24 replies to this topic

[GEF]

I experience dizziness / vertigo every few months or so.. usually lasts for a few days, but I can't figure out from what. I'm not hypoglycemic, do not have low blood pressure or an ear infection. Does this happen to anyone else?

Gretchen

[j9n]

I had severe vertigo before I went gluten-free. I still have some small spells every once in awhile. I wonder if it is from accidental gluten ingestion?

[GEF]

So, I'm not the only one! I'm not gluten-free yet, and when it does happen, it's pretty bad where I've got to hold onto things.

[kvandorselaer]

this def happens to me as well.. I've been gluten free for 3 yrs and it happens. good to know i'm not the only one

[gf4life]

I have them also. I spent the last few days feeling very dizzy, and after a while I start to get a sort of nausea (like motion sickness) from it. I used to think I was hypoglycemic, but was told I wasn't. I've gotten these for at least half my life, and still get them gluten-free. I seem to notice that around the time it happens I am not eating a very balanced diet. I make a conscious effort to get enough protein and fresh fruits and veggies. I haven't figured out if it helps or not, but at least none of us are alone in this, right?! This is about how I feel when I get this way...

Anyone notice that we are all women, those of us that are complaining about the dizziness. Maybe it is hormonal? Are there any men who also get this? Might be interesting to find out.

God bless,
Mariann

[GEF]

Mariann,

Lucky me wakes up this morning with it. I'm going to start marking my calendar for when it happens so I can see if it's hormonally-related. Strange thing is.. that it only started happening this year (which makes sense, as my symptoms starting changing this year). All I can say is that I felt gross, so I loaded up on some sugar to see if that helps (sweet tea & a Snickers). Who knows, it might be too much sugar.. and I might be having the hypoglycemic attack that other celiacs have. I had a big bowl of ice cream before I went to bed last night. Maybe the sweet tea & Snickers weren't a very good idea... I'll know later!

I too get the motion-sickness thing.... ewwww

http://www.glutenfre...?showtopic=1011

Gretchen

[billfl]

Interesting subject...I'm a male, and have been gluten-free since March 2004 (except for 2 cross contaminations). For the past month, I have noticed that if I remain seated w/o moving for an extended period of time, like when I'm reading your posts, then I start to feel dizzy. Over a year ago, I was taking prednisone, which caused me to have diabetes, and I had to take medication for it. The diabetes is now resolved after stopping the prednisone. I periodically check my blood sugar, and it is in the low 90's. I think that my body is still in the process of readjusting to the gluten-free diet. Thanx for bringing up this subject.

[Canadian Karen]

I also get vertigo.....

It is particularly bad for me in the car when I have to look over my shoulder to talk to the kids...... WOW! My world spins!!

Karen

[j9n]

I, too, woke up with vertigo this morning. I am standing and I feel like I am going to fall over. The hardest part is to not nod when talking to someone! I was thinking it may be because it is "that time" and maybe I am low on something like iron? I am going to see my gyno tomorrow, right now she is the only doctor I trust, and see what she thinks.

[GEF]

Janine,

Did your doctor have any insight? I just saw my (former) GI doctor recently and forgot to mention this problem. It's such a weird feeling and is a little scary.... it's occuring more and more frequently. I'm going to see my PCP this afternoon to get my blood sugar checked... it usually comes back fine on the blood tests, but I'll ask for a monitor or something. I'll let you know what I find out.

Gretchen

[j9n]

I think I may know what is causing it. I took a prescription water pill that is generic and one of the ingredients is starch but I have to check with the pharmacy to see if they know what kind. I am also starting hormone therapy.

[GEF]

I think I may know what is causing it.

Yeah, Janine.. I hope so!!

I went to my PCP, but he was out today and the sub has no idea what's causing this vertigo issue I will now have to wait for the specialist in October. I've read of the connection of celiac & meniere's (one of the symptoms is vertigo)... apparently it's inner-ear related. It could also be my wisdom teeth, but they haven't ever bothered me. I'm just brainstorming... I have no idea what's causing this.

Ok.. I have an update: the doctor (the pcp who was out today) called my home# this evening (can you believe that he took my chart home to review? ) and wants me to do a cbc, sed rate & glucose, thyroid check tomorrow morning... Saturday. Knowing my blood, it will show nothing unusual and he'll think I'm a hypochondriac

Gretchen

[Rod]

I have been gluten-free for almost 3 years and I am still having new strange things happen to me. I often fell dizzy or like I'm in a fog and I wonder if it is related to inner ear trouble.
However, a month or so ago, I quite suddenly, like a switch being turned on, felt like I was going crazy. I wouldn't call it depression. This lasted for 5 or 6 hours. I normally feel like someone in total control.....but this was very scarey.
I thought it might have something to do with eating too much starch and not processing it properly.
Well it happened again a few days ago.
I wonder what is happen to me.
Any ideas.

[GEF]

Rod,

Had that ever happened before? I attribute a lot of my "weirdness" on fatigue or hormones, but I'm sure there are other factors involved at times. Everyone here has a different reaction when they ingest gluten and your's could just be in this manner. You don't need to answer this, but are (or were) you under a lot of stress at the time you experienced the trouble? Our bodies are fighting hard enough to stay well and sometimes stress will throw us over the edge. I know that dizziness is a symptom of celiac disease, but I really do like to make sure there's nothing else contributing. Do you have a good relationship with your doctor that you could possibly mention the issue you're having? Was your "craziness" more like edginess or was it worse? Did you have any other symptoms, like shakiness, sweating, etc?

But, one thing's for sure.. you're not alone.. I'd rather have a massive stomach ache than feel cloudy/dizzy/crazy in the head!!

Gretchen

[Rod]

Your right on there. I can deal with the stomach. But not the head stuff.
The "craziness" seemed to run the whole gambit of paranoia, suicide, depression.
I am planning to see my GP to get a referral to an eye-ear-nose specialist,
physologist and hopefully a cat-scan.
I literally want my head examined.
I want to rule out everything and my doctor has been terrific in following up.

The only thing I can really relate to both times is that my stomach was acting up a bit in the days leading up. So maybe my immune system was low.
Although I still think the lack of being able to process starch had something to do with it. I read a book a few years ago called "Breaking the viscious cycle" that refers to the starch problem.