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New To This - A Few Questions
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I was actually diagnosed with celiac disease in 1998 but after a misunderstanding between my PCP and myself (I hadn't realized that he had tested me, let alone that the results were very positive), and because I was pretty much symptom free, I did not take on the gluten-free diet at that point. Now, after losing my 23w old fetus and nearly my life to pneumoccal sepsis, my previous celiac disease diagnosis has come back to the forefront. I just started the diet 2 days ago and seem to be doing okay - my family eats a wholesome diet with much cooked from scratch so I am hoping with keeping an eye out, we wil manage.

I am worried about accidental exposures though through flavourings and coloring etc. For example, do I have to worry about any sodas? I am also wondering about food prep. The rest of my family are staying on a regular diet for now (we are in the process of having my 2 young children tested). Do I need to worry about touching pasta that may be cooked for them, or cereals that I serve them? What about my breadmaker? It has been previously used with wheat flour, do I have to trash it, or will a thorough cleaning do? It seems to me like a stupid question, but I just don't want to miss anything. I am sick and tired of being so utterly exhausted and really want this diet to work for me.

I also enjoy baking but was quite overwhelmed at the store yesterday trying to work out what gluten-free ingredients I needed to have in. There are so many different flours ... I would mainly be making cookies with my kids and probably some bread for me. What ingredients should I make sure I have in my cupboards?

Thank you so much

Heather

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Heather,

I have been on a gluten-free diet for 22 years but only recently realized the dangers of cross contamination. I have my own toaster now, my own pans for cooking. I have gotten rid of all the wooden spoons and plastic spoons and teflon pans which could have contamination.

As far a baking there was a mixture of rice flours on this site a couple of days ago I believe from Connie. You use equal parts asian flour (fine) glutenous flour, and a regular rice flour and substitute that mix for flour in your cookies etc. I did it yesterday for toll house chocolate chip cookies and I took them to a BD party for my niece and no one knew they were gluten-free until I told them. You can purchase the asian rice flour and the glutenous flour at an Asian Market and the cost is much more reasonable then at the health food stores.

You must be very careful using the same mayo, peanut butter etc, as your other family members may have used those products and contaminated them. I really didn't think this was possible until I was having problems and when they tested my blood it showed an elevation of gluten levels. Since I have been more careful they have dropped below 20.

I hope this helps a little, I am sure more people will give you suggestions to help you. Hang in there.

Kathy, NJ

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I've heard about some "Bob's Red Mill" (or similar) flour...this way you don't need many different flours. One common baking ingredient is xanthan gum, but I would suggest using mixes at the beginning -- some of them can be really delicious and amazing.

Kathy made some good cross-contamination suggestions. Get new pots, pans, toaster oven, wooden spoons, collander, etc. You do need to be conscious of what you touch. If you're making a gluten-free and regular pasta at the same time, make sure that a utensil you use to stir the regular pasta doesn't touch the gluten-free one. Don't put anything in the microwave or on a countertop--use a plate. Don't double-dip anything (cream cheese, butter, pb, jelly....don't remember if this was mentioned). Finally, don't eat anything that you question. I don't cook gluten-free...well, don't cook beyond using mixes, so I can't really help, three. Good luck.

-celiac3270

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I've been gluten-free for a couple months now and I'm finally getting a handle on what I like/don't like. It takes a lot of experimenting. The best bread I've made so far is a variation of the four flour recipe in Gluten Free Gourmet by Bette Hagman. It has tapioca flour, corn starch, garfava flour (made with garbaonzo bean and fava bean) and I use glutenous rice flour rather than sorghum flour for the fourth flour. I also had to adjust a bit for elevation by using a little less water. But the bread tastes like high-quality white bread, good texture and taste. You can modify it by adding raisins and cinnamon, or by adding onion powder and sprinkling dehydrated onions on it, etc and so forth. Only by experimenting will you find what works for you.

As for the bread machine- I found that most gluten-free bread works better if you don't use the bread machine. Typically gluten-free bread works much better with just one rising rather than two, so I just use our bread machine to make wheat flour bread for the family and I make my own bread in a pan by hand.

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    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
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