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Foot Numbness


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14 replies to this topic

#1 kimberleyshort

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Posted 25 November 2006 - 01:20 PM

I was dx'd several years ago but I have a new symptom that might be related? Does anyone ever get any numbness or tingling in their feet? I read that some celiacs do get neuropathy.
Thanks!
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#2 Generic

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Posted 25 November 2006 - 01:56 PM

All the time. I have been checked for MS twice. They are now checking for rhuematoid arthritis and myositis.
Any more I don't know what to think. I know I have nerve damage other than that, who knows. Sorry I can't be more help.

-Laurie
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#3 kimberleyshort

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Posted 25 November 2006 - 02:03 PM

All the time. I have been checked for MS twice. They are now checking for rhuematoid arthritis and myositis.
Any more I don't know what to think. I know I have nerve damage other than that, who knows. Sorry I can't be more help.

-Laurie

thanks! It does help to know that others have the same symptoms.
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#4 Lisa

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Posted 25 November 2006 - 02:30 PM

There is a condition associated with autoimmune diseases call Raynaud's Syndrome. (not sure of the correct spelling) and it the numbing of feet, toes and finger tips. They get numb and cold and when the circulation begins again there is a burning feeling.

Many people here on the forum suffer from this. I am sure that they will contribute soon.
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Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#5 darlindeb25

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Posted 25 November 2006 - 04:20 PM

Raynauds is different, I have both. Raynauds generally deals with the cold, your fingers or toes get very cold, then change colors, mine get white on the tips, then they start to burn--you must be careful to keep your feet warm enough and gloves n your hands when in the cold.....Now numbness in your feet and/or tingling, burning--that may be neuropathy. Many celiacs get this after years of being ill--generally a B12 deficiency caused by our malabsorption problems. In the beginning, mine started out in my hands and wrist--the doctor diagnosed carpal tunnel, then my toes started going numb and he told me the toes and the fingers have the same nerve running through the body. Now my feet buzz or just ache. My shoulders and neck get this pinched nerve feeling quite often. The last few days I have had this cold spot in my left knee. Just all of a sudden, I feel like there is a draft on my knee, yet the only place I feel the draft is that one spot on one knee. Checkout this: http://brain.hastypa...d...rune=&f=219 and read about neuropathy, many new people will post their feelings and maybe you will read how you feel too. Hope this helps! Feel free to email me with more questions.
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Deb
Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

#6 Lisa

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Posted 25 November 2006 - 05:19 PM

Deb, thanks for posting....I knew a little, but not much. :)
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Lisa

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"Not all who wander are lost" - JRR Tolkien

#7 Leann

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Posted 25 November 2006 - 05:35 PM

Hello Everyone,

I'm new here. I just found out on Tuesday that my blood test was positive for Celiac disease. I have what I'd call "dulled sensations" on my right side of my body. Arm, leg, torso and even my face all have spots that I cannot feel sensations like I should. I also drag my right leg behind me sometimes, because it is hard to walk. But that comes and goes.

I have had 3 MRIs, an EMG (I think that is what it is called), tons of blood work, a muscle test, gone to two neurologists and one spinal cord specialist. All of them said that there was no explaination for my symptoms and that I was "a healthy, young woman." It was only after getting my test results that it could be linked to Celiac. I'm so happy that I'm not crazy.
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Leann

blood test positive for Celiac disease
Hashimoto's disease-hypothyrodism caused by body attacking thyroid
B12 Deficency
Trying to start my gluten-free diet.

#8 heathen

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Posted 26 November 2006 - 06:29 PM

i had one finger that would go numb for no apparent reason, but it hasn't happened since i have been gluten free. don't know that i can attribute it to full blown neuropathy, but it might be the beginning stages.
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Diagnosed Celiac in February 2006
Villus blunting and positive blood test

#9 LYNN21

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Posted 26 November 2006 - 06:44 PM

Hello Leann
Just found out 3 weeks ago that my 10 year old daughter has celiac disease. She often complained of tingling in her legs before she found out she had celiac disease now she is on a gluten free diet and have not herd her complain. Hang in there and good luck.
Lynn21








Hello Everyone,

I'm new here. I just found out on Tuesday that my blood test was positive for Celiac disease. I have what I'd call "dulled sensations" on my right side of my body. Arm, leg, torso and even my face all have spots that I cannot feel sensations like I should. I also drag my right leg behind me sometimes, because it is hard to walk. But that comes and goes.

I have had 3 MRIs, an EMG (I think that is what it is called), tons of blood work, a muscle test, gone to two neurologists and one spinal cord specialist. All of them said that there was no explaination for my symptoms and that I was "a healthy, young woman." It was only after getting my test results that it could be linked to Celiac. I'm so happy that I'm not crazy.


