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Dr. Fasano Is Coming To Richmond, Va

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Name: Dr. Alessio Fasano from The Center For Celiac Research

Date: 09/19/2004, Sunday

Time: 2:30 PM

Place: Trinity United Methodist Church - 903 Forest Avenue


Dr. Fasano is a leading researcher in celiac disease. He is the Co-Director of the University of Maryland Center For Celiac Research. After the release of the multi-center study on celiac disease, Dr. Fasano organized the American Celiac Task Force. Dr. Fasano will be discussing celiac disease "Where We Were, Where We Are, Where We Are Leading?"


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I wanted to write a follow-up to my visit to the Richmond GIG today with Dr. Fasano guest speaking.

If I can say anything, it was a wonderful experience being around fellow celiacs & gluten intolerants. Many brought baked gluten-free goodies and there was lots of literature, etc. If you ever have the chance to visit a support group, I'd highly recommend it... it was quite fun and there were tons of people from a broad age spectrum.

Dr. Fasana spoke about how the celiac diagnosis has evolved through the years.. whether it be in understanding of the cause, symptoms or diagnostic testing. It was a very interesting and informative time. I personally had no idea how important HLA typing is and how this should be done along with the other celiac diagnostic tests. This is genetic testing for DQ2 & DQ8. He also spoke a lot about the research that his organization is doing and it's all very exciting.

Here are some celiac prevalence ratios that you may or may not have heard:

In healthy individuals: 1:133

In symptomatic individuals: 1:40 (now this one just amazes me!!)

In 1st degree relatives: 1:22

In 2nd degree relatives: 1:39

The good thing is that I pretty much knew most of what Dr. Fasano was discussing... it's amazing how much you learn here!!



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Wow... there is virtually no statistical significance between chances of having celiac from having a second degree relative and from having symptoms. That is _fascinating_ and likely has some significant implications. I'll have to try to find the original paper!


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