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Stomach Pain
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My daughter, 15, had a celiac reaction to something (we're really not sure to what, she's been so careful) two days ago. This is the first one in a long time, so we're lucky, but... her stomach always seems to hurt her for 1-2 days after she gets sick (throws up). Does anyone know why it hurts, or anything that works to settle it down faster (her doctor doesn't seem to have any answers about this). Any tips or ideas would be much appreciated.

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I don't have the answers, but a friend suggests peppermint tea. I don't have gluten reactions that cause me to throw up, but I do get migraines and take Motrin, it is a pain reliever and anti inflammatory so maybe that could help too?

Sorry your daughter is hurting. We moms hurt when they hurt don't we?

Best Wishes, Rian

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Lauriel: This is my unmedical, but very personal interpretation from reading everything about celiac disease and painful reactions:

When we celiacs ingest gluten, our bodies create antibodies to that gluten. However our small intestinal villi also try to ingest that gluten protein like other nutrients. So the antibodies attack both the gluten and our own intestinal villi. That causes bloating, gas, cramping and either diarrhea or constipation, albeit somewhat delayed, because of time for digestion (my reactions start 3-5 hours after ingesting gluten). So even after all the antibody attack and reactions, our intestines may be sore for DAYS afterwards. With gluten I tend to have one day of bloating and gas, one day of dull cramping pain, one day of EXCRUCIATING pain, and then another day of cramps and another day of bloating and gas (5 days of HELL :o ). Thereafter I just feel sore for a while.

However, those undigested gluten proteins (called peptides or gluten digests after combining with digestive enzymes) can also leak from the intestines into the blood stream and affect ANY part of the body. That's why there are many other symptoms and diseases associated with celiac.

If your daughter has diarrhea, there are non drug or supplement remedies like coconut (does she like coconut macaroons?) and taking Calcium Citrate. In another topic on this board, many have found 'drug' diarrhea remedies often contain gluten. For constipation, more gluten free fiber and liquids work. (I've learned many laxatives contain either sorbitol which can cause cramping or forms of gluten). However, I've found that peppermint or chamomile tea (very strong and LOTS of it) as well as yoga or pilates positions emphasizing the stomach/abdomen help with bloating, gas and cramping. Also just getting out and walking around helps. ;)

BURDEE

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    • It only takes a minute to make a difference. Celiac disease has been overshadowed by the gluten-free diet fad. Getting diagnosed and staying healthy is no piece of cake – those of us who have celiac disease struggle to stay healthy. We need better. We need to be understood. We need a cure. View the full article
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    • Advil (ibuprofen) is gluten-free, but can be a stomach irritant, especially if taken on an empty stomach. That said, I will also place my bet on the garlic and onions. As Raven said, eating more than once a day may also help. An empty stomach is likely to be an irritable stomach.
    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
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