Interpreting Test Results For 2 Yr Old Dd
Posted 16 August 2004 - 02:46 PM
We are still waiting on the genetic tests. Meanwhile, my DD has been having several screaming tantrums, very unusual, but she is 2 so it's hard to know, and sometimes her belly looks pretty bloated (pregnant looking) but it's hard to tell for sure. So I guess we continue gluten and run through more test again later.
Anyone have feeback on the results? Am I understanding them? My husband talked to the Dr.
Posted 17 August 2004 - 06:32 AM
Posted 17 August 2004 - 07:39 AM
So now we wait for the genetic tests which will be about 1 1/2 weeks.
And if that comes back positive the dr will want to do an endoscopy, but I have concerns about making sure that she consumes gluten long enough for that to be accurate.
Everyone asks about symptoms since consuming gluten, and all I can say is that it is hard to tell. I expected her to get more obviously sick. Her stool has been sometimes formed sometimes not, maybe a little constipated sometimes. The main thing are that she seems more clingy, wants to be held and putting her head in my lap a lot, and really hysterical tantrums (during which she extends her arms to be picked up then starts hitting at me when I get near her), and generally hitting a lot more. Everyone say, well, that's normal at age 2, but it's not typical for her, and it all coincides with gluten consumption. And even with being exceptionally verbal, I really don't believe she can tell me how she really feels in words. But overall she is doing ok still.
Posted 17 August 2004 - 04:17 PM
My daughter lost her hair after 3 solid weeks of no solid movements early last winter. She is very moody, has screaming fits like she doesn't know how to stop. I know she is 2 (nearly 3 now) but it is not normal. She also doesn't sleep well. Her Antigliadin levels were high in bloodwork but no Ttg. We went through with the biopsy for our dd; only to be told all is normal. I hoped the doc was right, went back to a normal diet (we had not gone gluten-free but cut way back) Now after 2 weeks of all loose stools, despite what the doctor says, we went gluten-free a few days ago.
In retrospect, if I had done the gene test and she had the gene and I had seen improvement on the diet; I would not bother with the biopsy.
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