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What Am I Reacting To?!
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9 posts in this topic

hello, all! hope some of you still remember me -- i've been doing a lot of stuff for school and haven't been here as much as i used to.

i just finished some Chik-fil-a Waffle Fries and my stomach is cramping. lightly, but still uncomfortable. it's not the first time it's happened (right, i should've stopped after about the second time it occurred -- but it's about the only thing i can eat on campus and i'm always starving after finishing all the things i've brought for my 9 hours on campus!). but these fries are fried in a dedicated frier (i've asked) and they should be safe. i don't react to oil or potatoes in other contexts. can anybody give me any insight into what i'm reacting to? i don't think something gluteny could have fallen into my fries every time, and i'm not that sensitive (that i know of), so i'm guessing this is something else.

thanks for your help! :D

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My guess would be that your stomach is just reacting to the fried food. Since I no longer eat much fried food, I know it kind of messes with my system when I eat fried stuff or real heavy food. Hopefully that is all it is.

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I've reacted twice to Chick Fil A fries. I'm thinking it is a cc issue. I'm just getting over the last one which was 2 1/2 weeks ago. Never again for me.

I thought I wasn't sensitive, too, until my last 2 glutenings which had to be from tiny amounts.

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I've reacted twice to Chick Fil A fries. I'm thinking it is a cc issue. I'm just getting over the last one which was 2 1/2 weeks ago. Never again for me.

I thought I wasn't sensitive, too, until my last 2 glutenings which had to be from tiny amounts.

Karen - glutened from which one? Braker? 290? I've been safe at both...

Otherwise, it's possible about cc, it's always possible. I also had an upset stomach after not eating fried food for a long time, though...

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Do you eat or drink anything else there? I would guess cross contamination if you get sick every time you eat them or that your stomach doesn't like the oil.

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Karen - glutened from which one? Braker? 290? I've been safe at both...

Otherwise, it's possible about cc, it's always possible. I also had an upset stomach after not eating fried food for a long time, though...

Braker both times. All I had was the fries and a lemonade. Both times I could feel my stomach hurt afterwards. Then this last time I also had brain fog, fatigue, and moodiness. That is the only questionable thing I ate in the 2 weeks before and after that. (Everything else was made by me with trusted brands.)

It doesn't happen to me every time but it lasted so long this last time that it just isn't worth it.

I didn't give them the celiac talk about not touching my fries with their gluteny hands. I just ordered them like a "normal" person. Do you ask them to be careful?

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thanks, everybody, for your replies! i have never asked them to be careful... i guess that's something to think about, but i'm not very good at it... maybe it is just the reaction to fried stuff, because usually i only order the fries and nothing else. haven't been back yet. :)

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Little question....do they use the same oil to fry their fries that they've used to deep fry battered Chicken?

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chick fil a is supposed to use "dedicated" fryers (fryers that are only for their fries, and not the chicken). many restaurants are supposed to do that. Many times they do. But, many of us have gotten sick from them....so, obviously it is not always the case.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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