Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

I Tend To Need A Lot Of It
0

19 posts in this topic

I've never had much in terms of sleep problems.. I barely remember dreams, etc... but, I do have one problem.. I can never get enough sleep! At least 9 hours is what I need. It really is ridiculous at times as I feel I need naps during the day and I can literally have an emotional breakdown if I'm lacking on the rest.

Gretchen

0

Share this post


Link to post
Share on other sites


Ads by Google:

I had that problem too. Part of it was helped by going gluten-free. Part of it was helped by having my testosterone levels tested and finding out I was low and supplementing that. And part of it is helped by getting regular exercise. (I know it's hard to do that when you're tired, but it really does help after a few days.)

0

Share this post


Link to post
Share on other sites

YOu might want to get tested for sleep apnea because I needed 10 hours in bed to be able to concentrate in school, because realy I was only getting like 6 hours of sleep of the 10 hrs. I was in bed. Also I never remembered my dreams. Yes exercise helps a whole lot, it really wakes you up and it is much better than a nap.

0

Share this post


Link to post
Share on other sites

Wow I am exhausted lately. I am not sure why, is this normal. I am rested when I wake up. I could be just running around too much but I fall asleep every night lately at about 6. :huh: Only been gluten-free for 10 days or so... will this get better?

0

Share this post


Link to post
Share on other sites

My daughter was always sleepy before she was diagnosed and I found it strange because she never napped before. She's been gluten-free now two months and is napping only occasionally. Good luck.

Lee

0

Share this post


Link to post
Share on other sites




I am sleepy most of the time. Even with a good nights sleep. I have been off work since 3-2004. I would like to return to work, but the fatuige takes over. I am taking iv iron therapy, but I feel its not doing the job. Blood work will be ran again today to see whats going on. I become so tired doing every day chorses. After I vaccum the house, I have to lye down. Last week I tried grocery shopping. I felt for the most part pretty good. Half way through the store I had to sit on the floor and call my sister come and pick my mom and myself up. I wont go any where by myself. I work with special ed students. I thought I was strong enough to return to work. About the 3rd day, I sat down because I had this weird feeling come over me. My co-workers got scared because I could not communicate,walk, or

open my eyes very well. They called 911, and I went to the ER. I have been in the hospital twice do to simular spells. I am so tired of being tired.

momof3

0

Share this post


Link to post
Share on other sites

It took about two months for me to lose the fatigue after going gluten-free. I found that once the gluten was out of my body I was able to start exercising. If I don't do a least some exercise everyday I don't have as much energy the next day. It takes some time but it does get better.

Ian

0

Share this post


Link to post
Share on other sites

I have gotten that whacky feeling where you can't communicate and are out of it. I spent many a day in the ER before being diagnosed with celiac. The neurologist says it is a problem with that system as a result of the malabsorption from the celiac disease. If I get glutened, it comes back.

The fatigue is awful. It is impossible to explain to someone how just getting from the bed to the bathroom or trying to put on your clothes can take the starch out of you. Many a time I have awakened feeling as though I could accomplish something...then by the time I got dressed I was so exhausted that it was no longer possible. My poor kids get so frustrated sometimes. They think we might get to go somewhere then I just can't.

0

Share this post


Link to post
Share on other sites

Hi,

I'm experiencing EXTREME fatigue at the moment (just recently been dx'd with celiac disease following blood tests and awaiting biopsy, so can't go gluten-free yet). My kids get really fed up with getting home from school to find me sleeping on the sofa!

I'm a fulltime mature student but when I don't have to go to Uni for lectures I find it so difficult not to sleep during the day - consequently I'm falling so far behind with my coursework etc! I am being granted 'concessions' but I still have to get the work done eventually - and at the moment trying to write reports is beyond me.

Really need my biopsy quick, and hope I 'repair' quickly after going gluten-free - it's my final year come September and I really need to get a good degree. Can't really afford to retake a year at my age.

0

Share this post


Link to post
Share on other sites
At least 9 hours is what I need.

I also need about that much sleep. I am almost always tired.

0

Share this post


Link to post
Share on other sites

Hopefully they will get your biopsy done quickly so you can go gluten-free and get rid of this fatigue. It may take a while, but you should see some significant relief. In the meantime, consider asking your doctor if a drug called Provigil might help. I still have to use it if I am going to be out somewhere and am required to stay awake. Just be careful and start out slowly with it if they prescribe it. I have to take about a fourth of the usual dose or I am up for 24 hours or so. It might get you through the rest of this term and at least you could get that behind you.

0

Share this post


Link to post
Share on other sites
I have gotten that whacky feeling where you can't communicate and are out of it.

The neurologist says it is a problem with that system as a result of the malabsorption from the celiac disease. If I get glutened, it comes back.

The fatigue is awful. It is impossible to explain to someone how just getting from the bed to the bathroom or trying to put on your clothes can take the starch out of you. Many a time I have awakened feeling as though I could accomplish something...then by the time I got dressed I was so exhausted that it was no longer possible. My poor kids get so frustrated sometimes. They think we might get to go somewhere then I just can't.

That sure sounds like me, cdford. :( Quite often when I try to have a conversation with someone, I just can't get the words out that are in my head. It' all gets confused and I just end up either stumbling, stuttering (which I only do if I'm REALLY tired) or appear as if I'm stupid or something.

It is really embarrassing. :wacko:

I'm always tired. It doesn't seem to matter what I do. I can have a full day out of the house, grocery shopping, doing any amount of housework, or sitting on my butt doing nothing, and I feel just as exhausted anyway. :angry: Not to mention the dizziness and muscle/bone pains.

<_<

Sometimes it makes me mad to not be able to do the things that I took for granted years ago. I can't concentrate enough to help my hubby do any chores. I feel a bit guilty at times, when I see him doing things I should do, but don't have the energy or I've forgotten to do it altogether. :ph34r:

Frustrating hey!?

