Spondyloarthropathy And Celiac Disease
Posted 01 January 2004 - 10:29 PM
i've had alot of surgeries, the necessity for which was suddenly explained when i ended up in a rheumatologists office three years ago at the suggestion of a podiatrist when my foot just wouldn't heal after foot surgery. months were ticking by and the inflammation was still severe...i required another procedure just to drain the fluid. the rheum doc diagnosed spondyloarthropathy, an inflammatory soft tissue disease.....the diagnosis explained my entire lifetime of pain. i was diagnosed with fibromyalgia many years ago, and myofascial pain syndrome. she put me on sulfasalazine and i now also use bextra.....and it is only now, after shoulder surgery two months ago and inflammation that will not resolve, mostlikely meaning that i will need an arthroscopic procedure to "clean things up", but we won't know for sure til i finish the prednisone pack (5 days)(i'm really babbling here aren't i?)that the rheum doc has started to connect celiac with spondyloarthropathy, saying that they are definitely linked....and that if i eat even one gram of gluten i am causing inflammation throughout my entire system, not just my small intestine.
needless to say, i'm a bit taken aback by this news.....not that i am stupid and don't realize that everything is connected, so to speak.....but she seems to be indicating that the celiac caused the spondyloarthropathy situation. anyone out there have any ideas on this issue? thanks in advance.
Posted 02 January 2004 - 02:10 PM
Very interesting, I never thought of it that way and it does make a lot of sense.
My late mother-in-law had rheum arthiritis and after reading about celiac disease I suspect she probably had it too and didn't know it. I was very sick for over a year, she was very worried about me and was there for every test I went through. I didn't know enough about celiac disease before to educate her on it and she passed away before I got my diagnosis.
Posted 02 January 2004 - 03:28 PM
Posted 02 January 2004 - 05:19 PM
My 4 year old daughter was diagnosed with celiac disease 8 mos ago. She has insulin dependent diabetes (type 1, diagnosed at 10 mos. old) and her doctors test her for related diseases/disorders annually. She was seemingly symptom free and they said she had celiac disease. I didn't believe this- eventually we followed up with a biopsy and she really does have celiac disease. Since being Gluten Free, her diabetes is more easily managed--- so her crazy rollercoaster blood sugars were her celiac disease symptom, which makes sense now, considering it is a disease of malabsorption.
Anyway, our favorite breads are Rice Almond or Rice Pecan made by "Food For Life", found in the freezer section of your health food store. My Shoprite supermarket is now carrying this and other gluten-free items! We think the best rice pasta is make by Tinkyada. Follow package directions closely. Eating rice pasta takes a little getting used to- but we really like it. Lifestream makes Buckwheat wildberry toaster waffles that are really delicious. Van's makes several gluten-free waffles too. Kashi makes a gluten-free cereal called Cranberry Promise that's yummy. Envirokids makes several cereals: Gorilla munch and Panda Puffs are good. My daughter lives on corn tortillas with black beans and cheese, chick peas, brown rice, peanuts, cashews, fruit, popcorn. She doesn't eat meat. If you do, there are more choices out there.
Good luck. Remember that this learning curve time is difficult, but will only last a little while. And remember that it will pay off and you will be feeling so much better soon.
Is there anyone out there who has diabetes and celiac?
Posted 02 January 2004 - 07:52 PM
I see why you might babble on a bit. Multiple, Chronic diseases can do that to people. Yet, I hope that you find the support you want here. I strongly suggest that you visit two websites. Sorry, I don't have the exact address but just do a search for Symbiotics. Also try another search for Moducare and Polysaccharides and autoimmune diseases. These are excellent immune supports for people with multiple disease symptoms.
If you choose not to do the search, I trust that you will be good to yourself and here's a hug from me to you.
Take Care of yourself.
Posted 24 April 2004 - 06:33 PM
I'm not sure if I have the same problem or not. I have been having problems for years with scar tissue causing problems. I had 3 surgeries in the last 2 years on my right ankle and leg and 2 have been because scar tissue has come back worse each time causing a great deal of problems. I had a torn peroneal tendon in my ankle and which my doctor went in an repaired. Six months later I had to have surgery to partially remove the sural nerve in the left ankle and foot because I had so much pain from scar tissue. My doctor said the scar tissue had everything a mess. Within 6 months after the second surgery, I had a terrible time with the scar tissue again causing me to tear the same tendon but in a different location. The MRI show that both tendons were fully torn, but actually when my doctor went it to operate she found 1 fully torn and the other tendon was stretched out so bad and intertwined in scar tissue it made it hard to determine what was the tendon and what was scar tissue. She currently feels that the scar tissue is back once again even though I was exercising the ankle within 1 1/2 weeks after surgery trying to prevent scar tissue from coming back.
I have also had terrible problems with adhessions and abdominal surgeries that has caused a lot of problems. None of my doctors can tell me what has caused any of these problems and they all say there is no cure in the near future for scar tissue.
I also have ankylosing spondalytis along with other health problems. I don't know what Spondyloarthropathy, so I'm not sure it there is any relationship your problem and mine.
Good Luck with everything,
Posted 25 April 2004 - 05:32 AM
The Lord bless you and keep you; the Lord make His face shine upon you and be gracious to you." Numbers 6:24-25
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