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#10 Pegleg

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Posted 27 November 2006 - 06:08 PM

I notice that the more wheat products I eat in one meal, the more my limbs tingle.
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#11 Sinenox

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Posted 28 November 2006 - 11:28 AM

Hey! I'm not sure if it's related but I got a "no way" moment out of this thread. I'm getting used to that feeling around here, though.

When my intolerance got so bad that my body wasn't fighting off infections and I was hospitalized after I had surgery to remove an abscess my body had walled off I got the strangest sensation. My right foot felt kind of numb and when I would get upset or surprised, even mentally, even at the smallest level, it would feel hot. It persisted like this for a few weeks after I was released and then slowly faded away. At the time I assumed the surgeon had hit a nerve and it was being repaired. But the phrase "Stop it, you're making my foot hot!" has persisted in my group of friends as an inside joke. Very, very occasionally I get a milder, similar sensation again. I haven't had it for months and I assume it's gone. But that's interesting. I wonder if it's related?
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Hereditary Celiac Disease
(misdiagnosed: thyroid, fibro., anemia, lupus, GERD, lactose intol.)
Possible additional sensitivity to soy, legumes.

All these strange symptoms are starting to make sense.
So happy to have found you all.

#12 debmidge

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Posted 29 November 2006 - 02:53 AM

Husband got this several months after going gluten-free and still has it. It encompasses the leg too and neurologist can't find cause (diabetes ruled out).....apparently he just has to live with it.
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Husband has Celiac Disease and
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006
It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

#13 CatandCanary

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Posted 29 November 2006 - 03:33 PM

I was dx'd several years ago but I have a new symptom that might be related? Does anyone ever get any numbness or tingling in their feet? I read that some celiacs do get neuropathy.
Thanks!


It’s strange this should come up, although it might not be related to Celiac, I have had a problem with my feet.
I get a burning pain in my feet when I am not feeling well or if under stress, it was also a joke with my family and friends, because my kids would tell me when ever I spend over $5.00 for something my feet hurt. And that’s when I realized that it did happen when I was under some sort of stress. I went to the doctor and they did tests and called it unexplained pain. I don’t notice it as much being Gluten free, also if I am constipated it starts to be more noticeable.
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I am 45 years old married with 6 children

1969 Chronic Asthma, food allergies- wheat, dairy
1970 Migraine Head Aches
1978 Grand Mall Seizures
1998 Fibromyalgia
2000 Irritable Bowel
2004 Hypothyroidism
2005 Interstitial Cystitis
Unwilling to eat gluten for Celiac test
Oct 1st 2006 Gluten free

#14 jerseyangel

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Posted 29 November 2006 - 03:41 PM

I had a lot of these things prior to diagnosis. I had an altered feeling in my left arm--somewhere between numb and asleep. Also, numbness in my face and tingling pins and needles feelings in my lower legs. I would get a burning sensation on the bottoms of my feet and in my mouth. Sometimes, my whole face would get hot, and my skin would be beet red.

A lot of this improved post gluten-free. Some of it, like the facial numbness, and occasional foot dragging I'm afraid is permanent. :(
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Patti


"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

#15 Electra

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Posted 29 November 2006 - 03:43 PM

Oh yah I have not been officially diagnosed yet, but I guarantee I have this disease. I have had B12 deficiancy FOREVER and have even had monthy shots that did nothing to help it. I also have had all the tests and MRI's and they all come back normal. The numbness, coldness and tingling in my lower foot and leg have gotten so bad lately that I threatened to have my leg amputated because a prosthesis would be so much easier to live with!! I know that sounds harsh but if you've ever had a full blown attack of this you would know that ANYTHING is better then that cold, numb, constant ache and pain!! I just can NOT believe I stumbled onto this disease while I was looking up my other "misdiagnosed" intestinal disease and realized that my daughter also has it!! When I stop eating for a few days (which I have done for years because I just feel better when I don't eat) then all of my symptoms disappear!! I have also been on the low carb diet before (but I always chose completely NO CARB) and I feel better on that diet then any other diet I've ever been on. Now that I know I have this disease I know exactly why I feel so good on the low carb diet!! I hear they have meds to help with the cold, numb pain in your legs and arms that comes with Celiac Disease, so I'm definitely going to be looking that up if the gluten free diet doesn't completely cure it!! Good Luck!!
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~~Angie~~

DX'd With Narcolepsy In 1995
Dx'ed With Celiac On 12-18-06
Positive Biopsy On 2-1-07
DX'd With Pernicious Anemia 4-24-07
Daughter Has DH, so I suspect she also has Celiac!!

"If Alcoholism was Celiac Disease they would make us drink ourselves into kidney failure before they would admit we had the disease"


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