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Irregular Cycle
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Has anyone experienced really long menstrual cycles? I was on the pill for many years and then was diagnosed with celiac. I went gluten free and then a few months later went off the pill. I didn't have my period for a few months and had to take progesterone to get it started. Now I get it only about every 37 days (sometimes longer, sometimes shorter) and it is barely there. I am curious if this happened to anyone and if you ever got regular and/or pregnant?

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have you tended to be anemic along with being celiac? I am- and once I started taking daily iron supplements, everything straightened out....

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I have the opposite problem, I get it 2x a month for about 9 days each time, I was always regular until my last child, it took about 16 months to become regular again, then when I went gluten-free, it is all crazy again, I don't even know when to expect it anymore, or how long it will last, and when I do have it, it comes and goes 2 days here, then gone a day or 2, for about 9 days. I haven't asked my dr. about it yet, but will next time I see him. anyone experience this before?

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Alison, I was wondering how long you have been gluten-free, as well as off the pill? I took birth control pills for about 5 years and then stopped taking them. I didn't have a period for about 6 months and then had one about every two months and then they slowly worked their way to somewhere around a month(give or take a week). I got pregnant about two years after I stopped taking the pill, and after I resumed mentruation following the pregnancy I have been regular (every 27-29 days). This was all before I knew I had celiac disease and before I even knew what gluten was. I have heard that gluten can mess with your cycle, and I think it did for me, until after my first pregnancy, now I think it just makes my headaches and cramps worse during my period. Gluten free is the best way to live! And although I feel tired all the time on gluten I have never once tested anemic, only borderline, when I'm pregnant.

Mariann

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I do FAM, so I chart, and know when I ovulate. Honestly, if I accidentally ingest much gluten in the few days before I ovulate, my body goes "hey, there, I don't like poison" and holds off on the ovulation - thus delaying my period. (Kinda annoying... really...)

Tiffany

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hello

:rolleyes:

i'm new to this board. when reading your comments a question popped into my head.

are you sure your pill is gluten free? have you checked the ingredients? i phoned the company in the end to absolutely be sure before i started taking it.

hope this helps. n.

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    • Hi! I received my "official" celiac diagnosis last week. I had an endoscopy last month that was originally looking for ulcers and h. pylori, but they did some biopsies of my duodenum since they were in the neighborhood and the biopsy came back "consistent with Celiac's disease" and later. They urged me to get my blood checked and follow up with my primary doctor. My blood work came back negative, but my doctor was confident it's Celiac so told me to stay away from gluten. I've been completely gluten free (or to the best of my knowledge) for 2 weeks now, and my results are mixed. At first, I felt great! My stomach was no longer CRAZY bloated once I stopped eating pasta and bread, my acne started healing, and the red rash on the back of my arms started to fade. That was the first few days. Lately, though, my acne is once again flaring up and I've been SO EXHAUSTED. I feel so tired all the time. Even now I have fatigue in my head, limbs, and I could hardly walk or move my body earlier today. I'm overweight and I like to go to the gym, but what used to be an easy workout for me is kicking my ass! I used to go to the gym and tear it up: HIIT on the treadmill followed by 40 minutes of heavy weight lifting. Now I can hardly finish 3 reps in my first set without feeling like a nap. I can't run anymore because my body feels clumsy and heavy. Also, I'm still bloated. I don't suffer from painful, acute bloating, but I struggle to pass gas and I look like I have pregnant belly. I think I'm also retaining water all over my body, and I'm not sure if that's normal? For whatever reason, I have this belief that water is mainly retained in the core and not arms, legs, and face. Anyway, I'd love to hear what you have to say/what you've experienced. Is this typical to first going gluten free?
    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
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