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Went To The Gi Doctor Today
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6 posts in this topic

Today I finally got to see the gi specliest.It took around 8 months to ger in .I was there for 3 hrs .I went on the gluten-free diet July 2 and he scedualed my biospy and colon something for sept. 21 .Im really nervus about it .He told me if I had celiac it would show up no matter if I was gluten-free before .I think its going to show neg. becauses I was on the diet previous.For the people who had to do this should I be loading on the gluten right now .Its kinda of hard with school starting .Have any advice im so scared because what if it shows neg. Im so positive its celiac.Any advice or opinions would be greatly appreachiated.thanks Lynds

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If it makes you feel any better, I've had the endoscopy (the tube they insert down your throat), a sigmoidoscopy (a mini-colonoscopy) and a colonoscopy.... and none of them are that bad at all. Now, I'll fore-warn you, the preparation can be a little embarrassing, but it's not too bad. For the tests, they'll drug you up pretty good and you feel like "all is well" during it, so you really won't think it's bad at all... if you can even remember (the drugs sometimes give you amnesia). All the tests were normal for me... but, I don't regret getting them done. As nice as it is to get answers, it's also nice to rule other things out :D

From what I've heard, you should be loading up on the gluten before the test, or your results could be inconclusive. Sounds like a horrible thing to do, though.

Good luck with your tests. Keep us updated on how things are going for you ok?

Gretchen

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Ya I heard about the preperation .The problem is i have a 2 hrs drive to the hospital :( .which kind of worrys me because of the laxitives .They are gonig to put me to sleep and while im asleep there going to take my blood because I dont like needles .You are right it is good to rule somethings out i just hope they get to the bottem of it . thanks I will keep u updated .

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Oh no... they shouldn't let you drive yourself. Normally they won't let you do the procedure unless someone drives you home... you might want to double check this with your doctor's office, though. Or were you just referring to the time to drive there, period? Usually by the time you're going to the hospital or office, the prep is pretty much completed... but, just in case, prepare to stop at a rest area.

I know.. . it's nice to get an answer to what's making your body react the way it does.

PS... I hate needles too! eewwwww! I haven't fainted yet, but I get close.

Gretchen

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Oh no lol I cant even drive yet .I was talking about the time becauses we have to go on a highway which means no rest rooms...for awhile

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Hey lyndszai.

Have you seen the posts about enterolab.com in here? They do testing for celiac, and are supposed to be more accurate than the blood and biopsy are. And they can test you when you've been gluten-free for awhile.

The only problem you might have, is that I don't think medical insurance covers their testing, and your doctor may not accept their results.

What you do basically, is order the tests you want from their website, they mail them to you, then you give them a stool sample, send it back, and your results get emailed to you. Not too painful, lol.

My point though is if you are scared that nothing will show up since you've been gluten free, you could get tested by them too. That's what I did, just to be safe, incase my biopsy was negative, which it was, bleck.

Not trying to advertise though, just letting you know about another option aviable. =)

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    • Squirmingitch, I forgot to mention best of luck to you during the storm! I hope you are safe and that your home isn't impacted too badly! I'm on the coast in SC so we will see some storms from it but nothing near as bad as what you will have. Take care and good luck.
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    • shellyb, I have info. for you & you may yet be able to get an official dx from your dermatologist as she sounds like she would be willing to learn. If you are dx'd with dh it is definitive & no other testing is needed. You don't need to see a GI. Im in FL & have had a long day watching Tropical Storm Hermine & making preparations for it's track which is over where I live. I'm tired! I will have links for you to reputable medical info. on the rash but it make take me till tomorrow or even longer if we lose power.  I'll be back as soon as I can. Question: You're on Dapsone now? How long have you been on it? How is it working for you? Are you getting the proper testing at regular intervals to make sure it isn't doing bad things to you? Were you gluten free before the skin biopsy?
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