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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Flair Ups
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14 posts in this topic

Does anyone ever experience a flair up in symptoms regaurdless if they have been glutened, because I know my biggest symptom is naseau and tummy rumbling and just plain out feeling like garabge and the big DD, but I know for a fact that I have not been glutened. My symptoms just flair up for no good reason I always think anyway... Does anyone know what im tlking about? How do you cope it is so frusterating.

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Kiki:

Every one reacts differently. So you won't get one answer.

Gluten is every where and to me, it's almost impossible to not get glutened as best you try.

As careful as I am. I work in a gift store, gourmet store for fun. We have designer beer, scone mix and lots of gluten stuff. I ring it up, I lick my fingers to get out the pretty tissue for the pretty bags.....

It is soo easy to get zapped. We don't live in balloons, and for goodness sake, I hope that none of us do.

We just need to be as careful as we can be. :)

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absolutely. the hardest thing for me has been so many random flare-ups making me feel like I'm just as sick off gluten as I was when I was eating it daily. In my personal experience, the frequency of seemingly inexplicable flare-ups decreased drastically when I 1)eliminated dairy 2)began taking Colestid and 3)got some anxiety meds for the days I knew were going to be tricky. Something in that combination has made a big difference for me. Probably a bit of each.

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eggs sometimes make me nauceous also some of the gluten free flours do the same thing, if you are eating any gluten free crackers, breads that is probably your problem...

try Lundberg Rice Chips and Rice cakes

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What you think are celiac disease flare ups could very well be symptoms from intolerances other than gluten. You may want to consider the possibility of having other intolerances, and maybe do an elimination diet.

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How long have you been gluten-free? I've only been gluten-free for a month and a half and I get symptoms out of the blue, mainly because my intestine's only begun to heal and many of the symptoms from malabsorbtion are similar to the symptoms I had from gluten (bloating, gas, etc.). Even as I'm typing this I'm feeling a bit queesy and I'm not sure if it's from Gluten or just a reation to the food not being digested properly. My usual course is to just sit it out. For me, it passes pretty quickly which makes me think it's not gluten. But as has been noted above, everyone is different.

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Ive been gluten free since April.. i guess thats still very new. I may have other intolerences I just dont know what I would eat if I got rid of other things you know its so limited that if i egt rid of anything else Ill be living off of fruit and veggies. Yuck , boring! But i understand were your coming from I think I may try it. Thank You

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I would think that you are eating something bad if you are having those symptoms. Sometimes it is hard to figure out what caused it, but I would think there is always a cause.

I'm pretty sure that I don't do well with chocolate, potatoes, tomatoes and oranges, however they don't make me feel terrible and I haven't decided to cut them out totally yet. It has taken a while to figure all that out and I'm still in denial.

You might want to keep a food diary so you can see if these "random" events have a pattern. If they make you feel as bad as gluten, I would think you would want to cut them out. Or maybe you are being glutened by cc or you have a cosmetic or something that you forgot to check but don't use everyday. It does take a while to get rid of everything.

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I can totally relate to flairups. And it seems like I haven't been eating anything bad.

I stopped with Gluten in May, but I am sure I have gotten cross contaminated bunch of times because there were so many things I didn't know had it and I used the same pots and pans as the rest of the family.

So I really only started in October. (Stopped with Dairy in June and Soy in October too.)

As far as I know I have no more intolerances, but I am wondering about Corn and Egg... I really hope not though, cause like you said, what is there left to eat?!?!?

(I have allergies too.)

I seem to do well for a week or so and then BAM! I get sick for a week. The last two times it was after I ate Corn Chips and Brownies (it was free of everything bad but egg). I don't know if I got cross contaminated by the Corn Chips and if it was the Egg or the Chocolates in the brownies.... I get sick for a week when it happens. Or it takes me a week to get back on track. It is really bad. Grr...

But I do have other times when I have been totally clueless on why I got sick. I live in a house that is full of Gluten... :(

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I can totally relate to flairups. And it seems like I haven't been eating anything bad.

I stopped with Gluten in May, but I am sure I have gotten cross contaminated bunch of times because there were so many things I didn't know had it and I used the same pots and pans as the rest of the family.

So I really only started in October. (Stopped with Dairy in June and Soy in October too.)

As far as I know I have no more intolerances, but I am wondering about Corn and Egg... I really hope not though, cause like you said, what is there left to eat?!?!?

(I have allergies too.)

I seem to do well for a week or so and then BAM! I get sick for a week. The last two times it was after I ate Corn Chips and Brownies (it was free of everything bad but egg). I don't know if I got cross contaminated by the Corn Chips and if it was the Egg or the Chocolates in the brownies.... I get sick for a week when it happens. Or it takes me a week to get back on track. It is really bad. Grr...

But I do have other times when I have been totally clueless on why I got sick. I live in a house that is full of Gluten... :(

I have only know for a month that I have this disease. I have had it for along time due to all the symptons though. I have been so strict on this diet and YES I am too having some bad flare ups!!! I think it is due to time and healing. Not only that if you have much stress in your life like I am right now it will make you feel like crap! Get to feeling better!

