Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Hubby Finally Getting Help!
0

3 posts in this topic

Hi there, this is my first post. My hubby has been diagnosed with IBS and panic attacks and mild agorophobia. Well, his panic attacks are trigered by his stomach problems, so after much procrastination, I convinced him to go to the new doc we have. Well, he was not much help-he did everything but the celiacs test-but his test came out being odd anyway, so they had him come back in. His potassium levels were high, his CO2 levels were low and his ALT and AST levels were boarderline high. So...instead of doing the dang test we wanted, they tested him for hepatitis of all things.

We finally convinced the doc to send him to a gastroenterologist. He was awsome! Yesterday was hubbys first visit and the doc was really nice and said he suspects celiacs as well-but he was also concerned about the possibility of Chrone's. So, he did an extensive blood test for about 8 different conditions/diseases, but we dont the results back for TWO weeks!! I hate waiting!

Besides the fact that my hubby has a huge number of the symptoms of celiacs, our daughter, who has been basically gluten free for the last month, has had huge improvments just in this short time. She is NOT completely gluten free-she still has the occasional bread product-but her chronic constapation is gone, she is off of laxatives, she has started babbling for the first time, she is extremely close to walking-she wouldnt do anything but crawl until the last two weeks-and she seems much less fussy. I dont know if I will have the heart to put her back on gluten to get her tested if her daddy comes back positive.

Anyway, I think I am well prepared if hubby does have it-we have already decided to all go gluten free if he does and I have already started trying gluten free products. Anyway, this is my little-long-intro! Thanks for reading!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Your hubby might consider eliminating yeast for his IBS.

0

Share this post


Link to post
Share on other sites

Welcome littlemonkeys,

I am glad that your husband is getting the help he needs in finding out what is wrong with him. If he does have Celiac Disease, please try to find a pediatric GI for your daughter (or the same one your husband sees if he sees children). You don't want to keep her 100% gluten free before testing, but I know how hard it is to watch the little ones suffer. I have three kids and for the past two years have fought for my own diagnosis, and then for my kids. I couldn't get any doctor to test them before I was diagnosed, since we didn't have a "family history" of celiac disease and their symptoms are atypical. <_< I now know that most celiacs have atypical symptoms and have finally gotten them to see a wonderful ped.GI at our local children's hospital. He is wonderful and will not stop looking until he knows what is wrong with my kids. He want's a 100% yes or no diagnosis. Which is what I want. Too many of us are passed off as you probably don't have celiac disease. :unsure: Well I for one needed a definite answer. I couldn't even get the doctors to test me, they said I didn't have it just based on my symptoms. I wouldn't accept that and now I know for sure that I DO have it and am gluten free. I feel so much better now! I just recently had to do a gluten challenge for the biopsy, and I am also waiting for my results. I don't like playing the waiting game either. I'm doing it with my kids blood test results and with my biopsy results...

Good luck in a quick diagnosis for your hubby! :)

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,120
    • Total Posts
      919,461
  • Topics

  • Posts

    • yes, I was tested for it. They said after stomach surgeries and other major things causing that much stress on your body you can become intolerant to gluten. It happened to my aunt as well who was in a horrible car accident. They said you can always carry the gene in your body and having that much stress on your body can start it.
    • A new study confirms a link between intestinal viral infections and celiac disease. View the full article
    • Good luck with all the testing.  You are doing the right thing by telling your son to gluten up!  Buy him one of those gluteny cakes at a bakery...if that doesn't spike his numbers, nothing will. 
    • Thank you for this response! You are right, I'm sure. My sed rate was normal. My c reactive protein was 6, which is high. My platelets were a bit elevated and I was slightly anemic. I am going tomorrow for another endoscopy. I know that these things could be related to other things... but I'm thinking there is a change they are all still related to celiac (I'm hoping). What other autoimmune disease do you have, if you don't mind me asking?
    • HIV doesn't turn off the immune system, it destroys it to the point where most people die from complications that arise from having no immune system.  Some end up with pneumonia or cancer, which takes their life. It is pretty amazing the treatments they have developed for it, to slow it down and give people longer, quality time. I am perfectly content with the gluten free diet as my treatment and honestly, if they developed a pill that they claimed would make it possible for people to eat gluten again, I doubt I would. I could not bring myself to eat a food that I am genetically programmed to not be able to digest and that totally pisses off my immune system.  However, if they succeed with some of the meds they are working on now, one of which I posted about earlier this summer, I would take those.  They are working on things that modulate the immune system down so inflammation can be tamed down further.  Even with a strict gluten-free diet, there will always be more inflammation for us than for those who don't have AI diseases.  I do everything possible to tame it down myself but it isn't in the normal range.....yet. Long term inflammation can kill you so something along those lines would be welcome.  You would still have to eat gluten-free but the disease activity would be calmed down.  This is a drug that targets those with lupus and maybe Sjogren's....which I have.  There are possibilities for other AI diseases from that!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,159
    • Most Online
      1,763

    Newest Member
    Anns
    Joined