Posted 20 August 2004 - 06:38 AM
Posted 20 August 2004 - 07:22 AM
Posted 20 August 2004 - 07:27 AM
Posted 21 August 2004 - 08:52 PM
Posted 21 August 2004 - 09:03 PM
Anyone notice that we are all women, those of us that are complaining about the dizziness. Maybe it is hormonal? Are there any men who also get this? Might be interesting to find out.
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 25 August 2004 - 06:13 AM
Lucky me wakes up this morning with it. I'm going to start marking my calendar for when it happens so I can see if it's hormonally-related. Strange thing is.. that it only started happening this year (which makes sense, as my symptoms starting changing this year). All I can say is that I felt gross, so I loaded up on some sugar to see if that helps (sweet tea & a Snickers). Who knows, it might be too much sugar.. and I might be having the hypoglycemic attack that other celiacs have. I had a big bowl of ice cream before I went to bed last night. Maybe the sweet tea & Snickers weren't a very good idea... I'll know later!
I too get the motion-sickness thing.... ewwww
Posted 25 August 2004 - 04:46 PM
Posted 25 August 2004 - 05:01 PM
It is particularly bad for me in the car when I have to look over my shoulder to talk to the kids...... WOW! My world spins!!
positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)
Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.
Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......
"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden
Laughter is the shortest distance between two people.
-- Victor Borge
"An optimist laughs to forget. A pessimist forgets to laugh."
"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Posted 25 August 2004 - 05:19 PM
Posted 27 August 2004 - 06:30 AM
Did your doctor have any insight? I just saw my (former) GI doctor recently and forgot to mention this problem. It's such a weird feeling and is a little scary.... it's occuring more and more frequently. I'm going to see my PCP this afternoon to get my blood sugar checked... it usually comes back fine on the blood tests, but I'll ask for a monitor or something. I'll let you know what I find out.
Posted 27 August 2004 - 09:58 AM
Posted 27 August 2004 - 12:00 PM
Yeah, Janine.. I hope so!!
I think I may know what is causing it.
I went to my PCP, but he was out today and the sub has no idea what's causing this vertigo issue I will now have to wait for the specialist in October. I've read of the connection of celiac & meniere's (one of the symptoms is vertigo)... apparently it's inner-ear related. It could also be my wisdom teeth, but they haven't ever bothered me. I'm just brainstorming... I have no idea what's causing this.
Ok.. I have an update: the doctor (the pcp who was out today) called my home# this evening (can you believe that he took my chart home to review? ) and wants me to do a cbc, sed rate & glucose, thyroid check tomorrow morning... Saturday. Knowing my blood, it will show nothing unusual and he'll think I'm a hypochondriac
Posted 31 August 2004 - 09:48 AM
However, a month or so ago, I quite suddenly, like a switch being turned on, felt like I was going crazy. I wouldn't call it depression. This lasted for 5 or 6 hours. I normally feel like someone in total control.....but this was very scarey.
I thought it might have something to do with eating too much starch and not processing it properly.
Well it happened again a few days ago.
I wonder what is happen to me.
Posted 31 August 2004 - 10:21 AM
Had that ever happened before? I attribute a lot of my "weirdness" on fatigue or hormones, but I'm sure there are other factors involved at times. Everyone here has a different reaction when they ingest gluten and your's could just be in this manner. You don't need to answer this, but are (or were) you under a lot of stress at the time you experienced the trouble? Our bodies are fighting hard enough to stay well and sometimes stress will throw us over the edge. I know that dizziness is a symptom of celiac disease, but I really do like to make sure there's nothing else contributing. Do you have a good relationship with your doctor that you could possibly mention the issue you're having? Was your "craziness" more like edginess or was it worse? Did you have any other symptoms, like shakiness, sweating, etc?
But, one thing's for sure.. you're not alone.. I'd rather have a massive stomach ache than feel cloudy/dizzy/crazy in the head!!
Posted 31 August 2004 - 10:33 AM
The "craziness" seemed to run the whole gambit of paranoia, suicide, depression.
I am planning to see my GP to get a referral to an eye-ear-nose specialist,
physologist and hopefully a cat-scan.
I literally want my head examined.
I want to rule out everything and my doctor has been terrific in following up.
The only thing I can really relate to both times is that my stomach was acting up a bit in the days leading up. So maybe my immune system was low.
Although I still think the lack of being able to process starch had something to do with it. I read a book a few years ago called "Breaking the viscious cycle" that refers to the starch problem.
0 user(s) are reading this topic
0 members, 0 guests, 0 anonymous users