I have only know for a month that I have this disease. I have had it for along time due to all the symptons though. I have been so strict on this diet and YES I am too having some bad flare ups!!! I think it is due to time and healing. Not only that if you have much stress in your life like I am right now it will make you feel like crap! Get to feeling better! Valerie

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Anything with soy and lactose can cause the same intestinal symptoms as gluten does for me. I have dh and hairloss along with intestinal symptoms when I eat gluten. Sometimes the dh will flare up and I worry that I accidently ate gluten but I think it's more likely the iodine.

I do believe you can be as gluten free as possible. You have to be very careful about what goes in your mouth especially your fingers!!

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absolutely. the hardest thing for me has been so many random flare-ups making me feel like I'm just as sick off gluten as I was when I was eating it daily. In my personal experience, the frequency of seemingly inexplicable flare-ups decreased drastically when I 1)eliminated dairy 2)began taking Colestid and 3)got some anxiety meds for the days I knew were going to be tricky. Something in that combination has made a big difference for me. Probably a bit of each.

Just wondering why you started taking Colestid? I had my gall bladder removed this past May because my specialist was sure that was my problem. This was before I knew I was gluten intolerant. Needless to say I got much worse afterwards -- my food flew right through me and was not digested AT ALL. I am doing much better on the Gluten-free Casein-free diet but I still have these days where I get random flare-ups. It usually starts with a rather pronounced pain in the area where my gall bladder used to be. Within 5 minutes I need to find a bathroom. It's not diahrea anymore but it's still pretty urgent and I pass a lot of stool :( It really gets me down because I can never figure out what I am eating (if anything) that causes this. I think it has something to do with no gall bladder. Do you still have your gall bladder?

Thanks,

Marlene

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Same thing here. I have been gluten free for a year and a half. I will be doing great for two weeks or even a month and then I feel as if I have been gluttened and it takes me a week to get better. It is VERY frustrating. I am going to quit using shampoo with wheat in it and see if this helps. I also haven't replaced my pots, but I think I will. SOmeone else mentioned my can opener.

I also eat too much dairy and that could be a problem, but that is frustrating, because I am already vegetarian and for weeks at a time I can eat dairy without a problem, so I don't feel that is the problem.

Sometimes I think it is companies that aren't being very careful about CC. I read somewhere that they did a study and up to 25% of companies were not following rules for CC issues for allergies.

For some reason I have had the hardest time accepting that I am SO ultra sensitive, but it does seem to be the case. I am SO much better since I quit eating out completely.

I have a house full of gluten too and still cook gluten food.

Yesterday I didn't eat anything weird that I knew of. I was starving and had a pizza made out of Kinnikinnick bread. My stomach hurt so bad and major indigestion after eating it. I didn't overeat, so I don't know. It is VERY frustrating when you try SO hard and for me I will be doing so good and then BAM! It really sucks.

I also read that some adults can take up to 2 years to fully recover after being gluten free.

Hope you figure it out and I do too!

MOnica

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Same thing here. I have been gluten free for a year and a half. I will be doing great for two weeks or even a month and then I feel as if I have been gluttened and it takes me a week to get better. It is VERY frustrating. I am going to quit using shampoo with wheat in it and see if this helps. I also haven't replaced my pots, but I think I will. SOmeone else mentioned my can opener.

I also eat too much dairy and that could be a problem, but that is frustrating, because I am already vegetarian and for weeks at a time I can eat dairy without a problem, so I don't feel that is the problem.

Sometimes I think it is companies that aren't being very careful about CC. I read somewhere that they did a study and up to 25% of companies were not following rules for CC issues for allergies.

For some reason I have had the hardest time accepting that I am SO ultra sensitive, but it does seem to be the case. I am SO much better since I quit eating out completely.

I have a house full of gluten too and still cook gluten food.

Yesterday I didn't eat anything weird that I knew of. I was starving and had a pizza made out of Kinnikinnick bread. My stomach hurt so bad and major indigestion after eating it. I didn't overeat, so I don't know. It is VERY frustrating when you try SO hard and for me I will be doing so good and then BAM! It really sucks.

I also read that some adults can take up to 2 years to fully recover after being gluten free.

Hope you figure it out and I do too!

MOnica

I have been thinking about if it is even possible to get fully recovered in a house with gluten in it... I live with my husbands family right now and the house is full of it. Crums in the kitchen 24/7, the grandkids (who are here every week day) don't wash their hands very well so there are sticky stuff everywhere, they bathe the little girl in Aveeno Oat stuff and do not rinse it of, my mother in law uses hand lotions with oat all the time... It is just hell for a gluten intolerant it seems.

But even if one do not live in a house that is quite as full of it, it seems hard still. Especially if one is sensitive (seems like I am too).

I have decided not to eat anything processed in a non-gluten/soy free factory for a while. Seems the stuff that is made in a dedicated factory is the only stuff I can get away with so far. I have gotten sick from Corn Chips, Creme of Rice.. other stuff that I can't remember now. It is scary to try new stuff now.

Interseting to hear that 25% fail to follow the CC rules. But I believe it. I have worked in a coffee warehouse and I know how bad it can be there.. I have two friend that has worked with food in factories too. One worked with potatoe chips and the other at one of the Taco places. It was pretty bad they said. None of them eat that stuff now.

Sure ain't easy. :(

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