or protelytic enzymes are the ones that have the potential to irritate my stomach. So I mix in powdered enzyme with my food and due to the large quantity I need take some protease tablets at the end of meal

the amylase enzymes that I have seen and use all have some protease and lipase enzymes mixed in too. Something has gone horribly wrong with my digestive system and I wish I didn't need all these supplements, and even with all that I can't eat normal meals. Have to eat protein on without any complex carbs or I'll get bloating and indigestion. When I eat a protein meal I do not take any amylase. When I eat a predominatly starch meal I don't take much protease.

I just finished eating cabbage and 3 oz of tuna. Thats all I ate. Took 4 servings of fiber digesting enzyme (these are good for constipation too) with the cabbage which I ate first. then 3 over the counter pancreatic enzymes and 4 servings of pure protease (an expensive formula) then 7 tablets of cheap papain from papaya plant, then 4 tablets of cheap bromelain from pineapple plant. Its not fun, but thats what I have to do - at least i haven't found any better solutions. If I live like that I get to enjoy an active life ie physical sporting activity :) but social eating forget it :(

Before I go to bed I'm going to have some sticky rice, gluten-free scones, nut butter and avocado, and take a heap of amylase enzymes (8 servings) and one serving of the expensive protease formula

cheers,

Mike
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age 47
enterolab tests
HLA-DQB1*0602, 0604 - sensetivity genes
Antigliadin IgA and Transglutaminase igA positive
Casein IgA positive
primary problem - gastroparesis - paralysis of the stomach
under control with the right drugs

#12 Mr J

 
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Posted 04 November 2006 - 09:48 AM

regardless of whether the pancreas is working or not , even a perfectly functioning human body produces no cellulase fibre digesting enzyme at all. So why would I ever want to take this?

a cow apparently has plenty of this enzyme floating around in the multiple chambers of its stomach. But I'm not a cow living exclusively on grass, although of course I do eat veg. I think a human would die if it tried to live entirely on grass.

I do take a multi-enzyme formula with cellulase and quite a lot of a more sophisticated fibre digesting enzyme which is designed to break down phenols, amines which some ppl are sensetive too (particularly autism sufferers). I don't seem to be bothered by foods containing those chemicals but the fiber digesting effect seems to benefit me. I ran out of my supply of this particular enzyme a while ago and the quality of my number 2 went down, so I know its good for me, plus seems to keep candida under control.

I was thinking perhaps the huge difference between a cows diet and a human is why pancreatic animal extracted supplements (as opposed to vegetable based enzymes) is why they use a pigs pancreas to produce the extract for human consumption? Interesting to note that even a cows body produces no cellulase at all, instead it is produced by the huge quantities of bacteria flora in its stomach chambers. so maybe thats why fiber digesting enzymes benefit some ppl like myself? Helps keep the bacteria/yeast balance in good order.

there are so many different types of commercial enzyme available now.

cheers,

Mike
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age 47
enterolab tests
HLA-DQB1*0602, 0604 - sensetivity genes
Antigliadin IgA and Transglutaminase igA positive
Casein IgA positive
primary problem - gastroparesis - paralysis of the stomach
under control with the right drugs

#13 Mr J

 
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Posted 04 November 2006 - 07:14 PM

I stopped posting here for a while, partly because I was feeling better and partly because I had given up finding out what had gone wrong with me and any improved methods of fixing/coping with digestive failure. I'm really doing the same thing as when I joined this forum. Separating out the carbs from protein and taking massive doses of enzymes. There are two reasons for this - one is that carbs like an alkali digestive environment and amylase enzymes require that, whereas protein likes some initial breakdown with acid and the proteases are happy in acid. So to eat a mixed meal the two opposing requirments start fighting each other. Additionally enzymes are proteins and apparently some proteases are capable of digesting ie destroying the amylases that are needed for carb breakdown. A perfectly function digestive system can cope with all this and just produce all the right enzymes at the right time and no problem with lost enzymes from acid killing the amylases - just produce more replacement enzyme. My system unfortunately copes very badly with this scenario.

I've also given up and restarted requests to Kaiser healthcare to investigate me several times. I don't have scales at home but my lowest weight was recorded at 107 lb with all clothes on (i'm 5' 7 1/2") and I know I got thinner than that :( . I think it was about six months ago that I went to Kaiser (after repeatedly pleading via email messages) to see the gastro specialist.. Eventually he agreed to see me and I weighed in at 120 lb which for me is a big big improvement. I explained how the enzymes had helped me and asked him to prescribe me Creon a brand of prescription only pancreatic enzyme. My reasoning was that if i could achieve that weight gain with over the counter veg enzymes then really powerful pancreatic enzymes like what they give cystic fibrosis sufferers could do better job than the over the counter enzymes I was using?
He said no :angry:

so yes I am much stronger now but far from well, I have to get absolutely everything right, the timing of my meals, everything weighed and calculated and matched to measured quantities of enzymes, or else digestive misery is guaranteed.

