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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I Tend To Need A Lot Of It
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19 posts in this topic

I've never had much in terms of sleep problems.. I barely remember dreams, etc... but, I do have one problem.. I can never get enough sleep! At least 9 hours is what I need. It really is ridiculous at times as I feel I need naps during the day and I can literally have an emotional breakdown if I'm lacking on the rest.

Gretchen

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I had that problem too. Part of it was helped by going gluten-free. Part of it was helped by having my testosterone levels tested and finding out I was low and supplementing that. And part of it is helped by getting regular exercise. (I know it's hard to do that when you're tired, but it really does help after a few days.)

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YOu might want to get tested for sleep apnea because I needed 10 hours in bed to be able to concentrate in school, because realy I was only getting like 6 hours of sleep of the 10 hrs. I was in bed. Also I never remembered my dreams. Yes exercise helps a whole lot, it really wakes you up and it is much better than a nap.

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Wow I am exhausted lately. I am not sure why, is this normal. I am rested when I wake up. I could be just running around too much but I fall asleep every night lately at about 6. :huh: Only been gluten-free for 10 days or so... will this get better?

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My daughter was always sleepy before she was diagnosed and I found it strange because she never napped before. She's been gluten-free now two months and is napping only occasionally. Good luck.

Lee

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I am sleepy most of the time. Even with a good nights sleep. I have been off work since 3-2004. I would like to return to work, but the fatuige takes over. I am taking iv iron therapy, but I feel its not doing the job. Blood work will be ran again today to see whats going on. I become so tired doing every day chorses. After I vaccum the house, I have to lye down. Last week I tried grocery shopping. I felt for the most part pretty good. Half way through the store I had to sit on the floor and call my sister come and pick my mom and myself up. I wont go any where by myself. I work with special ed students. I thought I was strong enough to return to work. About the 3rd day, I sat down because I had this weird feeling come over me. My co-workers got scared because I could not communicate,walk, or

open my eyes very well. They called 911, and I went to the ER. I have been in the hospital twice do to simular spells. I am so tired of being tired.

momof3

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It took about two months for me to lose the fatigue after going gluten-free. I found that once the gluten was out of my body I was able to start exercising. If I don't do a least some exercise everyday I don't have as much energy the next day. It takes some time but it does get better.

Ian

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I have gotten that whacky feeling where you can't communicate and are out of it. I spent many a day in the ER before being diagnosed with celiac. The neurologist says it is a problem with that system as a result of the malabsorption from the celiac disease. If I get glutened, it comes back.

The fatigue is awful. It is impossible to explain to someone how just getting from the bed to the bathroom or trying to put on your clothes can take the starch out of you. Many a time I have awakened feeling as though I could accomplish something...then by the time I got dressed I was so exhausted that it was no longer possible. My poor kids get so frustrated sometimes. They think we might get to go somewhere then I just can't.

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Hi,

I'm experiencing EXTREME fatigue at the moment (just recently been dx'd with celiac disease following blood tests and awaiting biopsy, so can't go gluten-free yet). My kids get really fed up with getting home from school to find me sleeping on the sofa!

I'm a fulltime mature student but when I don't have to go to Uni for lectures I find it so difficult not to sleep during the day - consequently I'm falling so far behind with my coursework etc! I am being granted 'concessions' but I still have to get the work done eventually - and at the moment trying to write reports is beyond me.

Really need my biopsy quick, and hope I 'repair' quickly after going gluten-free - it's my final year come September and I really need to get a good degree. Can't really afford to retake a year at my age.

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At least 9 hours is what I need.

I also need about that much sleep. I am almost always tired.

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Hopefully they will get your biopsy done quickly so you can go gluten-free and get rid of this fatigue. It may take a while, but you should see some significant relief. In the meantime, consider asking your doctor if a drug called Provigil might help. I still have to use it if I am going to be out somewhere and am required to stay awake. Just be careful and start out slowly with it if they prescribe it. I have to take about a fourth of the usual dose or I am up for 24 hours or so. It might get you through the rest of this term and at least you could get that behind you.

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I have gotten that whacky feeling where you can't communicate and are out of it.

The neurologist says it is a problem with that system as a result of the malabsorption from the celiac disease. If I get glutened, it comes back.

The fatigue is awful. It is impossible to explain to someone how just getting from the bed to the bathroom or trying to put on your clothes can take the starch out of you. Many a time I have awakened feeling as though I could accomplish something...then by the time I got dressed I was so exhausted that it was no longer possible. My poor kids get so frustrated sometimes. They think we might get to go somewhere then I just can't.

That sure sounds like me, cdford. :( Quite often when I try to have a conversation with someone, I just can't get the words out that are in my head. It' all gets confused and I just end up either stumbling, stuttering (which I only do if I'm REALLY tired) or appear as if I'm stupid or something.

It is really embarrassing. :wacko:

I'm always tired. It doesn't seem to matter what I do. I can have a full day out of the house, grocery shopping, doing any amount of housework, or sitting on my butt doing nothing, and I feel just as exhausted anyway. :angry: Not to mention the dizziness and muscle/bone pains.

<_<

Sometimes it makes me mad to not be able to do the things that I took for granted years ago. I can't concentrate enough to help my hubby do any chores. I feel a bit guilty at times, when I see him doing things I should do, but don't have the energy or I've forgotten to do it altogether. :ph34r:

Frustrating hey!?

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I need alot of sleep too. I like to get about 9 or 10 when I can. I get tired pretty easily but it's been so much better since going gluten-free. I can actually do normal things again

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Soy can make me dumb as a brick - unable to participate in discussion, trouble forming complete sentences, etc. Dairy (I think) has caused me to be unable to follow conversation. I found myself repeating the words in my mind instead of underanding the meaning of the message. I think the nervous system effects of these food intolerances is worse than the gut problems!

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The longer I am gluten-free, the better it seems to be. Someone mentioned soy as a problem. My endocrinologist says that some of the recent research is pointing to the soy as a contributor to the neurological problems in celiac. I have to stay away from it for that reason. Just let me get tired (and we all know how often that is...) or get into some gluten or soy and the neurological problems abound.

I hate that feeling of having a word in my head that won't come out my mouth or my brain telling my hand to write and it won't cooperate. That happened at a mortgage closing recently and made a frustratingly long process almost impossibly long.

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I'm always tired. It doesn't seem to matter what I do. I can have a full day out of the house, grocery shopping, doing any amount of housework, or sitting on my butt doing nothing, and I feel just as exhausted anyway. :angry: Not to mention the dizziness and muscle/bone pains.

<_<

I have the same symptoms, I was finally diagnosed with fibromyalgia on Monday. I have been gluten free for 17 years (accept when I would have an accidental glutening). Maybe you should check into that?

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Wow. Somehow, I've missed this topic until now. I picture us all getting together... we try to chat, but nobody can form a complete sentence. Then we all fall asleep. *giggle*

I find myself telling people (quite often), "I know you just spoke english... but I have no idea what you said." Nice to know I'm not alone!

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Yeah, I need at least 9, sometimes 10, and if I lie down at any point, I WILL fall asleep, no matter how exciting whatever it is that I am watching on TV, especially after gluten. I have had positive bloodwork but am not gluten-free yet - waiting for an appt. with a specialist.

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I am mostly always tired and need a nap. There are some days when you have to pry me out of bed in the morning. I have been gluten-free for 3 yrs. and I still have sleep problems. I am trying to get this checked out because my parents think that I have another problem. One night I went to bed at 8 and I did not wake up untill 9. I just got really tired. Anyway, don't know if that helped or not, sorry :unsure:

-Tiffany

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