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Dizziness/vertigo


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24 replies to this topic

#16 GEF

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Posted 31 August 2004 - 10:58 AM

There is absolutely no shame in an attempt to find answers... I remember that when I need to talk with my doctor about things like this.

I get the same symptoms that you do... I get the "spooks" now and then, and all I've known to help with that is a good night's rest. I'm in no way sleep deprived, but I just seem to need a lot. I'm trying to piece together what symptoms correspond to what my diet is consisting of... it's difficult, as you can see by my latest attempt to find out where this vertigo is coming from. Now, I've heard that undigested gluten proteins act like morphine in our bloodstream... now, that would explain a lot. I'm not gluten-free yet since I'm still getting tests run so I can't even tell yet if all of these symptoms will improve on a gluten-free diet. However, I'd see if a gluten (even an accidental trace) might be the cause of your symptoms. But, good luck with it all and I hope you're feeling better soon.

Gretchen
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#17 Rod

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Posted 31 August 2004 - 11:01 AM

Thanks very much!
I hope you have support like I do at home.
My wife is amazing.

Best of luck in your own journey.
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#18 tarnalberry

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Posted 31 August 2004 - 11:17 AM

That dizzy/nauseaous/funny-headed feeling is my main symptom of gluten contamination. Turns out it's also my primary symptom of casein ingestion as well (delayed reaction, takes nearly exactly 2 hours). Try eliminating dairy as see if that helps? (Both gluten and casein proteins are similar in that if they're not properly digested, what's "left over" can act as opiates in the brain. I wondered why the feeling was familiar... it was like when I had codeine (painkillers) for a broken leg!! :-) )
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA

#19 dkmb

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Posted 01 September 2004 - 05:10 AM

I too get vertigo like symptoms, but haven't associated it with celiac disease. My doctor says it is BPPV where crystals of calcium carbonate get trapped in the inner ear rather than desolving or passing through. I have learned to control it to some extent. I don't move my head to the right (a trigger for me) but move my whole body, I don't roll over in bed but move to a sitting up position first. I have gotten used to kneeling down rather than looking down and using a small ladder as opposed to looking up, when possible. I was in the dentist chair the other day where the dentist was to my right and just that slight turn of my head brought it on. If it gets bad I will sleep in a chair, but that hasn't happened for sometime.
Here is a website that has a pretty good explaination:
http://www.dizziness.../bppv/bppv.html
It is a miserable feeling and you can get therapy for it to teach you how to control it. I just sort of learned by trial and error. I suppose it could in some remote way be related to malabsorption of calcium.
DK
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#20 GEF

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Posted 01 September 2004 - 05:35 AM

My labs are back already (I had them done on Saturday!!).. talk about quick! And guess what??.. they're all normal. <_<

He checked a bunch of things (did a complete metabolic panel, thyroid, glucose, iron, etc).. and I'm not pregnant. Soooo... I am resolved to believe this vertigo is a gluten-related reaction.

I hate gluten :angry: I'd be soooo healthy if I didn't have a gluten issue!! But, now I'm getting excited at how good I can be feeling when I go gluten-free.. I'm going to feel like superwoman!!

Gretchen
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#21 kabowman

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Posted 01 September 2004 - 05:43 AM

Wow - I have been having problems with dizzyness for a couple of years now and have not been able to attibute it to anything. Maybe now that gluten-free this will go away. I have been lactose/casean free for 4+ years.

Does anyone run a low-grade fever for no apparent reason (for up to a week)?

I have been hospitalized, tested, etc. with no reason for the fever. They finally released me when the fever went away on its own. After that, I stopped mentioning this to my GP. My allergist said to just take Tylenol until the fever goes away. However, I have yet been able to tie this to anything and one doc suggested I see a specialist for Rhumatoid Arthritis for this (I only have minimal arthritis since 25 years old - now 38) so that didn't make much sense and I have not made the appointment yet. Thanks...

-Kate
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-Kate
gluten-free since July 2004

Other Intolerances:
Strawberries and Banannas (2007)
Nitrates (April 2006)
Yeast (which includes all vinegar so no condiments) (Oct. 2004)
Peanuts (Nov. 2004)
Soy (Oct. 2004)
Almonds (Sept. 2004)
Corn (Sept. 2004)
Lactose/Casein (1999)

#22 GEF

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Posted 01 September 2004 - 05:57 AM

In regards to the fever, has your doctor ruled out Inflamatory Bowel Disease (IBD) and lupus? Just wondering. Also, it's not uncommon to have that with celiac.

Do you currently see a GI specialist?

My dizziness only started over the past 6 months or so.. apparently is a common symptom in celiac disease.

Gretchen
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#23 kabowman

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Posted 01 September 2004 - 06:42 AM

I have a GI specialist but have not seen him recenly. He diagnosed me several years ago with IBS and Lupus is in both sides of my family but I have not seen anyone for that yet. I wondered about Lupus; a lot of my symptoms match those and are just as hard to pinpoint to a specific problem.

The fever is not horrible, just draining and not much fun.

-Kate
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-Kate
gluten-free since July 2004

Other Intolerances:
Strawberries and Banannas (2007)
Nitrates (April 2006)
Yeast (which includes all vinegar so no condiments) (Oct. 2004)
Peanuts (Nov. 2004)
Soy (Oct. 2004)
Almonds (Sept. 2004)
Corn (Sept. 2004)
Lactose/Casein (1999)

#24 GEF

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Posted 01 September 2004 - 07:20 AM

Hello Kate,

I probably wouldn't be too bad of an idea to make a visit to your GI to rule out lupus, since it's in the bloodline. They can simply do an ANA test (auto-nuclear), which is a blood test. It's in my family too, so when I was getting tested for celiac I asked them to check this too. My ANA was negative. But it is nice to get things ruled out if you can.

Good luck and keep us posted!

Gretchen
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#25 tarnalberry

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Posted 01 September 2004 - 07:28 AM

Oddly enough, speaking of fevers, until I went gluten-free, I almost NEVER had a fever. The first time I got seriously sick after being gluten-free for a while, I had a nasty flu, and a NASTY fever (>101 for >5 days), but I didn't realize that I should have called my doctor after the second or third day, or how much fever-reducers I needed to take. I always had my temperature FALL when I was sick and eating gluten...
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA


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