I've been well enough to focus on other things too which is partly why I didn't look at this message board, the gastroparesis message board and the enzyme message boards that I subscibred to. The last time I visited kaiser was to attend the minor injury clinic - had difficulty raising my arm above my head. Was diagnosed as having a sprained or possibly partly torn rotator cuff in my left shoulder. They weren't satisfied with my explanation that i fell and wanted to know exactly how I fell, so had to confess that I came off my skateboard from the top of a skateboard ramp and got sent off to x-ray. No fractures, this is sort of relevant to my digestive woes, I've been diagnosed by a scan as having osteopaenia, which must be a result of being calorie starved. But I am slamming concrete from my skateboarding hobby, I'm not saying that I have strong bones but its seems that they aren't really weak either, I've been hitting it hard enough to cause soft tissue damage to things such as hips and elbow, but so far, touch wood, not breaking anything. So low bone densitiy doesn't necessarily mean really fragile bones. On this basis I refuse to take fosamax which was bad for my stomach when i tried it briefly.

cheers,

Mike
  • 0
age 47
enterolab tests
HLA-DQB1*0602, 0604 - sensetivity genes
Antigliadin IgA and Transglutaminase igA positive
Casein IgA positive
primary problem - gastroparesis - paralysis of the stomach
under control with the right drugs

#14 Satori

 
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Posted 04 November 2006 - 11:30 PM

I started on the enzymes about a month ago and I've seen a lot of improvement in a number of areas, from better memory, less brain fog, more energy, more milk (breastfeeding). Enzymes never occurred to me, it was my GI who suggested it, especially after seeing how wasted the inside of my stomach was (he said it looked like what they see in geriatric patients with severe malnutrition and pernicious anemia). I'm taking Ultrase MT 20:)
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Me: 30
gluten-free since 2000 due to breastfeeding reactive child, found out 1 yr later when I tried eating wheat again I had the same problem and all my health issues came back! Happily went right back to gluten-free diet)
+ DNA test, multiple markers
osteopenia & severe dental damage from long term malnutrition

dd: 6
gluten-free since 4 months old due to severe gluten reactivity (diarrhea and cramps from mom eating gluten and getting it though breast milk)
+ DNA test
Never had a Twinkie and thinks fresh fruit is to die for!:)

dd: 5 months, awaiting DNA testing, mommy got glutened and I got diarrhea!

12 family members with celiac (mix of biopsy dx's and known reactivity to gluten)

#15 Mr J

 
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Posted 05 November 2006 - 08:41 AM

..... I'm taking Ultrase MT 20:)


thanks for that info Satori, I just looked up ultrase mt 20, also goes by the brand name Creon which is what I asked for. It was the suggestion of the nutritionist that I go on this . Of all the healthcare professionals I met, the nutritionist was the most understanding of my condition and appreciated just how difficult it is for someone like me to eat sufficient calories. The usual answer to increase weight is eat more - with me this is counter-productive. Eat more => feel sick => can't eat for a long time => lose weight. She wanted to get me off my vege based zymes of which she had no idea of dosing and effectiveness and treat me like a CF patient.

The resulting refusal of the Gastro Specialist to prescribe me creon went something like this:

Mr J My stomach motility has returnede due to going gluten-free, but unless I take my enzyme supplements I fall apart and atlhough I'm bigger I'm still thin. Won't Creon be more effective?

Gastro Doc: I think you are doing alright, normal albumin in blood, thats the first sign of malnutrition to me.

Mr J: But I still need all these enzymes, what makes you think my pancreas is functioning well enough?

Gastro Doc: your elastase test came back normal.

Mr J: I was told I could keep taking my enzyme supplements for that test, so I did but could they have skewed the results?

Gastro Doc: No

Mr J: the test was specifically for human elastase and not just any animal elastase? therefore any supplements I was takinng including my over the counter pancreatic supplements wouldn't have been part of the amount measured?

Gastro Doc: Yes

Mr J: but could it have had an "enzyme sparing effect" in other words all the supplements I was taking meant that all the elastase didn't get used up and therefore measure normal.

Gastro Doc: Hmmm

Mr J: Is it possible that the feedback loop which stimulates my pancreas has gone wrong and that my supplements are stimulating some missing nerve link and telling my pancreas to operate and thats why they work?

Gastro Doc: maybe.

Mr J: but you do accept that I'm struggling and that not everything is right - my bone density tests, my measured hormone levels were all off even though I've recently restored them thru increase in supplements.

Gastro Doc: oh yes, there is clearly something going on there - hormonal I think.

Mr J: but given the good results i've had with vege enzymes wouldn't Creon be worth ago.

Gastro Doc: I can't justify it

Mr J: why not?

Gastro Doc: all your tests came back normal

????

cheers,

Mike
  • 0
age 47
enterolab tests
HLA-DQB1*0602, 0604 - sensetivity genes
Antigliadin IgA and Transglutaminase igA positive
Casein IgA positive
primary problem - gastroparesis - paralysis of the stomach
under control with the right drugs




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