0

Share this post


Link to post
Share on other sites

I need alot of sleep too. I like to get about 9 or 10 when I can. I get tired pretty easily but it's been so much better since going gluten-free. I can actually do normal things again

0

Share this post


Link to post
Share on other sites

Soy can make me dumb as a brick - unable to participate in discussion, trouble forming complete sentences, etc. Dairy (I think) has caused me to be unable to follow conversation. I found myself repeating the words in my mind instead of underanding the meaning of the message. I think the nervous system effects of these food intolerances is worse than the gut problems!

0

Share this post


Link to post
Share on other sites

The longer I am gluten-free, the better it seems to be. Someone mentioned soy as a problem. My endocrinologist says that some of the recent research is pointing to the soy as a contributor to the neurological problems in celiac. I have to stay away from it for that reason. Just let me get tired (and we all know how often that is...) or get into some gluten or soy and the neurological problems abound.

I hate that feeling of having a word in my head that won't come out my mouth or my brain telling my hand to write and it won't cooperate. That happened at a mortgage closing recently and made a frustratingly long process almost impossibly long.

0

Share this post


Link to post
Share on other sites
I'm always tired. It doesn't seem to matter what I do. I can have a full day out of the house, grocery shopping, doing any amount of housework, or sitting on my butt doing nothing, and I feel just as exhausted anyway. :angry: Not to mention the dizziness and muscle/bone pains.

<_<

I have the same symptoms, I was finally diagnosed with fibromyalgia on Monday. I have been gluten free for 17 years (accept when I would have an accidental glutening). Maybe you should check into that?

0

Share this post


Link to post
Share on other sites

Wow. Somehow, I've missed this topic until now. I picture us all getting together... we try to chat, but nobody can form a complete sentence. Then we all fall asleep. *giggle*

I find myself telling people (quite often), "I know you just spoke english... but I have no idea what you said." Nice to know I'm not alone!

0

Share this post


Link to post
Share on other sites

Yeah, I need at least 9, sometimes 10, and if I lie down at any point, I WILL fall asleep, no matter how exciting whatever it is that I am watching on TV, especially after gluten. I have had positive bloodwork but am not gluten-free yet - waiting for an appt. with a specialist.

0

Share this post


Link to post
Share on other sites

I am mostly always tired and need a nap. There are some days when you have to pry me out of bed in the morning. I have been gluten-free for 3 yrs. and I still have sleep problems. I am trying to get this checked out because my parents think that I have another problem. One night I went to bed at 8 and I did not wake up untill 9. I just got really tired. Anyway, don't know if that helped or not, sorry :unsure:

-Tiffany

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,131
    • Total Posts
      919,521
  • Topics

  • Posts

    • Cyclinglady is absolutely correct, after hours of internet research the only gluten-free food available at JNB is a fast food chain called 'Nandos'. I was hoping for a bit more variety, but I'll take what I get.   
    • I'm so confused about my daughter's diagnosis.  I hope somebody can help.   My 4 year old daughter has a swollen belly, stomachaches, and lots of gas.  She does not have diarrhea or delayed growth.  Because of her symptoms and because it runs in the family (2nd degree relatives) I had her tested for celiac.   She was weak positive for TTG (IGA)  and strong positive for DGP (IGG)   TTG (IGA)  8   (0-3 neg, 4-10 weak positive, greater than 10 positive) TTG (IGG)  2   EMA: Negative DGP (IGG)  47  (0-19 negative, 20-30 weak positive, greater than 30 positive) Last week, she had her endoscopy.  The doctor found inflammation and little holes or bumps on her duodenum.  He started her on prevacid and said based on his observations, he was suspicious of celiac, but he would not be able to confirm until the biopsy came back. The biopsy showed no signs of celiac disease.  He said that he could not diagnose her with celiac without the biopsy report saying there was celiac damage.  He said he would categorize her as a potential celiac, keep her on a gluten diet and redo the endoscopy in a year or two to check for damage again.  My questions are: 1.)  If it is not celiac, something is causing her duodenum to be inflamed and have little holes or bumps on it, right?  Could it be a wheat allergy or gluten sensitivity?  What else could it be and how do they test for it?  Given her elevated celiac antibodies, how likely is it to be anything besides celiac causing the damage?  2.)  How likely are false positives for TTG and DGP?  I've heard they are pretty sensitive and specific.  Does getting two positives make false positives less likely? 3.) What have you done in this situation?  I want her to have an official diagnosis to make things easier at school and to feel confident that we are eliminating gluten permanently for a worthy reason, etc.  But, I'm having a hard time imagining keeping her on gluten and waiting for her to get more sick and have more intestinal damage just for a diagnosis.     Thanks in advance for your help.  I'm so overwhelmed and confused.  I hope someone has some insight and experience that will help clear things up for me.            
    • Yeah I actually live in Japan which is pretty similar, because Coeliac disease is rare over here so is the understanding and accommodating it. When I mention Gluten to some restaurants they think I am talking in English and they are unfamiliar with the word in Japanese.    So it seems I can write off my chances of getting some authentic Chinese gluten-free food at the airport, but at least there is a Thai restaurant in T3 so I won't starve. Its called  'Phrik Thai' for future reference. http://en-shopping.bcia.com.cn/store/739.html  
    • While in Boston I found Cheer's  Bloody Mary mix that says gluten-free on the bottle and have had no issues and  tastes pretty good 
    • I always assumed plain coffee was, but I have seen some controversy online about this. I know someone who is gluten free and only buys whole beans and grinds them herself because she doesn't trust how the grounds are processed.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,167
    • Most Online
      1,763

    Newest Member
    Cristina17
    Joined