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Started The Diet
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Burdee, Thank you for your run-down of things you do to facilitate recovery. I have spent alot of computer time lately trying to find your post of July 31. I finally discovered that there was another page to that thread. I have been on the diet for 3 and a half weeks now. Was pretty good the first three weeks, but have company this week. It is harder to keep legal when working with company food. There are many foods that are legal on Elaine Gottshalk's diet that I don't usually tolerate: The tomato potato family and cheeses, though I am trying some of the hard cheeses allowed on this diet. Actually, my lactose free diet does allow aged cheeses. Would be good to be able to include some of these for calcium. I have quit taking gas medicine and so far am not having any huge trouble. I've written the Family Pharmacy about their anti gas product. They forwarded my letter to the manufacturer, so I should get an answer soon. These are less expensive than the Phazyme. They do produce a burst of gas soon after taking them.

I wonder where one can purchase the acidophilus you recommend and the digestive enzymes.

I do not bake very much unless I have company. My son and daughter-in-law are visiting me this week. I'm afraid I have weakened my resolve somewhat. I think you mentioned on another post that some of us may not need to be on the very strictest diet. I do not, so far, have trouble with passing on dessert at Ladies'Guild, but when I am baking and cooking different things at home, it is harder. I made a meatloaf from hamburger, eggs, brown rice and homemade chicken broth. I either put in too much broth or not enough rice so it made more of a hash than a loaf, There was also onion in it. It tasted good anyway. The rice is not allowed on the strict diet, but is on the one the dietician at my clinic gave me. I also am expermenting with soaked dry lima beans thoroughly cooked and then pureed in the blender to use for breakfast cereal. Mostly my normal diet consists of defatted (as far as possible) poultry, beef, pollock, salmon (canned), will try mackerel soon, vegetables and fruit. I do not usually eat many fruits except for bananas and cantalope. I buy overripe bananas, peel them, mash them up or leave them whole and freeze them. In summer they taste very good that way. Made banana bread this week out of regular flour and ate a slice. There was increased burning in my upper abdomen immediately after I ate it. Have had a couple of other "slips" My daughter-in-law is also recommending the weight lifting routine. I'm guessing I will need to get some instruction on this. Perhaps Mayo Clinic site will have a lesson on the technique. I know I got some exercises for my hands from there complete with photos. Thanks again for all your input. Ruth

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    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
    • Going gluten free may be beneficial if you're among the roughly 10 percent of people who suffer from celiac disease, a genetic immune disorder, ... View the full article
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