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Hubby Finally Getting Help!
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Hi there, this is my first post. My hubby has been diagnosed with IBS and panic attacks and mild agorophobia. Well, his panic attacks are trigered by his stomach problems, so after much procrastination, I convinced him to go to the new doc we have. Well, he was not much help-he did everything but the celiacs test-but his test came out being odd anyway, so they had him come back in. His potassium levels were high, his CO2 levels were low and his ALT and AST levels were boarderline high. So...instead of doing the dang test we wanted, they tested him for hepatitis of all things.

We finally convinced the doc to send him to a gastroenterologist. He was awsome! Yesterday was hubbys first visit and the doc was really nice and said he suspects celiacs as well-but he was also concerned about the possibility of Chrone's. So, he did an extensive blood test for about 8 different conditions/diseases, but we dont the results back for TWO weeks!! I hate waiting!

Besides the fact that my hubby has a huge number of the symptoms of celiacs, our daughter, who has been basically gluten free for the last month, has had huge improvments just in this short time. She is NOT completely gluten free-she still has the occasional bread product-but her chronic constapation is gone, she is off of laxatives, she has started babbling for the first time, she is extremely close to walking-she wouldnt do anything but crawl until the last two weeks-and she seems much less fussy. I dont know if I will have the heart to put her back on gluten to get her tested if her daddy comes back positive.

Anyway, I think I am well prepared if hubby does have it-we have already decided to all go gluten free if he does and I have already started trying gluten free products. Anyway, this is my little-long-intro! Thanks for reading!

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Your hubby might consider eliminating yeast for his IBS.

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Welcome littlemonkeys,

I am glad that your husband is getting the help he needs in finding out what is wrong with him. If he does have Celiac Disease, please try to find a pediatric GI for your daughter (or the same one your husband sees if he sees children). You don't want to keep her 100% gluten free before testing, but I know how hard it is to watch the little ones suffer. I have three kids and for the past two years have fought for my own diagnosis, and then for my kids. I couldn't get any doctor to test them before I was diagnosed, since we didn't have a "family history" of celiac disease and their symptoms are atypical. <_< I now know that most celiacs have atypical symptoms and have finally gotten them to see a wonderful ped.GI at our local children's hospital. He is wonderful and will not stop looking until he knows what is wrong with my kids. He want's a 100% yes or no diagnosis. Which is what I want. Too many of us are passed off as you probably don't have celiac disease. :unsure: Well I for one needed a definite answer. I couldn't even get the doctors to test me, they said I didn't have it just based on my symptoms. I wouldn't accept that and now I know for sure that I DO have it and am gluten free. I feel so much better now! I just recently had to do a gluten challenge for the biopsy, and I am also waiting for my results. I don't like playing the waiting game either. I'm doing it with my kids blood test results and with my biopsy results...

Good luck in a quick diagnosis for your hubby! :)

God bless,

Mariann

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    • Annual celiac antibody testing is, in my opinion (and based on what celiac researchers have published), is critical, especially for a 12 year old.  Life is going to get harder for her.  Peer pressure is huge (I have a 15 year old daughter), and remaining diet compliant can be tough.   In Dr. Fasano's, Gluten Freedom, he discusses a young patient who became ill in high school after being gluten free for years.  His parents were perplexed.  Dr. Fasano took the young man aside and he confessed that while on a date, he didn't want to bring up his celiac disease.  So, he ate pizza.  He was too embarrassed to tell his parents.   My daughter does not have celiac disease.  She was first tested two years ago.  Since she is symptom free, is not anemic and her other lab work is fine, we'll wait to test her in another year.  It all depends on the patient, but every few years, testing is recommended for all undiagnosed first-degree relatives.   It certainly sounds like your younger children should be screened.   I wish you both well!      
    • Perhaps you should consider asking for a GI referral.  You might just skip the blood tests and go directly to an endoscopy/biopsies while you are still consuming gluten.  It is the "gold" standard for a celiac diagnosis anyway!   Here's the deal with going gluten free.  You can do it.  It costs nothing, but you must give it six months or longer.  You'd need to think like a celiac, but it can be done!  I'll tell you my tale.  My hubby went gluten-free 15 years ago per the very poor advice of his GP/PCP and my allergist.  After a year of mistakes and learning, he got well.  It worked!  Thirteen years later, I was formally diagnosed.  (It was a shock as I was only anemic at the time.)  Hubby would be the first to say that I have had way more support from family, friends and medical.  I must say, it's nice to see those lab results.  It really helped me adhere to the diet in the beginning too.   So, you know your medical situation.  You must do what's best for you!   I hope you feel better soon!  
    • I'm sure going to have a long talk with my doctor.  Then I'll find a new one that will support me and make sure that my daughter and I both have the proper testing done yearly.  
    • also:  glutendude - i don't get it.  shouldn't it be glutenfreedude?  lolz i eat out few and far between.  most of the times i've been glutened it's been eating out.  this weekend i'm getting my bacon cheeseburger on at red robin  i always get my 'good' waitress - lucky, i guess, paula takes good care of me   and i will eat at bonefish but they have a limited 'safe' menu.  look for places that have the 'GiG'  training they know their stuff.  mellow mushroom, melting pot, california pizza kitchen, pf changs are all supposed to be trained that way.  they know to avoid cc and change their gloves, etc.  
    • I have Common variable immune deficiency (CVID) which has impaired my IgA and my IgG. I have infusions monthly for immunoglobulins. I had a blood test for celiac which showed negative however, I have nearly every celiac symptom. Everything else I have been tested for and believe me I have been tested. Kidneys, Gallbladder, emptying studies, and on and on have all been o.k.    I did go partially gluten free once a long while ago and I did feel better. I wonder if I just go gluten free if it would make a big difference. 
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