Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Can You "outgrow" Symptoms?
0

4 posts in this topic

Hello,

I'm hoping someone can help me. My husband of 12 years has mentioned he was diagnosed with Celiac's Disease as a young boy. He would become violently ill with diarrhea and vomiting anytime he ate the typical grains associated with the disease. However, he also said that he 'forced' the grains on his body in an attempt to gain a tolerance. Today, at age 33, he is completely symptom free and enjoys a normal diet.

My concern and awareness has risen dramatically since the birth of our son 7 months ago. I know the disease has a genetic predisposition, so I am trying to educate myself as much as possible to be on the look-out for any symptoms in our son. However, after doing much reading, no where in the literature have I found that a person will "outgrow" the symptoms. I understand that a person can show initial symptoms late in life; but can a person show symptoms at a young age, have them disappear later in life while eating a normal diet, and still have the disease. If so, taken from the reading, my husband should stop eating these grains immediately for his own health, even though no symptoms are present.

I have a feeling he may have been misdiagnosed as a child and perhaps had a childhood allergy to these grains. Does anyone know if that is possible?

Thanks for your help!

Cynthia

0

Share this post


Link to post
Share on other sites


Ads by Google:

Cynthia,

It is possible to "outgrow" the SYMPTOMS of celiac disease, but NOT the disease itself! I have read in Kids with Celiac Disease that there is often a "honeymoon period" during late childhood and adolescence when the symptoms appear to vanish--only to return later in a different guise. When this happens, the "new" symptoms are often wrongly attributed to a different disorder, such as IBS. The bottom line is that even if your husband shows no (obvious) symptoms now, his body IS still being damaged by the gluten he is eating! You are right that he should switch to a gluten-free diet immediately (but good luck convincing him of this!).

If your husband was diagnosed as a child, it would probably be a good idea to have him tested again using the latest methods--including a gene test. You could also have your son tested for the gene, so you know whether he MAY develop celiac disease at some point.

I hope this helps, and welcome to the board!

0

Share this post


Link to post
Share on other sites

I reacted to wheat as a child with vomiting and diareah. Doctor told my mother I would grow out of it, which I did. She tried it again later and I was able to tolerate it. I was fine until my mid twenties when I got oral lichen planus. Dentist said some get it... nothing to be done... try a different tooth paste. I was fine until about age 30 when I got this nice patch of psoriasis on my shin. Doctor gave me a cream and said it might get better, but never heal. He was right. I managed until about age 33 when I lost my thyroid. Doctor put me on synthroid - been there ever since. Through my twenties and thirties, lots of stomach trouble - thought this was what life was like; didn't know any different. Fast forward age 43, went for annual thyroid blood test... came up anemic. Doctor sent me to GI. GI gave me blood test. Antibodies were very high. Went on gluten-free diet that day. Two weeks later I KNOW what it's like to feel really good for the first time in my life. Moral: You can't know what you haven't experienced. I thought I felt good for 43 years, now I really know.

0

Share this post


Link to post
Share on other sites

The dermatologist's and allergist's all told my Mom "She'll just outgrow that miserable rash and all of those allergies". Well, now I'm 69 years old and they got worse instead of better. The doctor is NOT always right. Shirley

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,667
    • Total Posts
      921,670
  • Topics

  • Posts

    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,665
    • Most Online
      3,093

    Newest Member
    tridoc927
    Joined