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Lactose Intolerance Vs. Celiac
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I'm just trying to figure out what is wrong with my husband... exploring all possibilities...

I am trying to find out also if there is a forum for discussion for lactose intolerance like this forum for celiac disease.

My husband tells me that milk soothes his stomach, so I don't know what to think. One of his aunts is lactose intolerant...

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kathy,

We discuss a lot of related issues at times.. you are certainly welcome here. The answer to whether lactose intolerance & gluten intolerance display similar symptoms... the answer is yes.... the reaction is just due to a different thing. Gluten intolerance is A LOT more serious than lactose intolerance though.. and he should see a doctor about getting tested. Also, lactose intolerance could also be present as a side-effect of the damage of gluten intolerance, so it's not unusual to see both. It really is important for your husband to see a doctor... he should have some things ruled out... just in case ;)

Good luck!

Gretchen

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I think the symptoms can be the same or different depending on the person.

My reaction to milk/dairy is Severe and sudden. Lots of gut wrenching pain and about an hour in the head. After about 2 hours the pain is done and I feel better.

Gluten is more sneaky with me. Prior to being diagnosed I would have never guessed it was gluten that was causing most of my problems. Delayed reaction or no obvious symptoms at all. I ate a DD muffin and coffee every morning for 5 years and was not sick for weeks at a time. That was up to last year when I got really sick everyday from just about everything I ate.

You should really have your husband checked out by a doc. There are so many things that can cause GI symptoms (assuming that

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Kathy,

Lactose intolerance can be tested for at the gastro's office. It's a device that you breathe into a few times and it measures something in breath. Several years ago gastro tested my husband like this, and he passed the test. My husband is celiac and I am severely lactose intolerent. I have been lactose intolerant for about 26 years - as soon as I hit my twenties I developed it. I am the only person in my family that has it. Go figure. Milk/dairy with lactose in it never soothes my stomach. Actually when I look at dairy that has lactose in it, I know how sick I'll feel afterwards and I reject it.

The serious gut diseases that would give symptoms like lactose intolerance would be, and are not limited to: celiac, Crohn's, intestinal cancers and pancreatic cancer. These should not be fooled around with. Any diarrhea lasting over a week should be investigated, even if the diarrhea comes and goes for weeks. The diarrhea in the early stages of pancreatic cancer is intermittant like that - which would give he patient the idea that whatever they had went away or it was only stress that gave them the stomach ache/diarrhea. Diarrhea from intestinal cancers are the first sign - that's why it should not be ignored or taken lightly. Pancreatic cancer is sneaky like that, many doctors have a hard time diagnosing it until it's too late. A blood test for liver/pancreatic function would be the first step. I don't want to put the fear of God into you, but I have lived thru a husband with celiac and a father with pancreatic cancer; the pancreatic cancer followed almost the same track as the celiac did, same symptoms: maldigestion and malabsorption with diarrhea.

Best wishes for a speedy diagnosis.

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
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    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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