Latent Celiac - I Guess That's What You'd Call It.
Posted 14 August 2004 - 07:07 AM
Guest_~wAvE WeT sAnD~_*
Posted 14 August 2004 - 07:53 AM
Posted 15 August 2004 - 12:11 PM
I do not have an official diagnosis and I will not go back on gluten to try to get one. The two months back on gluten made me so sick it took a good 4 months to start feeling better and even now, eight months later, I am still having problems digesting other foods. I am definitely gluten intolerant and I am not willing to spend my life being sick waiting to get "full blown" Celiac. I carry the genes and react to gluten, that is a diagnosis in my mind.
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 15 August 2004 - 04:03 PM
A month ago, during my physical, I asked to be screened again. I wasn't having any symptoms (that I recognized as such - now I think I may have had symptoms for a few years, perhaps on and off). The Tt IgA came back as 124 this time - anything over 30 was again a moderate to strong positive. The other 3 tests were negative. I had an endoscopy last week, and some evidence of "scalloping" was seen. I'm waiting for the biopsy results, but after all I've read on these posts, I'd be quite surprised if it was negative.
But then again, I haven't seen much on the endoscopy itself, only the biopsy.
So, so far I'd say it looks like I did develop Celiac. I'm not gluten-free, never have been, but will go gluten-free upon receiving the biopsy results.
Is there any reason to wait?
Or, since only one blood test was positive, should I not be so sure it is Celiac?
Maybe this is the wrong area to be posting these questions.
Posted 15 August 2004 - 04:26 PM
My understanding is that the tTg is the most specific... especially to damage. If it would help, you could probably do a web-search on that test and you can pull up a ton of studies and articles. Your mother has it, which is a pretty good indication that you're geneticallly pre-disposed. Sometimes those blood tests are strange and the more I learn the more I have found that there are seldom who have all positive... however, they have still benefited greatly from going gluten free. It is also not uncommon for your not to be experiencing the typical celiac symptoms... there is such a thing as silent celiac, yet it doesn't mean that your body is not being adversly effected. It's great to hear that such screening & studies are being taken place and that they found you
Posted 16 August 2004 - 02:32 PM
Well, it's official - the biopsy results are positive. I think they were a little suprised at my reaction - I took it as good news, because now I can move forward! (Ok, I am having a "send off" tonight and having a beer or two.)
So, I can now answer your original question: [QUOTE]those who had even a slight positive in any of the blood tests were not counseled to go on a gluten-free diet ... did they develop full-blown celiac later in life?
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