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Cnn Special On Celiac Tomorrow ?

Judyin Philly

By Judyin Philly
in Publications & Publicity

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Judyin Philly Enthusiast
Judyin Philly
Posted

HI ALL

JUST GOT THIS ALERT ON GOOGLE..

Quote:

Here is advance notice that CNN will be doing a live television broadcast on celiac disease this coming Monday:

CNN Newsroom with Heide Collins

Monday, November 13

11:30 am EST

ANYONE KNOW ANYTHING ABOUT IT?

HOPE IT'S TRUE

JUDY

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  • Replies 114
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happygirl Collaborator
happygirl
Posted

hadn't heard anything, but that is great! I'll be at home, watching!

thanks, judy!

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jerseyangel Proficient
jerseyangel
Posted

Wow Judy--thanks for letting us know--I'll be watching. (Gotta write myself a note....) :D

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Canadian Karen Community Regular
Canadian Karen
Posted

Thanks Judy!

E-mail me a reminder - I don't want to miss it!

Hugs.

Karen

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jaten Enthusiast
jaten
Posted

That's great! Gonna set the DVR :)

Judy, how do you have your Google Alerts set so that you received this? I just started Google Alerts today, and I think I set it for keyword: Celiac, and "news" as the media I am interested in.

Thanks for the info!

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Judyin Philly Enthusiast
Judyin Philly
  • Author
Posted

YOU KNOW--I HONESTLY CAN'T REMEMBER HOW I DID IT!!!

celiac3270 TAUGHT ME THE FIRST TIME AND JEN VAN DID IT FOR ME THE LAST TIME MY EMAIL CHANGED.

MAYBE SOME ONE KNOWS HOW IT WORKS.

SORRY

JUDY

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Canadian Karen Community Regular
Canadian Karen
Posted

They just mentioned it on CNN! They will be having an expose on Celiac Disease this morning!!!!

They just said that they want people to e-mail their questions now to cnn regarding celiac disease!! They also said they will be talking to a leading doctor in celiac disease!

Can't wait!

Karen

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Canadian Karen Community Regular
Canadian Karen
Posted

cnnnewsroom@cnn.com

They said that's where you send your questions too...... if anyone is interested.

Karen

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Guest nini
Guest nini
Posted
cnnnewsroom@cnn.com

They said that's where you send your questions too...... if anyone is interested.

Karen

but I already know it all... why would I need to ask any questions??? LOL!!!! ;)

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jerseyangel Proficient
jerseyangel
Posted

:lol: Nini--you're funny! I'll bet we could contribute a thing or two B)

I'm so excited about this--I set the TIVO, but of course plan to watch it live.

It's still 11:30--right Karen?

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Guest nini
Guest nini
Posted
:lol: Nini--you're funny! I'll bet we could contribute a thing or two B)

I'm so excited about this--I set the TIVO, but of course plan to watch it live.

I've got the vcr set to record it... Hubby said I should e-mail them and ask about the conspiracy theory of since all wheat is technically genetically modified and the Catholic church only accepts wheat in the host, is the Catholic church behind keeping Celiac under wraps??? LOL...

I told him, uh no... that's just silly...

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Lisa Mentor
Lisa
Posted

:( I have a funny feeling that it's going to get bumped :(

at least at the 11:30 seg.

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Lisa Mentor
Lisa
Posted
:( I have a funny feeling that it's going to get bumped :(

at least at the 11:30 seg.

Just heard a bleep, and very glad to be wrong. :D

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Nantzie Collaborator
Nantzie
Posted

This is SOOO cool!!

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Lisa Mentor
Lisa
Posted

Celebrity on Board!!!!! Yes

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Canadian Karen Community Regular
Canadian Karen
Posted

Awesome! She stated she has celiac disease! Finally, we have someone coming out to say they have it! Hurray!

Karen

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Corkdarrr Enthusiast
Corkdarrr
Posted

I thought they did a pretty good job - I'm happy the CNN news anchor has Celiac!

(Not happy that she has it, but happy that someone in the media spotlight came forward and talked about their own experiences!)

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jerseyangel Proficient
jerseyangel
Posted

That was great!!! My husband just happens to be home today, and he thought so, too.

I love how Heidi said that now they will scream it out so people will know about this. Wow :D

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Judyin Philly Enthusiast
Judyin Philly
  • Author
Posted

just watched and it was good. sounds like she might be doing more on this since she has it herself.

wish they'd addressed the 'over-weight' w/ celiac part.

Lisa, were there to be additional segments you know about?

judy

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Corkdarrr Enthusiast
Corkdarrr
Posted

I do think the picture of the third world child was dramatically unnecessary...I wish they'd focused more on all the different symptoms and how they manifest themselves. But I'm glad they talked about misdiagnosis and how slack this country's physicians are.

Skipping class today was totally worth it to hear about Celiacs on a major news network! :P

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Deej Newbie
Deej
Posted

This was a very refreshing experience. It seemed to me that Heide and her physician are determined to bring this to the public's attention (and keep it there!). I was so gratified that he had the statistics about how many of us are misdiagnosed (and for so many years!). It was also important that they focussed on the damage that can be done by not being compliant. Bravo to CNN!

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Guest nini
Guest nini
Posted

It was good, any publicity is good, but Peter Green is one that still sticks to the biopsy as gold standard, AND he stated equivocally that if you get hives from gluten you can't have Celiac, that is just not true. Also, I wish they had done more about the obesity aspect.

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Nantzie Collaborator
Nantzie
Posted

Wow!!! The only thing I didn't like was Dr. Green saying it was the gluten-free diet was difficult. I don't think it is at all, as long as you eat at home. I guess it might be different for someone like the anchorwoman, who I"m sure was used to eating out quite a lot.

Maybe we can get her to do a segment in the future on all the yummy gluten-free foods out there.

Other than that, I thought it was amazing.

Nancy

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Lisa Mentor
Lisa
Posted
just watched and it was good. sounds like she might be doing more on this since she has it herself.

wish they'd addressed the 'over-weight' w/ celiac part.

Lisa, were there to be additional segments you know about?

judy

Don't think so Judy, I just thought it might get bumped for this live news conference.

L

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AmandaD Community Regular
AmandaD
Posted

Guys - I missed it - who was the celeberity with celiac?

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