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For The "real" Teens
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127 posts in this topic

hi guys. i was just wondering where you guys are all from. everyone seems to be like from the east and i don't know anyone around the west with it. i live in idaho. so where do u guys live? just thought i would ask

~Kassie~

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northern california, very west coast.

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Oregon. And I get the feeling that I am the only one.

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i know what u mean i get the feeling i am the only one around where i live

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hi guys. i was just wondering where you guys are all from. everyone seems to be like from the east and i don't know anyone around the west with it. i live in idaho. so where do u guys live? just thought i would ask

~Kassie~

I am from Idaho too. I am 17 and new to the site. I have had celiacs for over a year now. My eamil is Jacqui7170@verizon.net . Write me

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jaqui- i sent you an e-mail i am so happy i found a teen on here from idaho!

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jaqui- ok i sent you an e-mail but it didn't go through. it said something that i didn't understand so e-mail me and i will reply thats what i have to do sometimes cause my computer is stupid like that. my e-mail is twin_kassie2@hotmail.com i would love to talk so plear write me. ttyl

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Hey Kassie

I will write you an Email as soon as I get home. I am at work and bored. There stupid computer wont let me on to my email but it will let me go everywhere else. So i wil write oyu soon.

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I'm from Florida. really wish I vould find a Celiac my age around here. All I know are about 2 Celiacs, and there both old and one of them is my dad!! yikes!!

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Im from Newcastle in England i know of about 2 coeliacs in my area lol does anyone else on here live near???

liam

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northern california, very west coast.

Yay! Finally....some TEENS. I was feeling pretty lonely! LoL. Well, no joke...it does get kinda lonely sometimes. but ANYWAY...Im from California too :) How are you all doing?

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Yay! Finally....some TEENS. I was feeling pretty lonely! LoL. Well, no joke...it does get kinda lonely sometimes. but ANYWAY...Im from California too :) How are you all doing?

Another Californian! I'm also from northern California.

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Another Californian! I'm also from northern California.

Yay that's awesome! I'm from the bay area :)

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what part of the bay area i am from palo alto. you should join the bay area celiac teens support group!

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what part of the bay area i am from palo alto. you should join the bay area celiac teens support group!

I didn't know there was a bay area support group! I'd love to join! Do they have a website? Oh I'm from a little town about 15 minutes away from San Francisco :)

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i'm from colorado and know of 2 other celiacs here, but no one around my age...

mia

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hey...i'm from Manitoba, Canada...and i know like NOBODY who has celiacs :P

...but i've had it all my life

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australia... finally some other ppl this age who have it.. seems like everyones adults.......

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hi :) ! I'm from central California near Fresno.

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Im from New York, Lake ontario(ish) area...

i thought i was the only 17 year old with dh.

also would that make me a celiac? or just a leper? haha

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Is there anyone on this site from utah????? probably not... How old are you guys? I'm almost 15

~~~~Lizzie~~~~

oh ya, do any of you guys in Idaho live on a farm? I think that would be cool cuz u can drive when ur 14.

I'm going to BYU Idaho for EFY

By the way, my email is tizzy2dance@hotmail.com :P

:P

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hey liz, i'm close idaho. what part of utah do you live? you got the 14 thing wrong. you can take drivers ed at 14 but cant get liscence till 15. your goin to EFY. are you LDS? feel free to e-mail me

twin_kassie2@hotmail.com

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Ya I'm LDS. You???? I live near SLC. :P

*liz

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yah i'm LDS too! um i live in burley idaho (southern part of idaho) i sent you an e-mail hope you got it :)

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    • So, LST my celiac sibling thinks I should see a naturopath to get additional food sensitivity tests. I think this is swell, but expensive for me. He had a panel done and was reacting to some foods he ate the most of. I have reached out to a local allergist and they do food testing but do not accept my insurance. I was going to make some more calls tomorrow. I actually do have mild reactive airway disease too which seems to go hand-in-hand with the allergists. I honestly had no idea, but makes since. What type of tests have folks had? I know I am not allergic to most foods as of November. My former GI doc ran a basic panel then but it seemed short. Has anyone had any luck with these? I read there is a difference between IGE and IGG tests. Anyone get a doc to order them and insurance to cover? I may end up having to save up for awhile to have this done with a naturopath. But I was off of payroll recently with all of this and the idea of waiting for a couple of more months to find out what other foods may be trigging me really sucks. I am off of dairy and soy, suspicious of lettuce and shrimp.
    • How about reaching out to your local celiac disease support group? http://www.houstonceliacs.org
    • Yes, I am in Houston, TX. Can anyone recommend a good GI in Houston, lots of experience with celiac?  
    • I am sorry to hear about your mother.   It is not so hard to get a medical doctor to order a celiac panel -- especially if your father was diagnosed with celiac disease.  Our family GP did not blink an eye when I first asked my daughter to be tested.    If you think your doctor will disregard your legitimate request, you can either fire him or put the request in writing and send it certified (attorneys love documentation!)  I agree that our doctors should support us.  I have a great GI, but my GP  is pretty clueless when it comes to celiac disease, but she admits it.    She does always order all the lab tests I request.  Perhaps it is because I come in with supporting medical documentation and evidence.  If she was not supportive to my satisfaction, I would find a new doctor.   Again, you can go gluten free in your own.   Chance are you have celiac disease.    But it is hard.  Really hard if you do not have the support of your family.  That is my concern.   Are you in the US?  
    • I've just read SO MUCH about the long, arduous process of getting a positive diagnosis through traditional medicine - I'm not sure I want to put myself through all that. Since my father WAS positively diagnosed - I carry the celiac gene and another gene that predisposes me to gluten sensitivity - and my fecal tests for gliadin were SO elevated - there are enough reasons for me to go to a gluten free diet. The true medical diagnosis would just make it easier for my family/friends to believe the necessity of it. My children are adults and not particularly health care nuts. I doubt they would take their own risk seriously without a medical diagnosis. I'm afraid my husband, while he is trying to be supportive at this point, will grow weary of all the things I no longer serve at meals and all the places we will no longer go to because there are not gluten free alternatives on the menu. A medical diagnosis would make it easier for him, long term, I think.  I don't have much faith in general in our western health care system. My mother died 6 months ago at age 82 after 4-5 years of many different health issues. She had given up the keys to her car in her late 70's after getting lost several times. I became her designated driver to all doctor appointments, procedures, hospital stays, etc. The incompetence and disregard I saw blew me away. I'm surprised any elderly people survive our health care system once they get on that revolving door. The reason I started seeing a naturopath is that I am looking for an alternative to medical doctors for most of my health issues as I age. I know there are some things I still have to see them for - and of course, they are essential in trauma and emergency situations. But I am on a quest to follow a more holistic approach to my health care. If this is the path I am choosing, then I have to follow my gut (no pun intended) in situations like this. I think the only reason I would go through the medical testing would be for other people - not me. It seems to me, that with so many people being gluten intolerant these days, a decent M.D. would listen to a patient that was adamant about their intent to live gluten free - positive celiac diagnosis or not (and especially with the gene and stool test results). I mean, they don't tell vegetarians they have to eat meat ... and vegetarianism is a personal choice. Sorry if I seem to be rambling ... this is all so new, and I'm trying to find my way.    
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