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Celiac.com Celiac Disease & Gluten-Free Diet Forum: Who Else Takes... - Celiac.com Celiac Disease & Gluten-Free Diet Forum
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Who Else Takes...
Zelnorm??
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Posted 05 November 2006 - 11:17 PM
I know I mentioned this in my last post but nobody's replied since so I'm gonna put this in a separate area so everyone sees it...
Like I had said, I have now been prescribed Zelnorm which WILL drive me completely broke!! ($150/month, no drug plan covers it)...
My pharmacist said it'll probably take a month before my mody accepts the meds...
The side affects listed are:- headache
- diarrhea
- abdominal pain
- nausea
- flatulence
- dizziness
- back pain
- flu-like symptoms (fever, muscle ache, fatigue, headache and/or cough)
Since I started these yesterday I've definitely had more diarrhea than normal, and gas, and back pain, and a fever...
Has anyone else had side affects from Zelnorm? and how long did they last for you???
~ lisa ~
...Flames vs. Panthers, and Lifehouse, were best experiences OF MY LIFE!!...
...26 years old...
...Look in my forum profile for ways to read my public sports articles...
R.I.P. Uncle Gus (Sept. 21, 1971 - Oct. 2, 2004) ... R.I.P. Baba (Oct. 12, 1911 - Feb. 28, 2006) ... R.I.P. Uncle Lawrence (Aug. 7, 1943 - Jan. 4, 2009)
...Medical history no longer allowed on here...
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Posted 06 November 2006 - 02:33 AM
Lisa: what reason does insurance give you for not covering it? (I am asking only in event I can help you to get them to at least pay something towards it.) I do insurance as my job.
Husband has Celiac Disease and
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003
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Posted 06 November 2006 - 06:27 AM
I took Zelnorm for a while. I am not a huge fan of it. For most folks I've talked to, it just gives you D. Have you tried psyllium/fiber supplements? I would exhaust the more natural options first, if you haven't. Psyllium works better for me than Zelnorm ever did...
~~~~~~~
Jen
Indianapolis, IN
gluten-free since Feb 2005
dairy-free
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Posted 06 November 2006 - 07:49 AM
Use Citrucel for IBS-D or C. IT's amazing.
Amanda
Positive TTG 9/05
Positive endoscopy 9/05
Doing well with "Sprue"
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Posted 06 November 2006 - 09:15 AM
I'm in Canada, theres no such thing as insurance  We have things called drug plans, where you can apply to be covered for 65% of any prescription expenses. Some certain things just arent covered.
I dont actually have IBS-D or IBS-C. He's just giving me this for pain relief because I said that Buscopan doesnt help me any (and I can tell Zelnorm is much stronger because it REALLY knocks me out literally speaking of course).
I'm supposed to be on it for 3 months so I'm not gonna quit it but yeah the diarrhea/tiredness/fever/headache/back pain really sucks I tell ya -- more excuse to miss class for the bathroom i guess 
~ lisa ~
...Flames vs. Panthers, and Lifehouse, were best experiences OF MY LIFE!!...
...26 years old...
...Look in my forum profile for ways to read my public sports articles...
R.I.P. Uncle Gus (Sept. 21, 1971 - Oct. 2, 2004) ... R.I.P. Baba (Oct. 12, 1911 - Feb. 28, 2006) ... R.I.P. Uncle Lawrence (Aug. 7, 1943 - Jan. 4, 2009)
...Medical history no longer allowed on here...
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