Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Could I Have Celiac?
0

3 posts in this topic

Hi,

I just found this board after doing some research on the internet and am wondering about Celiac.

I am 40 years old, just dx'd with MS this year and as of last year, suddenly came up with some fairly bad reactions to foods (eggs being the worst culprit. Over the past two years, I had a feeling that I was allergic to breads, pasta etc. but was tested and had no allergy to yeast, wheat, soy, corn etc. My question is: what I've noticed is that after I've eaten bread or pasta, lots of crackers or cereal, etc., it is as if my whole digestive tract just shuts down. I bloat up, to the point where my heartbeat is painful in my belly and you can actually SEE it! I get foul foul gas, constantly fight constipation, fell poorly in general, indigestion...just general "stomach stuff". I also, about 1.5 years ago, suddenly started losing weight (80 lbs of it). That weight loss has stopped, but I eat like a horse now and never gain a pound. I had blood tests, an abominal CAT scan with a barium swallow and dye...nothing. Then I hear about this and start looking at the symptoms and I'm really wondering......... I have weakness, numbness and tingling also, but with the MS that can be expected. Does this sound at all like Celiac? I am going in for some allergy tests next week (inahalants and foods) and am wondering if I should ask for this also.

Sorry so long, thanks for your time.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi Jaycee30,

Welcome to the board! :)

I think that it certainly would not be a bad idea to ask for the testing. I do know that some people have had good luck getting tested by an allergist, but the allergy doctors around my area don't seem to have any clue about Celiac Disease. One thing that stood out in your symptoms (at least to me) was "I bloat up, to the point where my heartbeat is painful in my belly and you can actually SEE it!". I can totally understand that one! That happened to me so many times before. It was the strangest feeling. Many of the symptoms you described do sound like they could be gluten related. Make sure you print up a list of what tests need to be ordered, just in case the doctor is willing, but isn't quite sure of what to order. I've had this happen to me before and it always helps to be prepared. If you aren't sure what those exact tests are, here is a list:

*Tissue Transglutaminase IgA Autoantibodies

*Gliadin IgA Antibodies

*Gliadin IgG Antibodies

*Endomysial IgA Autoantibodies (this is often considered to be the same as the Tissue Transglutaminase IgA so sometimes only one is done)

*IgA - Total Serum (very important to check for IgA deficiency, which would alter the test results)

*Reticulin IgA Autoantibodies (not used very often anymore)

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Not a doctor, not an expert, but if everything else is coming up negative so far, I'd say you should definately look into getting testing for Celiac Disease. In my non-expert opinion, I'd say ask to be tested for it too. Or demand! Depending on how your doctor is, lol.

The loss of weight, inability to gain it, and feeling worse after eating more gluten makes it sound possible though.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,883
    • Total Posts
      919,472
  • Topics

  • Posts

    • I'm actually scared to go to the doctor and could use some advice
      Well, if I were you, I would go see your doctor and talk to him/her about all this.  Tell your doctor about your anxiety. When I finally did, my doctor prescribed a low dose of an anti-anxiety med and it has made a world of difference in my life.   About the whole thing with the B12 and the weird symptoms . Keep taking the B12 in the meantime to see if that helps again. But talk about it anyway.  If you want a celiac test, ask for the panel to be done. Your doctor may or may not want to send you to a GI for that. Remind him your mom is being tested. You do not have to wait for her results.  Work with your doctor if possible and if not, maybe find a doctor you can work with. If all you end up needing is b12, that's a good thing. If you end up needing more help, starting with your doctor and a heart to heart Talk will have you going in the right direction.
    • gluten free, oat free, egg free breakfast ideas needed for 6 year old
      If she misses the hot cereal then try quinoa or amaranth as an alternative to oatmeal
    • I'm actually scared to go to the doctor and could use some advice
      I suspect I am dealing with vitamin deficiency, but I'm afraid that if I go to a specialist they're going to think I have MS. As a person with pretty bad health anxiety, I can't bring myself to make the appointments I know I should make. I presented to my GP about 9 months ago with fatigue and a bizarre tingly feeling in my lower left leg. I was also suffering digestive distress, but I've lived with that off and on my whole life, so that was the least of my worries. My blood tests showed that my B12 level was 280. They didn't turn up any other issues, but then again she did not order any other vitamin level tests, only thyroid and routine bloodwork. She called my B12 level "on the low end of normal" and put me on oral supplements. When we retested 6 weeks later, it was 1100 and she told me to drop it back because that was too high and too much B12 can cause health issues, too. I'm confused by that because I've read that it isn't possible to take too much. I started a new career in a new town, and simultaneously began to feel better. The fatigue went away first, followed by the tingling and other stuff. Still plagued by both extremes of digestive distress. Maybe I should also mention that I was diagnosed with GERD at age 29 and have been on PPIs for 10 years. At that time, nobody ever mentioned investigating my GERD at such a young age, just put me on the pills and said stay on them. A gastroenterologist concurred after a very brief office visit. Well, I can be bad about taking my medicines, so I got off the B12. I figured maybe my earlier issues were stress-related. Now my symptoms are back, but worse. I have tingling and some aching in the leg. I have a sensation in one spot on my upper arms like the skin is burning, but no rash or redness. I have the C extreme of digestive problem, only alleviated by taking lots of magnesium citrate capsules. Sometimes I feel easily chilled, like waves of goosebumps. I am working to get off the PPIs in case they are inhibiting my absorption of vitamins. My mom has had really bad IBS all her life, plus eczema, headaches, etc. I'm back on the B12 for about 5 days but have experienced no relief yet, however I do remember that it took about 2 months to feel better the last time. Getting ready to move, on top of being really scared about these health issues, is making me crazy. I'm only 40 years old!!! Here are my questions: 1. Do I go back to the GP and ask her to order a celiac blood test? I know NOT to go off gluten until I am tested. 2. Do I ask for a referral to a neurologist or gastroenterologist instead? 3. Do  I wait until my mom's gastro appointment next month, when she plans to ask for a celiac blood test? See if hers is positive? 4. Do I keep driving myself insane with the worry that I have a degenerative illness? Can anybody identify with any of this at all? 
    • Eeek confused! Positive biopsy, negative blood test???
      I would hope they would check for the other reasons for the endoscopy results.  A GI might not check for all of those so you may need to check with your regular doctor to start that process.
    • Depression / anxiety issues
      The second link I gave you was to a series of online video courses, you can try those for free to see if its something you think might help. There are also a lot of worksheets you can download, the first link had some I think but there are plenty of others out there if you search online.  Finally I had another look and found this: http://www.getselfhelp.co.uk/step1.htm  Which looks like a decent 7 step program Obviously its not as good as a dedicated session with a CBT counsellor, but the above may give you some tools you can use, especially when your thoughts are spiralling into a destructive circle. You could also search to see if there's any group sessions in Melbourne, that's how the NHS delivers it, they would be cheaper and there's really no need for one on one CBT, because it's more about delivering knowledge of the toolset. I approached it very sceptically but found it of some use, although at the time I was still under the gluten influence so it never tackled the root problem. The game changing aspect of discovering this is that you now know why the psychologist sessions didn't hit the mark, how could they when the root of your depression was your illness? My sessions now are far better and more enjoyable than when I was under a gluten fog.  Aside from all this the other advice holds, eat well, exercise, get sunlight every day and the longer you're on the diet the better you should get.  Oh and at least NI put up a hell of a fight in the Euros, hope you got to see that down under!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,928
    • Most Online
      1,763

    Newest Member
    Timea
    Joined