Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Questions About My Tests......


DaCat

Recommended Posts

DaCat Rookie

I have been seeing a Naturopath for approx. 5 months now. I have been tested for food sensitivities and also had a GI panel done. I do not know much about Celiacs, but started to look into in when my Gliadin came back positive (34). My Naturopath doesn't think at this point that I am dealing with Celiacs, because in his opinion, that number is rather low. And.............my food sensitivity test (blood) showed Gliadin, Wheat in the low range (there are 4 categories: no reaction, low, moderate, high). He said he usually sees those 2 things much higher with Celiacs. In fact, none of the other grains that have gluten were moderate or high either - all were either in no reaction zone or low.

I am just looking for a second opinion here to be on the safe side. I have struggled with Chronic Fatigue Syndrome, bloating, brain fog for 25 years (I am 40) and chronic constipation all my life, and I want to cover all the bases to get well.

FYI: I did eliminate wheat from my diet for approx. 4 months and only had oats occasionally (I checked labels extensively and did much reading on-line to know what to look for re: gluten). I've seen some improvement in my health, but it could be due to other things we have been working on - I don't know.

How do you know for sure that you have Celiacs? I've read about biopsies etc. on this board a little, but really am quite clueless. Any input would be greatly appreciated.

Thank you & God Bless,

~Shelly

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Michi8 Contributor

I highly recommend you read Celiac Disease: A Hidden Epidemic by Dr. Peter Green and Rory Jones:

https://www.celiac.com/catalog/product_info...products_id=477 It is very thorough and informative about Celiac Disease, the symptoms and health issues associated with it, testing, diet, etc. You should be able to find it at your local library.

Michelle

Link to comment
Share on other sites
Ursa Major Collaborator

Shelly, a biopsy would be quite useless at this point (because of eating nearly gluten-free for a while), as would more blood testing (same reason). If you could afford it, I would suggest you get tested through Open Original Shared Link, their tests will be accurate up to a year of being gluten-free. If you get the full panel, you'd also know if you have the genes for either celiac disease or gluten sensitivity (same treatment either way, which is the gluten-free diet).

Also, if you really want to know if the diet helps, you'd have to try going completely gluten-free, not just wheat-free. Why don't you give it a try? It can't possibly hurt, and might just help.

You'd have to make sure you're completely gluten-free, though. Go through your personal care products (shampoo, conditioner, lipstick, lotion, soap etc.) and replace any that contain gluten (wheat germ oil, barley extract, oat bran). Also, you'd need to buy a new toaster, as it isn't possible to clean your old toaster well enough to be safe. The same goes for plastic colanders, wooden cutting boards, wooden cooking spoons and scratched non-stick cookware.

What is your naturopaths normal range for the gliadin antibodies?

Link to comment
Share on other sites
DaCat Rookie

Thank you Michelle. I would like to locate that book and read it. ~Shelly

Ursula,

What is your naturopaths normal range for the gliadin antibodies?

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,053
    • Most Online (within 30 mins)
      7,748

    BethRhoda
    Newest Member
    BethRhoda
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Moodiefoodie
      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
    • knitty kitty
      @Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And   Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6814863/ And The gut microbiome-joint connection: implications in osteoarthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6903327/ Sounds like it's time to change the diet to change the microbiome.
    • knitty kitty
      @Shireen32,  Take some deep breaths.  Your labs are fine!  Your tTg IgA is so low!  Well done!  Your endomysial IgA is fine.  There's not a level on the endomysial test.  It's just "yes or no" for if you have celiac disease.   No, it's too early to call it refractory. What are you eating?  Please tell us more than meat and veg. Do you consume dairy? Do you consume processed gluten free foods?   Are you taking any prescription medications, herbal supplements, vitamins and minerals?  
    • Spacepanther
      thank you knitty kitty I don't have a vitamin deficiency and I supplement omegas.  Are there other more mild symptoms that co-occur with your joint pain as well @Moodiefoodie? I am suspicious my own joint pain could be related to another autoimmune issue. I am wondering if it is Crohn's or something similar because I've continued to experience some issues despite having normal celiac antibody levels. What have you considered?
    • Scott Adams
      Here are some more publications on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/fertility-pregnancy-miscarriage-and-celiac-disease/ 
×
×
  • Create New...